Dyspraxia

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Yes it's very possible either that it was missed, was not apparent enough at a younger age, or that the evaluator doesn't use it.

I just had a well respected neuropsych tell me that he doesn't use "x" dx even though it's in the DSM and has never dx'ed it. He said he thinks the sx are better explained by other dx'es.

so get an eval from another dr who may have a different approach

Why diagnosis shop?

Maybe they actually want to help their child?

Yeah but just because there’s a diagnosis in the DSM doesn’t mean that a clinician has to use it or that there is any benefit to it. SCD was basically invented for the DSM when they got rid of PDD-NOS. But very few clinicians use it, there are not specific therapies for it, and there are not well established clinical instruments to diagnose it. It was a category created in the DSM, not some kind of newly discovered virus that you need to get your kid tested for.

Dyspraxia is also an example of this. My kid had OT and PT testing that showed he has poor motor skills and poor motor planning. That’s clear to everyone. He did get a clinical dyspraxia dx eventually but it was totally unnecessary because the challenges are obvious. If there was some kind of special therapy for “dyspraxia” of course I would feel differently.

Now if you were getting a full battery of testing of your kid and for some reason they skipped the fine motor and motor planning tests then yeah, that’s something to ask about.

My (now) adult son clearly has fine and gross motor skill differences. He was denied helpmeith handwriting when he was a student in MCPS. He was also mocked in a classroom infront of his peers by a teacher who told him his work looked like he wrote it with his feet. Perhaps a correct diagnosis would have helped but the testing center we paid $5000 for didn't notate it.

[Anonymous]

Anonymous wrote:I don't know that there is any need to get a dyspraxia dx if you have an autism dx. Most children with autism have symptoms of dyspraxia. The providers you are already connected with will be familiar with that profile.

If you feel like your child is not getting the motor-related services he needs, it could be worth repeating the neuropsych to see what supports could be most helpful and to understand your child better. DS had a neuropsych at 5 and she recommended he come back at 8 and then again around 11 or 12.

Finally- dyspraxia is not really in a neuropysch's wheelhouse from a diagnosis standpoint. A PM&R doctor or neurologist would generally be the ones to dx dyspraxia.

Honestly recommending a child.wwit three very important developmental years before correcting a missed diagnosis (and paying hundreds to thousands of dollars to do so) isn't particularly helpful.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I don't know that there is any need to get a dyspraxia dx if you have an autism dx. Most children with autism have symptoms of dyspraxia. The providers you are already connected with will be familiar with that profile.

If you feel like your child is not getting the motor-related services he needs, it could be worth repeating the neuropsych to see what supports could be most helpful and to understand your child better. DS had a neuropsych at 5 and she recommended he come back at 8 and then again around 11 or 12.

Finally- dyspraxia is not really in a neuropysch's wheelhouse from a diagnosis standpoint. A PM&R doctor or neurologist would generally be the ones to dx dyspraxia.

Honestly recommending a child.wwit three very important developmental years before correcting a missed diagnosis (and paying hundreds to thousands of dollars to do so) isn't particularly helpful.

I am not recommending they wait- I'm saying I thought it was typical to repeat the neuropsych every few years in childhood/adolescence and the OP has already waited 8 years. I think that alone is reason to repeat the neuropsych. I'm sure the child's needs and nuances of his condition have changed. I'm just saying the dyspraxia label is not the key thing here.

[Anonymous]

Can dyspraxia exist without autism?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't know that there is any need to get a dyspraxia dx if you have an autism dx. Most children with autism have symptoms of dyspraxia. The providers you are already connected with will be familiar with that profile.

If you feel like your child is not getting the motor-related services he needs, it could be worth repeating the neuropsych to see what supports could be most helpful and to understand your child better. DS had a neuropsych at 5 and she recommended he come back at 8 and then again around 11 or 12.

Finally- dyspraxia is not really in a neuropysch's wheelhouse from a diagnosis standpoint. A PM&R doctor or neurologist would generally be the ones to dx dyspraxia.

Honestly recommending a child.wwit three very important developmental years before correcting a missed diagnosis (and paying hundreds to thousands of dollars to do so) isn't particularly helpful.

I am not recommending they wait- I'm saying I thought it was typical to repeat the neuropsych every few years in childhood/adolescence and the OP has already waited 8 years. I think that alone is reason to repeat the neuropsych. I'm sure the child's needs and nuances of his condition have changed. I'm just saying the dyspraxia label is not the key thing here.

I dont know anyone who repeated the neuropsych. Ontop of the cost, I wouldn't put my kid through it every few years? Absolutely not

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't know that there is any need to get a dyspraxia dx if you have an autism dx. Most children with autism have symptoms of dyspraxia. The providers you are already connected with will be familiar with that profile.

If you feel like your child is not getting the motor-related services he needs, it could be worth repeating the neuropsych to see what supports could be most helpful and to understand your child better. DS had a neuropsych at 5 and she recommended he come back at 8 and then again around 11 or 12.

Finally- dyspraxia is not really in a neuropysch's wheelhouse from a diagnosis standpoint. A PM&R doctor or neurologist would generally be the ones to dx dyspraxia.

