How much time do you spend thinking about what your kid would be like without his/her disability?

[Anonymous]

Anonymous wrote:When my child was very little, yes. I set goals in my head "By age 5, Larla will walk." Now that she's older, disability is an innate part of her. A child with a lifelong disability is so affected by it there is no way that you can simply 'edit' away the disability.

Same for me. My kid is who she is because of her disabilities. I wish she didn't have these challenges -- they break my heart every day -- but I cannot imagine the person she would be without them.

[Anonymous]

No. But my dd’s deficits are pretty mild. She has a vision issue that cannot be corrected. And she has a learning disability. But whenever my mind goes to the what if’s I feel guilty because things could be worse. I feel like I should be thankful for what she can do and just stop.