Feeling sad and sick to my stomach.
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Anonymous
Then, maybe you can recommend someone who is really good with ADHD, receptive language issues and behavioral challenges at a reasonable cost? |
Anonymous
Op here - I've actually been thinking of going to the camatras for this exact reason. It's a difficult profile and I think they are the experts in this. Thank you. |
Anonymous
Mindwell in Virginia. Or go to KKI. |
Anonymous
Go, just for the opinion. I think our insurance covered ours as we never got a bill so it was the cost of the trip. Nashville is a fun few day trip. He's good at teasing out what is what. At a minimum, schedule an appointment and you can always cancel. It takes months to get an appointment and they go on the college calendar so if you want to do it, you need to do it now for this school year. He's very warm and friendly in person and almost all kids warm up to him quickly. |
Anonymous
| Would you go to Mary or to dr. Camatra? |
Anonymous
Try to get into who ever would see you first. I'd probably pick him only because you are having more complex concerns. |
Anonymous
| OP, there is also a parent, maybe they will come by, who has recommended studies at NIH. I looked for some and couldn't find any to match my child but that might be an option too. They spoke really highly of them. |
Anonymous
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PP here. For God's sake, OP. I thought you'd already seen a developmental pediatrician. Your kid isn't as unique as you think. Go to Children's or KKI. Dancing around the issue isn't going to help him or you. It sounds like you're putting it off b/c you're trying to avoid a diagnosis.
In the end, it's the pretty much the same therapies--OT, ST, social skills groups, maybe meds. You will get a thorough evaluation at KKI or Children's for either a neuropsych or developmental pediatrician. |
Anonymous
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I replied upthread, but there is nothing in your post that sounds out of the ordinary to me at all. The child sounds like every 5 yo with ADHD I know.
The Nashville people may be great, but I think any developmental pediatrician will be unphased by this. |
Anonymous
| It really depends on how bad his language delay is. It does not sound very bad from what you wrote. I thought Dr. Camatra sees mostly nonverbal children who has MERLD. |
Anonymous
Did you even read her post? They have an ADHD diagnosis. |
Anonymous
I did but I wonder how long ago that she saw a developmental pediatrician. I don't understand the hemming and hawing about additional testing. She wants "affordable" then go with insurance through KKI or Childrens. |
Anonymous
No, nonverbal and Merld are separate issues. He does a mix of kids. Many people go because of late talking and expressive and/or receptive issues. Some go to tease out autism vs language disorder. He is very blunt and direct. He will tell you if he thinks it's autism. Most go to confirm their child is getting the right services with the right providers, support for IEP as they spend a lot of time talking to parents about parenting, behavior, school issues and more. A good two hours was spent with us just talking. No other provider we have had will sit down and just say what are your concerns and how can I help? Then, take the time to anwser, suggest and give advice. You can ask him anything and he will talk it through and guide you. He spent about 6 hours with us and took his time. He is very good at the non-verbal iq test and language tests as well as others. He has a great way of getting kids to cooperate. One of OP concerns is IQ. He sounds like he's on track and doing well from her post so the cognitive comments she got sound like they are her big concern. Most delveopmental peds don't do extensive testing. Dr Camarata will. She is also concerned about lingering receptive issues. Often kids start testing ok in it but have lingering issues. Most learn to cope as they get older. Receptive language is tricky as kids learn strategies to deal with it and often hide it well. Most people are not ok with kids not responding or frequently telling you "I do not know." They heavily screen on the phone and do not take all families. It's not what folks think it is who are slamming it here. The child is young so speech therapy with the right provider can help. He can figure out if it's stil an issue for this child. Most professionals stop help and services when kids test at below average. They say that is great and kids are caught up when in reality they still need support. Receptive language also can look similar to autism, and it can look like Autism very early on. However, OP concern is cognitive and ADHD, not Autism. He is good for a one time consult to get you on track as a parent which is why many of go. There are negatives too. Reports are hit or miss as he does not write them. He is terrible at follow up as he's too busy and pulled in many directions. OP best bet is to try to get the ADHD medicated, but that takes a talented doctor who knows medications. How about recommending a someone to help with medication. |
Anonymous
Her post is very unclear. It sounds like they are under some kind of care for the ADHD. They are doing a trial of medications for that. Anything they have been experiencing can potentially be explained by ADHD. But she is really worried about her son has cognitive issues. |
Anonymous
There are some great developmental peds but often they are generalists. They can do general language disorders but when kids start testing to below average they say no more services needed. Not all insurance pays. Ours only pays for limited things. So for us, it was under $1000 in travel. I think our insurance paid as we never got a bill. If we drove it would have been much cheaper. Plus, Nashville was fun. Private pay here is $3000-5000 for a similar evaluation. From the posts here, they often use student testers who may or may not be skilled with young kids. The Camaratas connect very well with younger kids. Many slow to warm up kids take to them instantly. |