Potential High Functioning Autism

Anonymous
Anonymous wrote:My other concern is that basically the only issue of concern for my son is that he is awkward socially at school. If the school is offering socialization services, I'm not sure I see the point of another evaluation so close to the last one (the last one was around 3.5). [/quote

Go with your gut OP. You should treat symptoms not a diagnosis. If they are including him in a social skills group at school that's great if that's what his main issue is. I'd hold off on the evaluation. What changes in regards to treatment based on his diagnosis? Schools are quick to throw a label. Go with your guts. Read the camarata book on intuitive parents.
Anonymous
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?
Anonymous
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.
Anonymous
OP, I would try a school change. That is a very large class and its hard for kids to focus or get any type of individual attention. Maybe the school, as much as you and he may like it, is not the best fit for him.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.


Parallel play is considered normal until around 4 when DS started preschool and my DS did not have speech delays and was in fact an early talker. He is an only child but got along well with his older cousins and adults. His social issues is all with his same aged peers. He did not walk until 16 months old but our ped told us that is still in the normal range.

The avg age for an Asperger's/ASD diagnosis is 8 yrs old so "missing the signs" prior to a child starting school is not unusual.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.


Parallel play is considered normal until around 4 when DS started preschool and my DS did not have speech delays and was in fact an early talker. He is an only child but got along well with his older cousins and adults. His social issues is all with his same aged peers. He did not walk until 16 months old but our ped told us that is still in the normal range.

The avg age for an Asperger's/ASD diagnosis is 8 yrs old so "missing the signs" prior to a child starting school is not unusual.


Pp, I know you are a frequent poster, and I am so glad your son is doing well. But your descriptions of your son always confuse everyone and your explaining how extremely well he is doing and advanced and brilliant and social honestly, I think, make all the other parents of special needs kids feel like crap. Your kid sounds very smart and a little quirky. Exercise some of those empathy skills he's learning in social skills to realize that this is not even close to most parents experience and stop bragging. It feels a little braggy. I know your son was diagnosed and I'm not questioning your services but it sucks to be asking s question about a kid with severe needs and have you pop in and be like - well my son with no issues who is amazingly smart and social happens to have Asd ADHD didn't get seen until later because it's so mild and has an amazing iep. Just like, we get it, you're amazing. Stop. But that's just me.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.


Parallel play is considered normal until around 4 when DS started preschool and my DS did not have speech delays and was in fact an early talker. He is an only child but got along well with his older cousins and adults. His social issues is all with his same aged peers. He did not walk until 16 months old but our ped told us that is still in the normal range.

The avg age for an Asperger's/ASD diagnosis is 8 yrs old so "missing the signs" prior to a child starting school is not unusual.


Pp, I know you are a frequent poster, and I am so glad your son is doing well. But your descriptions of your son always confuse everyone and your explaining how extremely well he is doing and advanced and brilliant and social honestly, I think, make all the other parents of special needs kids feel like crap. Your kid sounds very smart and a little quirky. Exercise some of those empathy skills he's learning in social skills to realize that this is not even close to most parents experience and stop bragging. It feels a little braggy. I know your son was diagnosed and I'm not questioning your services but it sucks to be asking s question about a kid with severe needs and have you pop in and be like - well my son with no issues who is amazingly smart and social happens to have Asd ADHD didn't get seen until later because it's so mild and has an amazing iep. Just like, we get it, you're amazing. Stop. But that's just me.




Plus 1 million!!!!!!!!!!!


Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.


Parallel play is considered normal until around 4 when DS started preschool and my DS did not have speech delays and was in fact an early talker. He is an only child but got along well with his older cousins and adults. His social issues is all with his same aged peers. He did not walk until 16 months old but our ped told us that is still in the normal range.

The avg age for an Asperger's/ASD diagnosis is 8 yrs old so "missing the signs" prior to a child starting school is not unusual.


Pp, I know you are a frequent poster, and I am so glad your son is doing well. But your descriptions of your son always confuse everyone and your explaining how extremely well he is doing and advanced and brilliant and social honestly, I think, make all the other parents of special needs kids feel like crap. Your kid sounds very smart and a little quirky. Exercise some of those empathy skills he's learning in social skills to realize that this is not even close to most parents experience and stop bragging. It feels a little braggy. I know your son was diagnosed and I'm not questioning your services but it sucks to be asking s question about a kid with severe needs and have you pop in and be like - well my son with no issues who is amazingly smart and social happens to have Asd ADHD didn't get seen until later because it's so mild and has an amazing iep. Just like, we get it, you're amazing. Stop. But that's just me.


