Migraine with aura

Anonymous
Taking 400 mg of magnesium daily can help prevent. I have a teen that gets them about 2x year and the aura is terrifying. The pain afterwards is so intense and scary.
Anonymous
I have had those for years. At first I thought I has having a stroke.

If I relax, the aura passes in about 20 min, and I don't usually get a headache.

Triggers are chocolate, and bright lights, or being tired.
Anonymous
Anonymous wrote:OP here - the hardest part for me is that I’ve had about a total of 20 migraines over a span of 25 years, yet I think about them every day. I obsess about them. Sometimes after I go a year or two without one I will start to forget about it, and even though I think about it a little bit every day, I don’t obsess. But coming off of one it really sends me into a spiral of this OCD like thinking. So it’s not even the migraine itself that is ruining my life. It’s the thoughts that come with it.


You need to find a doctor to help treat you with that anxiety. It's not really the migraines that are the problem. But find a neuro that specializes in headaches and see if he can help. I ended up taking Topamax and carrying Imitrex--and it helps with the anxiety part too.
Anonymous
Anonymous wrote:Taking 400 mg of magnesium daily can help prevent. I have a teen that gets them about 2x year and the aura is terrifying. The pain afterwards is so intense and scary.


magnesium isn't doing anything if they are 2 a year. Its a myth.
Anonymous
Anonymous wrote:
Anonymous wrote:OP here - the hardest part for me is that I’ve had about a total of 20 migraines over a span of 25 years, yet I think about them every day. I obsess about them. Sometimes after I go a year or two without one I will start to forget about it, and even though I think about it a little bit every day, I don’t obsess. But coming off of one it really sends me into a spiral of this OCD like thinking. So it’s not even the migraine itself that is ruining my life. It’s the thoughts that come with it.


You need to find a doctor to help treat you with that anxiety. It's not really the migraines that are the problem. But find a neuro that specializes in headaches and see if he can help. I ended up taking Topamax and carrying Imitrex--and it helps with the anxiety part too.


Stop with the anxiety nonsense and dismissing them.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Talk to your doctor. I’ve had those migraines for decades. You need to have your anxiety treated.


They don't cause you anxiety? How?! They are so scary to me.
What should I ask my doctor about.


NP but for me, I don't get anxiety about it because there isn't really anything I can do about it (beyond the things I do to try to prevent them). Being anxious whether or not I am going to get another one makes no difference. If I get it, I get it and have to deal with it.


I get migraines daily so I don’t know what it’s like not to but occasionally I get anxious when they are so bad and last days. Usually I can break them to get a few hours per day of relief. If you don’t get them often it’s scary.


Do you get the aura daily too? I’m so sorry. Honestly I am so sorry. I’m sure you’ve tried everything but that just sucks


Migraines, never go away except a few hours with imitrex. I plan my life around those few hours. About 10 years ago in my late 39s I started to get the occasional aura. Just a few times a year. It’s scary.


You should try acupuncture or a natural dr?


Should I? What if I did and wasted tons of money and no change... thanks for the bad advice.
Anonymous
Anonymous wrote:OP here - the hardest part for me is that I’ve had about a total of 20 migraines over a span of 25 years, yet I think about them every day. I obsess about them. Sometimes after I go a year or two without one I will start to forget about it, and even though I think about it a little bit every day, I don’t obsess. But coming off of one it really sends me into a spiral of this OCD like thinking. So it’s not even the migraine itself that is ruining my life. It’s the thoughts that come with it.


They are memorable. Get an abortive and carry it with you.
Anonymous
I get visual aura migraines a couple times a month. I don't think it's that big of a deal? Whatever I am doing I wait for it to pass. It's usually over in about 30 minutes.

I do know my triggers but sometimes it just comes out of nowhere.

I re-read your post and the aura lasts all day? Are you sure that is having to do with a migraine? The aura component of migraines is typically pretty short.

Anonymous
I used to get those but without the headache. When I brought my baseline anxiety level down they went away. It’s been 5 years or so for me.

I did Headspace daily for five years like it was a medication. Also therapy for anxiety which was CBT based
Anonymous
Anonymous wrote:
Anonymous wrote:Taking 400 mg of magnesium daily can help prevent. I have a teen that gets them about 2x year and the aura is terrifying. The pain afterwards is so intense and scary.


magnesium isn't doing anything if they are 2 a year. Its a myth.


