Acronyms used in this Forum

Anonymous
This is a list of the acryonyms that we use on the Special Needs Forum:

AAC = augmentative and alternative communication
ABA = Applied Behavioral Analysis (Lovaas Method of treating autism)
ABA=Applied Behavioral Therapy
ACM = Anti-convulsant medication
ADA = Americans with Disabilities Act
ADHD = Attention Deficit Hyperactivity Disorder
ADL = Activities of daily life
ADOS = Autism Diagnostic Observation Scale
AED = Anti-epileptic drug
AFO’s = Ankle Foot Orthoses (foot braces)
AIT = Auditory Integration Training
AS= Asperger's Syndrome
ASD = Autism Spectrum Disorder
ASL = American Sign Language
AT = Assistive Technology
BIP = Behavior Improvement Plan
Botox = Botulinum Toxin, a therapy for cerebral palsy
Button = Site of feeding tube
CAN/DAN = Cure Autism Now/Defeat Autism Now
CD = Cognitive Disability
CIP = Change in Placement
CNMC = Childrens National Medical Center
CP = Cerebral Palsy
DAFOs = Dynamic Ankle Foot Orthoses (foot braces)
DBS = Deep Brain Stimulation
DD = Developmental Disabilities
DIR = Developmental, Individual Differences, Relationship-based (also called "Floortime", this is the late Dr. Stanley Greenspan's approach to treating autism)
DS = Down Syndrome
DSM-IV/DSM-V = Diagnostic and Statistical Manual of Mental Disorders, Version 4/5
DTT = Discrete Trial Training
ED = Eating Disorder
ED = Emotionally Disturbed
EEG = Electroencephelogram
EI = Early Intervention
ESY = Extended School Year
FAPE = Free and Appropriate Public Education
FBA = Functional Behavior Analysis
FERPA = Family Educational Rights and Privacy Act
FTT = Failure to Thrive
G-tube = Gastric Feeding Tube
GE = General Education
GF/CF = Gluten Free/Casein Free
GI = Gastrointestinal
HBOT = Hyperbaric Oxygen Therapy
HFA = High Functioning Autism
HIPAA = Health Insurance Portability and Accountability Act
IDEA = Individuals with Disabilities Act
IEP - Individualized Education Plan
IFSP - Individualized Family Service Plan
JH = Johns Hopkins
KD = Ketogenic Diet
KKI = Kennedy Krieger Institute
LD = Learning Disability
LRE = Least Restrictive Environment
Mickey or Mic-key = a type of feeding tube
Mito = Mitochondrial
MMR = Measles, Mumps and Rubella
MR = Mentally Retarded
MRI = Magnetic resonance imaging
NG-Tube = Nasogastric feeding tube
NICU = Neonatal Intensive Care Unit
NIH = National Institutes of Health
NIMH = National Institutes for Mental Health
NT - Neurotypical
NV = Non-verbal
OCD = Obsessive Compulsive Disorder
ODD = Oppositional Defiant Disorder
OHI = Other Health Impaired
OSSE = Office of the State Superintendent of Education
OT = Occupational Therapist /therapy
PANDAS = Pediatric Autoimmune Disorders Associated with Strep
PDD-NOS= Pervasive Developmental Disorder -Not Otherwise Specified
PECS = Picture Exchange Communication System
PEG-tube = Percutaneous Endoscopic Gastrotomy Tube, a feeding tube
PEP = Preschool Education Program, Montgomery County
PT = Physical Therapist /therapy
RBS-R = Repetitive Behavior Scale, Revised
RDI = Relationship Development Intervention
Rett’s = Rett Syndrome
SC = Self-care
SI = Sensory Integration
SIB = Self-Injurious Behavior
SLP = Speech Language Pathologist
Snip or SNP Test = Single Nucleotide Polymorphism – a form of chromosomal testing
SPD= Sensory Processing Disorder
SPED = Special Education
SSRI - Selective Serotonin Reuptake Inhibitor
ST = Speech therapist/therapy
Stimming = “self-stimulation” -- repetitive body movement to stimulate the senses
TBI = Traumatic Brain Injury
TEACCH = Treatment and Education of Autistic and Related Communication- Handicapped Children
TOM = Theory of Mind
TS = Tourette's Syndrome
VB = Verbal Behavior
Anonymous
MERLD = Mixed expressive/receptive learning disorder
Anonymous
dx=diagnosis
Anonymous
What is SN?
Anonymous
Anonymous wrote:What is SN?


