Restless leg syndrome

Anonymous
RLS is horrible. For me it's an uncomfortable or painful electric current in my legs that causes them to involuntarily jerk. It definitely keeps me awake for an hour or two when it's bad, fun!

When my RLS is well-managed, it's primarily in the left lower leg. I have to have a pillow between my legs and often have to sleep on that side/leg. When it's not well-managed (i.e., an iron infusion is wearing off, or it's in the middle or end of my cycle), both legs involuntarily, violently, jerk and it hurts.

I repeat. RLS is horrible. If you have it, or think you might have it, find an RLS specialist neurologist. You might need regular (yearly for me) IV iron infusions. not all neurologists are familiar with this. The RLS guidelines state that RLS sufferers can have much higher iron/ferritin/etc. levels than other people and still need iron. I get one every year and can definitely tell when it wears off.

Not a fan of gabapentin, but am trying to use it. I also take an SSRI and my psychiatrist and neurologist never batted an eye, so a PP was incorret.
Anonymous
Anonymous wrote:RLS is horrible. For me it's an uncomfortable or painful electric current in my legs that causes them to involuntarily jerk. It definitely keeps me awake for an hour or two when it's bad, fun!

When my RLS is well-managed, it's primarily in the left lower leg. I have to have a pillow between my legs and often have to sleep on that side/leg. When it's not well-managed (i.e., an iron infusion is wearing off, or it's in the middle or end of my cycle), both legs involuntarily, violently, jerk and it hurts.

I repeat. RLS is horrible. If you have it, or think you might have it, find an RLS specialist neurologist. You might need regular (yearly for me) IV iron infusions. not all neurologists are familiar with this. The RLS guidelines state that RLS sufferers can have much higher iron/ferritin/etc. levels than other people and still need iron. I get one every year and can definitely tell when it wears off.

Not a fan of gabapentin, but am trying to use it. I also take an SSRI and my psychiatrist and neurologist never batted an eye, so a PP was incorret.


Again, they said nothing about SSRIs, the issue with with "depressants" like benzos (e.g. Lorazepam) and opiods that depress the nervous system. Gabapentin suppresses the nervous system so the concern is a double whammy. Your SSRI does not do that.
Anonymous
Mine is caused by anemia. Popping an iron pill eliminates it
Anonymous
I weirdly had this after surgery for a few months. Leg pain would wake me up. I took Gabapentin, which helped. The issue resolved on its own.
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