| Ugh that made me cry in public. So devastating. A child in my family had a rare leukemia and was given a small chance of survival but is 7 years out and a survivor all because of CAR-T immunotherapy and a bone marrow transplant. |
I know the feeling. My own cancer diagnosis has been devastating for my family and friends. I have spent most of my time reassuring them. What can you do? Even telling people you are ok does not reassure them because you physically look so ill, aged, gaunt, different, diminished - without hair, eyebrows, eyelashes, discoloration of skin, muscle loss - even when you are having a good day. - NP
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While it's kind of you (and her) to care, I suppose, I hope you'll focus on living an squeezing the joy out of every day you'll have. |
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“During the latest clinical trial, my doctor told me that he could keep me alive for a year, maybe. My first thought was that my kids, whose faces live permanently on the inside of my eyelids, wouldn’t remember me. My son might have a few memories, but he’ll probably start confusing them with pictures he sees or stories he hears. I didn’t ever really get to take care of my daughter—I couldn’t change her diaper or give her a bath or feed her, all because of the risk of infection after my transplants. I was gone for almost half of her first year of life. I don’t know who, really, she thinks I am, and whether she will feel or remember, when I am gone, that I am her mother.”
This is just so sad. |
| How sad. The Kennedy family has been given more tragedy than anyone should have to bear. |
| She’s also fighting for her children to have access to educated quality healthcare. She is leaving a legacy with her voice. |
+1. This. She’ll likely be dead within the year and her husband is a doctor who sees the problems with American health care every day. She’s raising her voice to help others so they don’t die of terrible diseases due to all these government research cuts and bad health care policy. |
| Wow, devastating. Her essay is beautiful and extremely sad. I’m so sorry she and her family have had to bear this tragedy on top of everything else. I am not religious, but will hope to hear of a miracle that can save her. Her words and her work will live on. |
| Well that made me cry. She is such an amazing writer. I wish her and her family strength. |
| This is terrible. |
| I know so many young adults with devastating cancers. We have done something awful to ourselves. |
Sorry, did not mean to hijack the thread. As a cancer patient, I was lucky to get selected for the trial of a new therapy. The first thing I asked was if this trial had federal funding. If it was federally funded, I would have looked elsewhere. This administration has indeed hastened the downfall of US. Anyhow, a few years and Tatiana, Trump and Robert Kennedy will all die. Someone new will be in power. In the meanwhile, other countries will continue to find new medical treatments and inventions and become leaders in pharma, biotech etc. What an immense blow to the medical industry served by a man whose brain has been eaten by a worm. |
| This made me cry too. Devastated for her family. Hope she gets a miracle treatment. |
| Welp I am gutted |
| This is just such devastating news. When she wrote about her daughter especially - I can’t even imagine what she is going through. What Caroline must be going through as she yet again will have to go through the death of an immediate family member. |