Chemo patient off ventilator, but talking gibberish

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Sounds like she is delirious. Parents should text the team “larla seems to be is delirious and we are requesting a psych or whatever other service does these in that hospital) consult (psychiatry generally does these evals inpatient though in reality it’s a medical/neuro issue.)

if they say no, reply “are you saying she is not delirious or are you declining a consult for a delirious patient?”

This is terrible advice. This is not a psych issue.

I think your role in this situation is to be the friend who listens and not the friend who gives advice. If you want to do something helpful, buy your friend food or something.

They are asking my advice in this case. It's a close friend, but out of state.

It's so bad, the response from a worker was a blurb about peripheral neuropathy - copied and pasted from internet or I don't know. They showed it to me. As if that affects speech. .

I suggested they ask to speak with a neurologist. I pray this is temporary and can resolve. Hug your kids you all.

Why are they asking your advice, do you have a medical background?

They did not ask me how to treat, they asked me what to do as a parent when their child was basically in a 3-day coma and has been talking in gibberish a few days since regaining consciousness.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Is the parent not with their child 24/7? Can they not ask to speak with the doctor in charge?

Parents are divorced, each is there half the time but other parent is weird and won't collaborate or share information. Hospital is in NY too and said certain records cannot be disclosed due to child privacy laws for children ages 9+!!!! Can.you.imagine. having a child being treated for leukemia, or in ICU on a ventilator suddenly and hearing that? I think a doctor passing through is rare. This hospital seems like hell.

Call you lawyer is the co-parent is endangering the hospitalized daughter's life. Using a small girl's life and cancer suffering as a weapon against the ex is unconscionable!

[Anonymous]

ICU delirium. It's very common and not talked about by doctors very much. I'm so sorry. Hopefully it will resolved in a few days.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Sounds like she is delirious. Parents should text the team “larla seems to be is delirious and we are requesting a psych or whatever other service does these in that hospital) consult (psychiatry generally does these evals inpatient though in reality it’s a medical/neuro issue.)

if they say no, reply “are you saying she is not delirious or are you declining a consult for a delirious patient?”

This is terrible advice. This is not a psych issue.

I think your role in this situation is to be the friend who listens and not the friend who gives advice. If you want to do something helpful, buy your friend food or something.

They are asking my advice in this case. It's a close friend, but out of state.

It's so bad, the response from a worker was a blurb about peripheral neuropathy - copied and pasted from internet or I don't know. They showed it to me. As if that affects speech. .

I suggested they ask to speak with a neurologist. I pray this is temporary and can resolve. Hug your kids you all.

Why are they asking your advice, do you have a medical background?

They did not ask me how to treat, they asked me what to do as a parent when their child was basically in a 3-day coma and has been talking in gibberish a few days since regaining consciousness.

And your answer should be “that sounds so scary, I am so sorry. I’d ask the doctors and nurses what they think but I’m sure it’s temporary. Can I send you dinner tonight?”

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is the parent not with their child 24/7? Can they not ask to speak with the doctor in charge?

Parents are divorced, each is there half the time but other parent is weird and won't collaborate or share information. Hospital is in NY too and said certain records cannot be disclosed due to child privacy laws for children ages 9+!!!! Can.you.imagine. having a child being treated for leukemia, or in ICU on a ventilator suddenly and hearing that? I think a doctor passing through is rare. This hospital seems like hell.

Call you lawyer is the co-parent is endangering the hospitalized daughter's life. Using a small girl's life and cancer suffering as a weapon against the ex is unconscionable!

It sounds like the parents are unable to be in the same room (even if it means spending time with their possibly dying daughter) and refuse to speak even if it’s to share medical updates about their possibly dying daughter. I’d say the parents that the OP is friends with should be told, by the OP, that she should stay by her daughter’s bedside even if the ex doesn’t want her there. Unless there is a restraining order in place, it’s a free country, and both parents need to grow up and fast.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Sounds like she is delirious. Parents should text the team “larla seems to be is delirious and we are requesting a psych or whatever other service does these in that hospital) consult (psychiatry generally does these evals inpatient though in reality it’s a medical/neuro issue.)

if they say no, reply “are you saying she is not delirious or are you declining a consult for a delirious patient?”

This is terrible advice. This is not a psych issue.

I think your role in this situation is to be the friend who listens and not the friend who gives advice. If you want to do something helpful, buy your friend food or something.

They are asking my advice in this case. It's a close friend, but out of state.

