What is your diagnosis?

[Anonymous]

I'm relatively new here and just wondering what other diagnoses have brought people to this board. Us: global developmental delays (at least for now--not sure if this will shift with further medical testing).

[Anonymous]

Our diagnosis du jour is suspected metabolic disorder. We have been through so many.

[Anonymous]

One child with SPD, ADHD, LD and hypotonia
Another child with SPD, ADHD, apraxia of speech, hypotonia, developmental delays

[Anonymous]

We've got the Sensory Processing Disorder, Anxiety with a twist of Asperger's - woohoo!

[Anonymous]

Anonymous wrote:One child with SPD, ADHD, LD and hypotonia
Another child with SPD, ADHD, apraxia of speech, hypotonia, developmental delays

add us to the list. SPD, ADHD and LDs.
8 year old boy, fwiw.

[Anonymous]

HFA

[Anonymous]

Global delays - mixed expressive/receptive, SPD, motor delays. No diagnosis yet. Oh, and she's 4.5.

[Anonymous]

Prader Willi syndrome, epilepsy, hypotonia, dyspraxia

[Anonymous]

SPD and Aspergers

[Anonymous]

ADHD and ADHD +AS

[Anonymous]

rare chromosome disorder (unnamed), hypotonia, epilepsy, hearing loss, eating disorder, movement disorder, global developmental delays

[Anonymous]

It's interestig that in some areas, medical and education professionals provide a list of diagnoses without helping parents understand what the combination of all those diagnoses can mean. For example, some give diagnoses of ADHD, anxiety disorder, sensory processing disorder, receptive/expressive language disorder, dysgraphia or fine-motor delay, and social-communication weaknesses instead of giving a diagnosis of autism spectrum disorder. It keeps some kids from getting the services they need.

[Anonymous]

OP here. It's also interesting that in this short list there's never just one issue and that dx is subject is change or can't be named at all. I keep thinking if we could get a more specific dx we would have an easier time figuring out the therapy.

[Anonymous]

Anonymous wrote:It's interestig that in some areas, medical and education professionals provide a list of diagnoses without helping parents understand what the combination of all those diagnoses can mean. For example, some give diagnoses of ADHD, anxiety disorder, sensory processing disorder, receptive/expressive language disorder, dysgraphia or fine-motor delay, and social-communication weaknesses instead of giving a diagnosis of autism spectrum disorder. It keeps some kids from getting the services they need.

But it's not always ASD. Two of my kids pretty much have the entire list above but are nowhere near the ASD. It's not just my opinion or the dev ped's opinion, NIH and KKI have also ruled it out definitively. One of the key differences is they have good social intent - but the delays associated with the ADHD and executive functioning negatively impact their social interactions.

[Anonymous]

sensory food aversion and some sensory issues. I wonder if we will get another diagnosis down the road regarding attention, but we are a tad early for that (or if he has an attention issue, it has yet to manifest in a major way because it is simply a lingering question in my mind and not something any of our experts has identified).