Look at the title of the forum "Special Needs Kids"
Anonymous
Anonymous wrote:This is a list of the acryonyms that we use on the Special Needs Forum:

I would like to add a couple of acronyms and do not know how to do it:
EDS - Ehler's Danlos Syndrome, a hereditary genetic disorder characterized by hypotonia (low muscle tone), hypermobility, joint dislocations, chronic pain etc
504 - a different form of an IEP provided primarily for those with physical disabilities who require acommodations, not in school services like PT or SLP or OT

to whomever has the power to edit this list, would you mind adding these? I would like all the parents of EDS kids in the local area to join this group. One of them right now is being told that her EDS child who also has LDs cannot go to a charter school unless she drops her lawsuit against DcPS - he has been accepted to both Latin and the Lab school,
Anonymous
Anonymous wrote:
Anonymous wrote:This is a list of the acryonyms that we use on the Special Needs Forum:


504 - a different form of an IEP provided primarily for those with physical disabilities who require acommodations, not in school services like PT or SLP or OT



Your definition for 504 is not correct. 504 is for general education students. IEPs are for special education students. The two systems are from different federal laws and come with different rights and processes. For accurate information about 504, I'd suggest you start here: http://www2.ed.gov/about/offices/list/ocr/504faq.html
Anonymous
What does PAC stand for?
Anonymous
IP for now adult (22+) children w/ SN who qualify for services.
cjjaffe
Member Offline
The term "mental retardation" has been replaced in federal statutes with the term "intellectual disability" per Congress's passage of Rosa's law in 2010 due to its negative connotation. Even though much of the general public is not aware of this change, those who have a child with special needs certainly are. Therefore, I am requesting that the code "MR" for "Mentally Retarded" be changed to "ID" for "Intellectually Disabled".
Anonymous
Anonymous wrote:What does PAC stand for?


Political Action Committee. Usually lobbies Congress, promises votes, funds, etc.

Anonymous
cjjaffe wrote:The term "mental retardation" has been replaced in federal statutes with the term "intellectual disability" per Congress's passage of Rosa's law in 2010 due to its negative connotation. Even though much of the general public is not aware of this change, those who have a child with special needs certainly are. Therefore, I am requesting that the code "MR" for "Mentally Retarded" be changed to "ID" for "Intellectually Disabled".


Interesting issue. I always find that it's tough to balance the individual and Congressionally granted rights and responsibilities against those needs of the people within the forums still only familiar with the colloquialisms of the day. One thing that I would note is that Intellectually Disabled is a nebulous phrase, one that could apply to a host of disabilities. The ease with which MR is understood by the casual observers and commenters of the forum (never mind the parents who need help) is also an argument in its favor. What we get, then, is the question: How normative do we want our terms to be? And is it worse for those who will likely not read the forum to have the help they need, or to be referred to in a less accurate, but clearly more dignified manner. Even the removal of terms like "idiot," "imbecile," and others once referred to a specific range of IQ, one that might even be more helpful to this forum because of the ease with which those who have loved ones with those disorders can separate and associate together, sharing the information and discussing the common experiences that bind them together because of the ranges themselves.