My son got an IEP and services and supports to help him along since he was 4 yrs old. I am incredibly grateful for early intervention and the incredible people, doctors, school administrators and teachers, who got my son the help he needs. Early intervention has made an incredible difference for my DS with ASD/ADHD. I am sorry that you feel I am bragging when our experience has been that having great help and support leads to great results.
Anonymous
Older autism mom here: when my child was between 3 and 4, he was in an early intervention program. All little boys between 3 and 4. They all had similar language profiles and behaviors and PDD diagnoses (this was a while ago). Two of them went on to graduate from HS with regular diplomas. They are still autistic. Mine went into an autism-ABA program. Another did an intensive home program, then returned to an autism-Aba program.
Bottom line: I don't think you can predict at a very young age which kids will be "high functioning" and which ones won't. And I don't think it has anything to do with the quality of the IEP and how much money you spend on home programs. Some kid' brains mature better than others and it doesn't mean that those of us whose kids still,struggle with behavior and language and yes cognition did any less than any other parent. It's just the genetic/neurological hand my son was dealt. And we love him like crazy regardless.
Anonymous
Anonymous wrote:Older autism mom here: when my child was between 3 and 4, he was in an early intervention program. All little boys between 3 and 4. They all had similar language profiles and behaviors and PDD diagnoses (this was a while ago). Two of them went on to graduate from HS with regular diplomas. They are still autistic. Mine went into an autism-ABA program. Another did an intensive home program, then returned to an autism-Aba program.
Bottom line: I don't think you can predict at a very young age which kids will be "high functioning" and which ones won't. And I don't think it has anything to do with the quality of the IEP and how much money you spend on home programs. Some kid' brains mature better than others and it doesn't mean that those of us whose kids still,struggle with behavior and language and yes cognition did any less than any other parent. It's just the genetic/neurological hand my son was dealt. And we love him like crazy regardless.


Nicely said but I think the high vs. low functioning at young ages is more based off the evaluators who are giving parents their best guess as most of us ask for future predictions. It is impossible to say if early intervention helps. I cannot say if all the therapies helped or like you are saying, it's just the natural progression for my child. I am glad we did them, but we very possibly could have had the same outcome without them.
Anonymous
Anonymous wrote:My DS was diagnosed with a speech delay at 18 months. He was evaluated again at age 3 for autism and speech delays, but the results were inconclusive. He does not have any speech delays. He is now four and his teacher suggested another evaluation. My son doesn't have many friends at school aside from one very close friend and a few kids he plays with at the playground. He has a few topics he loves and will sometimes talk about them at inappropriate times. He is hyper-focused on his work. The strange thing is that at home he acts quite differently - he has several close friends in the neighborhood and asks to see them all the time. He loves to joke about his sister, and laughs all the time. He likes several topics - and plays with a variety of toys. I think he has a lot of anxiety as this is a new school, and I am a SAHM. He was in a part time play coop with 11 other children, whereas now he is in a huge 27 kid classroom now, without his mom being there. Not sure what to do, but at this point he will have had an evaluation every year. The school has decided to go forward with socialization therapy before the evaluation. I'm tempted to wait a few months to get him evaluated. I would just hate for my son to have yet another long test (he hates it every time no matter how much I try to spin it as a fun game), and for the results to come out again as being inconclusive. Has anyone else had an inconclusive autism screening?


OP, food for thought:

http://www.salon.com/2013/09/21/thats_not_autism_its_simply_a_brainy_introverted_boy/

SATURDAY, SEP 21, 2013 08:30 AM EDT
That’s not autism: It’s simply a brainy, introverted boy
Autism spectrum diagnoses are up 78 percent in 10 years. We're dramatically overdiagnosing it in everyday behavior
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.


Parallel play is considered normal until around 4 when DS started preschool and my DS did not have speech delays and was in fact an early talker. He is an only child but got along well with his older cousins and adults. His social issues is all with his same aged peers. He did not walk until 16 months old but our ped told us that is still in the normal range.

The avg age for an Asperger's/ASD diagnosis is 8 yrs old so "missing the signs" prior to a child starting school is not unusual.


