Drama performance at Disney

Anonymous
This has to be a troll.
Anonymous
I really hope it's a troll. Otherwise between the ridgid diet/schedule for DS that only op can manage, the medicine that she herself makes for him, and DD's alleged new peanut allergy that prevents grandparents from watching her it really sounds like OPs children are victims of Münchausen syndrome by proxy. OP if you are for real please consider getting psychological help.
Anonymous
Anonymous wrote:
Anonymous wrote:I understand what others are saying about making sure siblings of children with SN have their own attention BUT I have an 8 yo and there is no way I would pay for a Disney trip now unless it was a family vacation. The sports/dance/activities are all out of hand and they are too young.


OP is a rich Doctor. $$$ not an issue


I could also afford to send my 8 yo but it's over the top for that age. It's the same reason we don't buy him everything he wants, just because we could maybe afford it. After reading more of OP's posts I think there are other issues going on besides the cost of the trip and marketing ploy...
Anonymous
Anonymous wrote:8 yo dd's drama class 'won an audition' to perform at Disney in Feb 2017. It's a marketing ploy to get families to travel to Disney. She really wants to go. I don't feel I can manage the trip because 5 yo ds has a very strict schedule of naps, sleep, ketogenic diet, tube feeds to keep his epilepsy from relapsing (it was horrible), also 12 yo dd is in a different school with a different break. The drama class is flying together for 4 days. My parents offered to travel to Orlando, pick up dd and stay in hotel with her. Now they are backing out because she has a peanut allergy and they don't feel comfortable taking care of her meals. Honestly I don't want to send dh because I have trouble managing my SN ds alone for 4 days - his behavior is very difficult. He has recovered his speech pretty well and he can walk and run, but falls down a lot. I work FT and have a good nanny, but she leaves at 6 pm and whenever I'm home while she's there, it's tense, so I can't ask her to stay overnight. WWYD?


You have my sympathies b/c at least one of your kids have very complex health issues and there are posters who can be very mean here. If your parents typically help you out, can only one of them go and the other one stay and help? Does your nanny have kids? If not, she may want the extra money and stay over night. She may also know someone who can stay over night. (When my MIL was in respite care all the aides knew one another.)

If you can afford the trip for your kid and one grandparent, and provided that your other kids wouldn't feel slighted. However, I would change drama classes that do stupid tie ins with Disney. They probably get some financial incentive to do this which makes me think they're assh*les and not interested in teaching kids. There are local "competitions" like the Folger theater etc.
Anonymous
Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.
Anonymous
Have your parents help your husband and hire a nurse or colleague to help with your ds. I know it seems impissjblecto leave him but your other kids need you too. Your daughter will remember this.
Anonymous
Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.


The issue is that there is apparently NO acceptable answer other than OP be with all the children all of the time. My guess is that instead of telling her parents about the allergy, precautions, and how to use an epipen, she started going through a detailed litany of how to completely peanut-proof the atmosphere, wipe down every surface, pretaste all of DD food, etc., and turned it into a trip they couldn't manage.

I am not assuming that her children don't need care. It is odd, however, that she has two children that need a type of care no one else, even their father, can manage. It is also telling that the suggestion that her parents come to her was met with "they stress me out." OP does not look for ways to make things work. She looks for reasons they can't work.

So DD is not going to Disney six months from now, because OP can't be in two places at once.
Anonymous
Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.


This isn't about money. It's about the kid who doesn't have special needs getting the shaft because the kid with special needs requires all of Mom's attention, and Mom won't find another solution for her other kid.
Anonymous
Anonymous wrote:
Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.


The issue is that there is apparently NO acceptable answer other than OP be with all the children all of the time. My guess is that instead of telling her parents about the allergy, precautions, and how to use an epipen, she started going through a detailed litany of how to completely peanut-proof the atmosphere, wipe down every surface, pretaste all of DD food, etc., and turned it into a trip they couldn't manage.

I am not assuming that her children don't need care. It is odd, however, that she has two children that need a type of care no one else, even their father, can manage. It is also telling that the suggestion that her parents come to her was met with "they stress me out." OP does not look for ways to make things work. She looks for reasons they can't work.

So DD is not going to Disney six months from now, because OP can't be in two places at once.


Don't forget that she also can't ask her nanny to work extra hours to help out because being around her makes op "tense". Agree- the issue isn't Disney, but where does this stop.
Anonymous
I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.
Anonymous
Anonymous wrote:I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.


Definitely a troll. Doesn't respond to any of the options that people give, just more stupid stuff.

If it isn't a troll, someone should call CPS. It wouldn't surprise me if OPs kids are not as sick as she claims.
Anonymous
Anonymous wrote:I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.


Ah well. When your daughter grows to hate you (as she will) can't say people didn't warn you! Continue being psycho mom. I wish we could identify people here. I really think you need to be investigated to see if you are intentionally making your kids. Judging by your behavior here, it wouldn't surprise me. Scary.
Anonymous
Disney is amazingly accomodating for physical and mental health issues.

They take allergies very seriously and are set up to deal with them. It's probably one of the the safest vacations in the world for a kid with food allergies. Sure, you also have to think about other vacationers and accidental exposure, but 8 years old is old enough for helping her self-monitor and overseeing yourself what goes to mouth. And grandparents can and need to learn about Epipens anyway, unless the child is never going to leave your side (don't do this).

On a side note, I was delighted to learn that Disney World publishes a free pamphlet with information for kids ont he spectrum or with special sensory processing needs --where low-stim environments can be quickly accessed for meltdowns, even what the pressure of a seat restraint will feel like. It's an amazing place for kids with special needs.

Anonymous
Anonymous wrote:I'm a pathologist at a hospital, so I'm not rich. I pay my nanny a fortune on the books, and my husband makes very little. So much hate here, I can't believe it.


well at least you don't have any patients.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Wow. Maybe it's just because I don't have much disposable income for a dance trip to Disney, but I just don't agree with the idea that this "opportunity" is so make or break, or that any good parent would find a way to make it work.

A child's epilepsy is a big deal. Seizures can do permanent damage. OP is an MD as s presumably knows how to manage it better than a layperson.

Sometimes kids have to hear no or at least not now. Life goes on. If your kids aren't spoiled they'll understand that they aren't entitled to everything money can buy.


The issue is that there is apparently NO acceptable answer other than OP be with all the children all of the time. My guess is that instead of telling her parents about the allergy, precautions, and how to use an epipen, she started going through a detailed litany of how to completely peanut-proof the atmosphere, wipe down every surface, pretaste all of DD food, etc., and turned it into a trip they couldn't manage.

I am not assuming that her children don't need care. It is odd, however, that she has two children that need a type of care no one else, even their father, can manage. It is also telling that the suggestion that her parents come to her was met with "they stress me out." OP does not look for ways to make things work. She looks for reasons they can't work.

So DD is not going to Disney six months from now, because OP can't be in two places at once.


Don't forget that she also can't ask her nanny to work extra hours to help out because being around her makes op "tense". Agree- the issue isn't Disney, but where does this stop.


I think it's more than that. It's not that OP is tense but that the situation is tense when they are both at home at the same time. No way OP would micromanaging the nanny...
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