It's so bad, the response from a worker was a blurb about peripheral neuropathy - copied and pasted from internet or I don't know. They showed it to me. As if that affects speech. .

I suggested they ask to speak with a neurologist. I pray this is temporary and can resolve. Hug your kids you all.

Why are they asking your advice, do you have a medical background?

They did not ask me how to treat, they asked me what to do as a parent when their child was basically in a 3-day coma and has been talking in gibberish a few days since regaining consciousness.

And your answer should be “that sounds so scary, I am so sorry. I’d ask the doctors and nurses what they think but I’m sure it’s temporary. Can I send you dinner tonight?”

Thats basically what I did say. Any other concerns maam?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is the parent not with their child 24/7? Can they not ask to speak with the doctor in charge?

Parents are divorced, each is there half the time but other parent is weird and won't collaborate or share information. Hospital is in NY too and said certain records cannot be disclosed due to child privacy laws for children ages 9+!!!! Can.you.imagine. having a child being treated for leukemia, or in ICU on a ventilator suddenly and hearing that? I think a doctor passing through is rare. This hospital seems like hell.

Call you lawyer is the co-parent is endangering the hospitalized daughter's life. Using a small girl's life and cancer suffering as a weapon against the ex is unconscionable!

I do believe the other parent has a personality disorder. Not sure if it's antisocial, borderline, both. It is possible children have been severely neglected for years. Like, mom not home till nighttime, a kid not in school for few years, CPS there a lot, etc. Sad situation before this situation. Poor child.

[Anonymous]

This is a nightmare situation. I would put pressure on the withholding parent with whatever I had (contact with in-laws, etc) and really go there and ask. Maybe with a lawyer.

[Anonymous]

Anonymous wrote:Why is the parent NOT WITH THEIR CHILD!!

OP already stated parents are divorced and do not have healthy communication. On top of seemingly poor hospital communication in a complex situation.

But my kids has been in the hospital several times and I always feel so badly for the kids on their own, but many parents cannot take endless leave and/or are in hourly work situations, have other kids at home, etc. Obviously this is a very serious situation, but many patients/kids or not don't have a full time guardian with them.

[Anonymous]

Anonymous wrote:Why is the parent NOT WITH THEIR CHILD!!

Stop judging. For all you know they have other kids, no family nearby, a job without sick days.

Is there any situation in which DCUM suspends scathing judgement!

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Sounds like she is delirious. Parents should text the team “larla seems to be is delirious and we are requesting a psych or whatever other service does these in that hospital) consult (psychiatry generally does these evals inpatient though in reality it’s a medical/neuro issue.)

if they say no, reply “are you saying she is not delirious or are you declining a consult for a delirious patient?”

This is terrible advice. This is not a psych issue.

I think your role in this situation is to be the friend who listens and not the friend who gives advice. If you want to do something helpful, buy your friend food or something.

They are asking my advice in this case. It's a close friend, but out of state.

It's so bad, the response from a worker was a blurb about peripheral neuropathy - copied and pasted from internet or I don't know. They showed it to me. As if that affects speech. .

I suggested they ask to speak with a neurologist. I pray this is temporary and can resolve. Hug your kids you all.

Why are they asking your advice, do you have a medical background?

They did not ask me how to treat, they asked me what to do as a parent when their child was basically in a 3-day coma and has been talking in gibberish a few days since regaining consciousness.

And your answer should be “that sounds so scary, I am so sorry. I’d ask the doctors and nurses what they think but I’m sure it’s temporary. Can I send you dinner tonight?”

Thats basically what I did say. Any other concerns maam?

I’m sorry, did I offend you with my advice?? What an aggressive answer. I was trying to be helpful since you literally asked. Have a good day.

[Anonymous]

I feel sorry for the child, but feel uncomfortable about the multiple posts on this public forum. I wouldn't want people discussing my family like this.

[Anonymous]

Anonymous wrote:I feel sorry for the child, but feel uncomfortable about the multiple posts on this public forum. I wouldn't want people discussing my family like this.

I suspect that is not the case. OP is discussing their family.

[Anonymous]

Anonymous wrote:I feel sorry for the child, but feel uncomfortable about the multiple posts on this public forum. I wouldn't want people discussing my family like this.

Agree. It’s a pretty identifiable situation. Cue OP saying “we aren’t in the DMV” but I actually might know who she is talking about, with some details changed, and her voyeurism and spreading this stuff about the kid and parents is crass. At best.

[Anonymous]

That can be completely normal coming off ventilation. It takes quiet a while for the brain to recover from that