Pp, I know you are a frequent poster, and I am so glad your son is doing well. But your descriptions of your son always confuse everyone and your explaining how extremely well he is doing and advanced and brilliant and social honestly, I think, make all the other parents of special needs kids feel like crap. Your kid sounds very smart and a little quirky. Exercise some of those empathy skills he's learning in social skills to realize that this is not even close to most parents experience and stop bragging. It feels a little braggy. I know your son was diagnosed and I'm not questioning your services but it sucks to be asking s question about a kid with severe needs and have you pop in and be like - well my son with no issues who is amazingly smart and social happens to have Asd ADHD didn't get seen until later because it's so mild and has an amazing iep. Just like, we get it, you're amazing. Stop. But that's just me.


My son got an IEP and services and supports to help him along since he was 4 yrs old. I am incredibly grateful for early intervention and the incredible people, doctors, school administrators and teachers, who got my son the help he needs. Early intervention has made an incredible difference for my DS with ASD/ADHD. I am sorry that you feel I am bragging when our experience has been that having great help and support leads to great results.


I’m also asking you to please have some empathy when you consider what and why you are posting. I find your posts are unreliable, quite misleading, and your use terms incorrect. You say your DS benefitted from early intervention, but he started services after 4, so that’s not EI! In the SN world, services before 3 are considered EI.

It’s very misleading to say your son had 0 issues before preK. All kids with ASD/ Asperger’s have visible traits/ red flags way before that age and all struggle with pragmatic speech, even if they have large vocabularies. Not evolving play skills past parallel play at 4 is also not normal. I see playgroups for 2 year olds frequently, and all typical toddlers at that age already engage in associative play with peers.

You said on different threads that there are Aspies and ppl on the broader autism phenotype in your family – perhaps that explains why you didn’t notice signs in your son, since for your family such traits are common. But your son couldn’t have been diagnosed with AS because of not playing with peers/ social issues alone; that would only meet criteria for social (pragmatic) communication disorder.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would do ADOS/ADI-R which only tests for ASD and is the gold standard. 4 is too young for a Neuropsych eval.

My son had zero issues until he entered prek
and his teacher pointed out that there maybe issues. DS was diagnosed with ASD/Asperger's at 4 and got an IEP.

He is doing great in 3rd grade at a language immersion school. Has lots of friends and loves school.

If it turns out that your son has ASD, better to find out now and get him help rather than later.

How is this possible? Did he have typical social and play skills with siblings, peers until 4?


It makes no sense that child had no issues prior to prek. Or, they missed all signs.


Parallel play is considered normal until around 4 when DS started preschool and my DS did not have speech delays and was in fact an early talker. He is an only child but got along well with his older cousins and adults. His social issues is all with his same aged peers. He did not walk until 16 months old but our ped told us that is still in the normal range.

The avg age for an Asperger's/ASD diagnosis is 8 yrs old so "missing the signs" prior to a child starting school is not unusual.


Pp, I know you are a frequent poster, and I am so glad your son is doing well. But your descriptions of your son always confuse everyone and your explaining how extremely well he is doing and advanced and brilliant and social honestly, I think, make all the other parents of special needs kids feel like crap. Your kid sounds very smart and a little quirky. Exercise some of those empathy skills he's learning in social skills to realize that this is not even close to most parents experience and stop bragging. It feels a little braggy. I know your son was diagnosed and I'm not questioning your services but it sucks to be asking s question about a kid with severe needs and have you pop in and be like - well my son with no issues who is amazingly smart and social happens to have Asd ADHD didn't get seen until later because it's so mild and has an amazing iep. Just like, we get it, you're amazing. Stop. But that's just me.


My son got an IEP and services and supports to help him along since he was 4 yrs old. I am incredibly grateful for early intervention and the incredible people, doctors, school administrators and teachers, who got my son the help he needs. Early intervention has made an incredible difference for my DS with ASD/ADHD. I am sorry that you feel I am bragging when our experience has been that having great help and support leads to great results.


I’m also asking you to please have some empathy when you consider what and why you are posting. I find your posts are unreliable, quite misleading, and your use terms incorrect. You say your DS benefitted from early intervention, but he started services after 4, so that’s not EI! In the SN world, services before 3 are considered EI.

It’s very misleading to say your son had 0 issues before preK. All kids with ASD/ Asperger’s have visible traits/ red flags way before that age and all struggle with pragmatic speech, even if they have large vocabularies. Not evolving play skills past parallel play at 4 is also not normal. I see playgroups for 2 year olds frequently, and all typical toddlers at that age already engage in associative play with peers.

You said on different threads that there are Aspies and ppl on the broader autism phenotype in your family – perhaps that explains why you didn’t notice signs in your son, since for your family such traits are common. But your son couldn’t have been diagnosed with AS because of not playing with peers/ social issues alone; that would only meet criteria for social (pragmatic) communication disorder.


