Need a Dr House (diagnostician)!

[Anonymous]

There is a good POTS clinic at JHU. But not clear if this is POTS, but likely good at diagnosing what this is if not POTS. It is being seen more frequently since COVID. Has it had a holter monitor to look for arrhythmias? Wonder if you don’t have an accurate diagnosis of what caused the first (syncopal?) event and that is the reason? Did he get an echo to evaluate for a hole in his heart to evaluate for blood crossing between the chambers and having clots crossing and causing clots to his brain? If arrhythmia noted in holter monitor would want to a an electrophysiologist, Not clear if this is a post concussion syndrome. There are some people who have lingering symptoms and a very long recovery period.

[Anonymous]

Thanks these are all very helpful ideas! Many of these things have been ruled out, but the idea for PT for the proprioception issue is a good tip, and we do think it could be post concussion syndrome, but it just seemed like it should have improved by now. But we will explore some of these suggestions!

[Anonymous]

This is what ChatGPT suggested:

Given that symptoms are still present months later and affecting function, it is reasonable to seek a second opinion, especially with a neurologist who specializes in:

Vestibular neurology
Post-concussion syndrome / TBI
Autonomic dysfunction / dysautonomia
Also consider:

Neuro-otologist (inner ear/vestibular specialist)
Physical therapist with vestibular or neuro rehab training

[Anonymous]

Was there injury other than concussion? I know someone who had high blood pressure following an internal injury. Took months to get bad, raised BP over time. Don’t recall exact details.

[Anonymous]

Get a referral to someone at either Johns Hopkins in Baltimore (at their medical school site) or UVa main medical center in C'ville.