So at the end of the day, which is it? Accuracy and ease of identification or normative standards for language and its referents.
Anonymous
The reason that people continue to use terms such as "mental retardation" is that they have not been educated regarding the importance of using the appropriate terminology. When the term "mental retardation" replaced the term "feeble minded", I would think that it probably took some time to educate people regarding the fact that "feeble minded" should be replaced with "mental retardation", just as it will take people some time for people to understand that "intellectual disability" should replace "mental retardation". Once upon a time, very derogatory terms were used to describe other marginalized groups such as ethnic minorities and homosexuals. It was only through education that people came to learn that these terms were not only offensive but continued to perpetuate negative stereotypes.

In addition, "intellectual disability"y refers to limitations with respect to memory and cognition, just as "mental retardation" did. They both refer to the same group of individuals - it is just that the latter is offensive while the former is not. Furthermore, just because somebody is familiar with a colloquialism does not mean that it is polite to use it. There are plenty of colloquialisms with which I am familiar but which I would never use because they are offensive. If young children are being taught the appropriate language to use to refer to individuals who have cognitive limitations (which they are teaching in elementary schools, middle schools, and high schools), then I think that it is not unreasonable to expect that most adults would be familiar with the term, even if they have not yet started to use it.

In addition, the term intellectual disability is more than just a Congressionally granted right and responsibility. Indeed major medical journals and websites and print materials for medical facilities and institutes of higher learning have changed terminology to refer to "intellectual disabilities" rather than "mental retardation".

he bottom line is that it's not alright to use offensive terminology because some people may not be familiar with the less offensive wording. Rather, it provides people with permission to continue to perpetuate negative stereotypes.
Anonymous
Anonymous wrote:The reason that people continue to use terms such as "mental retardation" is that they have not been educated regarding the importance of using the appropriate terminology. When the term "mental retardation" replaced the term "feeble minded", I would think that it probably took some time to educate people regarding the fact that "feeble minded" should be replaced with "mental retardation", just as it will take people some time for people to understand that "intellectual disability" should replace "mental retardation". Once upon a time, very derogatory terms were used to describe other marginalized groups such as ethnic minorities and homosexuals. It was only through education that people came to learn that these terms were not only offensive but continued to perpetuate negative stereotypes.

In addition, "intellectual disability"y refers to limitations with respect to memory and cognition, just as "mental retardation" did. They both refer to the same group of individuals - it is just that the latter is offensive while the former is not. Furthermore, just because somebody is familiar with a colloquialism does not mean that it is polite to use it. There are plenty of colloquialisms with which I am familiar but which I would never use because they are offensive. If young children are being taught the appropriate language to use to refer to individuals who have cognitive limitations (which they are teaching in elementary schools, middle schools, and high schools), then I think that it is not unreasonable to expect that most adults would be familiar with the term, even if they have not yet started to use it.

In addition, the term intellectual disability is more than just a Congressionally granted right and responsibility. Indeed major medical journals and websites and print materials for medical facilities and institutes of higher learning have changed terminology to refer to "intellectual disabilities" rather than "mental retardation".

he bottom line is that it's not alright to use offensive terminology because some people may not be familiar with the less offensive wording. Rather, it provides people with permission to continue to perpetuate negative stereotypes.


I definitely agree with the normative aspect of what you're saying. I believe that in the above quote (I'm the one responding to the OP here) I said the term was offensive. My question was, as a message board, do we want ease of use in our terminology? IOW, what are the ends we seek here? I think that intellectual disability is a misnomer too quickly adopted by both Congress and the journals you speak of out of fear of looking insensitive. Most special needs on here are "intellectual disabilities," at least as one commonly understands the word. Which brings me to my point: I prefer to think of the use of MR as a balancing test, much like the balancing tests they use in case law. It pits the utile, traditional, easily understood terminology and its effects on the board and its readers against the normative element and sensitivity of said readers.

I was merely just pointing this out. I think DCUM has done well to resist the normative aspect of its acronyms and instead has provided the reader and user with a clearer, more traditional term.
Anonymous
What does "2E" mean?
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