A few thoughts. This poster also frustrates me, possibly because I am projecting. I have a quirky DS (whose male relatives do things like stim and fixate on subjects, but are brilliant and successful) and my fear is having him tagged as autistic just because he is different. On the other hand, the "narrative" of Aspergers is frequently that it is not diagnosed until 8 or 9 when the social functioning deficits become apparent, and that they do not have red flags necessarily at a younger age. So maybe this poster just got lucky and got her kid identified very early based on more subtle signs. Also, I don't think anyone is really diagnosing "social communication disorder" because it is so new (and anyway would not have been in the DSM when this PP's son was diagnosed.)

I think what really frustrates about this poster is the mismatch between the seemingly extravagant services in the IEP, and the repeated statements that her son has no problems. Who knows, maybe she is a massive success story, but I can see how it would be difficult to swallow if you are a parent of a kid with more severe problems treated much more poorly.
Anonymous
A few thoughts. This poster also frustrates me, possibly because I am projecting. I have a quirky DS (whose male relatives do things like stim and fixate on subjects, but are brilliant and successful) and my fear is having him tagged as autistic just because he is different. On the other hand, the "narrative" of Aspergers is frequently that it is not diagnosed until 8 or 9 when the social functioning deficits become apparent, and that they do not have red flags necessarily at a younger age. So maybe this poster just got lucky and got her kid identified very early based on more subtle signs. Also, I don't think anyone is really diagnosing "social communication disorder" because it is so new (and anyway would not have been in the DSM when this PP's son was diagnosed.)

I think what really frustrates about this poster is the mismatch between the seemingly extravagant services in the IEP, and the repeated statements that her son has no problems. Who knows, maybe she is a massive success story, but I can see how it would be difficult to swallow if you are a parent of a kid with more severe problems treated much more poorly.

PP here. It's much earlier for many kids. Keep in mind that the age-at-diagnostic statistics also skewed by people diagnosed late as adults, who, as they and their families would tell you, struggled their whole lives. I've become involved in ASD advocacy and talked with hundreds of parents at this point, some of AS kids now in college. All parents noticed social communication deficiencies and autistic behaviors very early on, before the child's second birthday. But they were reassured by well-meaning relatives and pediatricians that the kids were OK and would grow out of their quirks. That's why kids are diagnosed late.

I had a strong reaction to her post because it makes it sound like she had a typically developing kid with zero issues, and he became autistic after he turned 4. No.

You're right that SCD is a DSM -V diagnosis. But DSM-IV requires repetitive behaviors/ interests for diagnosis, so the story still doesn't make sense, as told.
Anonymous
Anonymous wrote:
A few thoughts. This poster also frustrates me, possibly because I am projecting. I have a quirky DS (whose male relatives do things like stim and fixate on subjects, but are brilliant and successful) and my fear is having him tagged as autistic just because he is different. On the other hand, the "narrative" of Aspergers is frequently that it is not diagnosed until 8 or 9 when the social functioning deficits become apparent, and that they do not have red flags necessarily at a younger age. So maybe this poster just got lucky and got her kid identified very early based on more subtle signs. Also, I don't think anyone is really diagnosing "social communication disorder" because it is so new (and anyway would not have been in the DSM when this PP's son was diagnosed.)

I think what really frustrates about this poster is the mismatch between the seemingly extravagant services in the IEP, and the repeated statements that her son has no problems. Who knows, maybe she is a massive success story, but I can see how it would be difficult to swallow if you are a parent of a kid with more severe problems treated much more poorly.


Oops, messed up the quotes.

PP here. It's much earlier for many kids. Keep in mind that the age-at-diagnostic statistics also skewed by people diagnosed late as adults, who, as they and their families would tell you, struggled their whole lives. I've become involved in ASD advocacy and talked with hundreds of parents at this point, some of AS kids now in college. All parents noticed social communication deficiencies and autistic behaviors very early on, before the child's second birthday. But they were reassured by well-meaning relatives and pediatricians that the kids were OK and would grow out of their quirks. That's why kids are diagnosed late.

I had a strong reaction to her post because it makes it sound like she had a typically developing kid with zero issues, and he became autistic after he turned 4. No.

You're right that SCD is a DSM -V diagnosis. But DSM-IV requires repetitive behaviors/ interests for diagnosis, so the story still doesn't make sense, as told.
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