Then what can be done? The pain is so intense that it requires an ER visit and IV narcotics. Granted, it hasn’t occurred frequently but still is super awful when it does happen
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:OP here - the hardest part for me is that I’ve had about a total of 20 migraines over a span of 25 years, yet I think about them every day. I obsess about them. Sometimes after I go a year or two without one I will start to forget about it, and even though I think about it a little bit every day, I don’t obsess. But coming off of one it really sends me into a spiral of this OCD like thinking. So it’s not even the migraine itself that is ruining my life. It’s the thoughts that come with it.


You need to find a doctor to help treat you with that anxiety. It's not really the migraines that are the problem. But find a neuro that specializes in headaches and see if he can help. I ended up taking Topamax and carrying Imitrex--and it helps with the anxiety part too.


Stop with the anxiety nonsense and dismissing them.


PP is not saying the OP's migraines aren't happening. They are saying that the anxiety caused by anticipation of a migraine is more debilitating for OP than the migraines themselves, given how infrequent they are. And PP is right. Look at the OP's own words: "...it's not even the migraine itself that is ruining my life. It's the thoughts that come with it".

OP needs help to stop worrying about migraines and catastrophizing about what will happen if one occurs. I have gotten migraines with aura for 20 years. Frequency has ranged from monthly, to once or twice a year, to multiple in a week. Hormones are a big trigger for me, so perimenopause has led to a significant increase over years past. I understand what OP is saying about any little visual disturbance making you freak out that one is coming, because the auras start out so subtle. You have a few minutes where you are just kind of frozen waiting to see if it persists and expands over your visual field. I am definitely getting that feeling lately because of such a large uptick in frequency. But the level of anxiety OP is describing is not normal and needs to be addressed separately from any migraine treatment.


Anonymous
You need to speak with your dr about this. Migraines with auras are signs of bigger, but usually treatable, health problems.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Taking 400 mg of magnesium daily can help prevent. I have a teen that gets them about 2x year and the aura is terrifying. The pain afterwards is so intense and scary.


magnesium isn't doing anything if they are 2 a year. Its a myth.


Then what can be done? The pain is so intense that it requires an ER visit and IV narcotics. Granted, it hasn’t occurred frequently but still is super awful when it does happen


I overuse Tristan’s with my doctors blessing. The fix is different for everyone. I just live with it. Never done narcotics. Once you do you are labeled a drug seeker. Er is a waste of time.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:OP here - the hardest part for me is that I’ve had about a total of 20 migraines over a span of 25 years, yet I think about them every day. I obsess about them. Sometimes after I go a year or two without one I will start to forget about it, and even though I think about it a little bit every day, I don’t obsess. But coming off of one it really sends me into a spiral of this OCD like thinking. So it’s not even the migraine itself that is ruining my life. It’s the thoughts that come with it.


You need to find a doctor to help treat you with that anxiety. It's not really the migraines that are the problem. But find a neuro that specializes in headaches and see if he can help. I ended up taking Topamax and carrying Imitrex--and it helps with the anxiety part too.


Stop with the anxiety nonsense and dismissing them.


PP is not saying the OP's migraines aren't happening. They are saying that the anxiety caused by anticipation of a migraine is more debilitating for OP than the migraines themselves, given how infrequent they are. And PP is right. Look at the OP's own words: "...it's not even the migraine itself that is ruining my life. It's the thoughts that come with it".

OP needs help to stop worrying about migraines and catastrophizing about what will happen if one occurs. I have gotten migraines with aura for 20 years. Frequency has ranged from monthly, to once or twice a year, to multiple in a week. Hormones are a big trigger for me, so perimenopause has led to a significant increase over years past. I understand what OP is saying about any little visual disturbance making you freak out that one is coming, because the auras start out so subtle. You have a few minutes where you are just kind of frozen waiting to see if it persists and expands over your visual field. I am definitely getting that feeling lately because of such a large uptick in frequency. But the level of anxiety OP is describing is not normal and needs to be addressed separately from any migraine treatment.




No, she doesn’t. You are lucky yours are mild. I never leave home with a triptan. It’s very normal.
Anonymous
Who are these people whose migraines pass if they just "relax" or lie down for 30 minutes??

I don't have aura with my migraines but they will last for actual days if I don't medicate. Even with medication, they sometimes come back in the morning and I have to re-dose. Once when I was on sumatriptan, I took it daily for 10 days and the headache still kept returning, I had to go see my neurologist and after that started doing regular Botox as a preventative and have Nurtec as an abortive, which has helped.

I feel like if the headache you are getting goes away on its own within an hour or after lying down for a bit, that's not a migraine? My migraines are debilitating. Without medication, I was in pain and struggling to work or function probably half the time.
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