Honestly recommending a child.wwit three very important developmental years before correcting a missed diagnosis (and paying hundreds to thousands of dollars to do so) isn't particularly helpful.

I am not recommending they wait- I'm saying I thought it was typical to repeat the neuropsych every few years in childhood/adolescence and the OP has already waited 8 years. I think that alone is reason to repeat the neuropsych. I'm sure the child's needs and nuances of his condition have changed. I'm just saying the dyspraxia label is not the key thing here.

I dont know anyone who repeated the neuropsych. Ontop of the cost, I wouldn't put my kid through it every few years? Absolutely not

That is surprising to me, because where I live, the guidance (from schools and providers) is to do them in Elem, right before MS, and right before HS, or every few years. I guess if the kid is thriving and getting straight As and has zero issues, you don't need to repeat anything. Since DS got one relatively young (at 5 yo), it was much shorter (only half a day) and he is still in those early years where his development can change so much. For us, it is covered by insurance. Also, the school does not repeat the tests conducted in the neuropsych, so it means DS has less in school re-eval testing (he was in K last year, which is the last year for the YCWDD category in our state). He hates getting observed or pulled out in front of his peers so preferred doing the testing at a center.

[Anonymous]

We have had to redo our son’s psychoeducational testing (dyslexia diagnosis) every three years to keep accommodations current. That became required if my son wanted his accommodations for AP tests and SATs, and he’ll need a relatively recent test for college. So yes, you get many over the course of a childhood. They are expensive and it’s not fair or equitable.

[Anonymous]

Anonymous wrote:We have had to redo our son’s psychoeducational testing (dyslexia diagnosis) every three years to keep accommodations current. That became required if my son wanted his accommodations for AP tests and SATs, and he’ll need a relatively recent test for college. So yes, you get many over the course of a childhood. They are expensive and it’s not fair or equitable.

We never needed this. Both ASD sons had neuropsychs in elementary school and were given accommodations for ap and sat without retesting.

[Anonymous]

Anonymous wrote:We have had to redo our son’s psychoeducational testing (dyslexia diagnosis) every three years to keep accommodations current. That became required if my son wanted his accommodations for AP tests and SATs, and he’ll need a relatively recent test for college. So yes, you get many over the course of a childhood. They are expensive and it’s not fair or equitable.

U less it was before 3rd grade it wasn't required.

"All information should be current.
Because disabilities change over time, documentation should be up to date. For learning disorders, the educational evaluation and testing should be no more than five years old. Cognitive testing may be older than five years, but testing performed before third grade may not provide a valid indication of the student’s current ability."

Ours were past 5 years old because autism doesn't go away. Neither does adhd.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Dyspraxia can present in different ways. My kid has minimal physical issues other than just generally being not athletic and uncoordinated, but has extreme difficulty with mental organization in writing and things like telling stories. Our evaluating Dr has told us many times that there is a lot of overlap in this type of symptom and autism, so i could see how someone could misdiagnose one for the other if the testing wasn’t great or comprehensive.

Why haven’t you had a a reevaluation for 8 years?

That’s not dyspraxia. Dyspraxia is a physical condition.

Also constant reevaluation is not necessary.

It’s not purely physical. My DD has the (classic)physical symptoms of dyspraxia - but it also impacts sequencing in terms of doing word problems, multi-step tasks (needs to be broken down into smaller parts), following more complicated instructions, etc. it’s definitely a parallel to the physical impact.

That is not part of the DSM diagnosis.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I don't know that there is any need to get a dyspraxia dx if you have an autism dx. Most children with autism have symptoms of dyspraxia. The providers you are already connected with will be familiar with that profile.

If you feel like your child is not getting the motor-related services he needs, it could be worth repeating the neuropsych to see what supports could be most helpful and to understand your child better. DS had a neuropsych at 5 and she recommended he come back at 8 and then again around 11 or 12.

Finally- dyspraxia is not really in a neuropysch's wheelhouse from a diagnosis standpoint. A PM&R doctor or neurologist would generally be the ones to dx dyspraxia.

Honestly recommending a child.wwit three very important developmental years before correcting a missed diagnosis (and paying hundreds to thousands of dollars to do so) isn't particularly helpful.

It’s not really a “missed diagnosis.” That’s the point.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't know that there is any need to get a dyspraxia dx if you have an autism dx. Most children with autism have symptoms of dyspraxia. The providers you are already connected with will be familiar with that profile.

If you feel like your child is not getting the motor-related services he needs, it could be worth repeating the neuropsych to see what supports could be most helpful and to understand your child better. DS had a neuropsych at 5 and she recommended he come back at 8 and then again around 11 or 12.

Finally- dyspraxia is not really in a neuropysch's wheelhouse from a diagnosis standpoint. A PM&R doctor or neurologist would generally be the ones to dx dyspraxia.

Honestly recommending a child.wwit three very important developmental years before correcting a missed diagnosis (and paying hundreds to thousands of dollars to do so) isn't particularly helpful.

I am not recommending they wait- I'm saying I thought it was typical to repeat the neuropsych every few years in childhood/adolescence and the OP has already waited 8 years. I think that alone is reason to repeat the neuropsych. I'm sure the child's needs and nuances of his condition have changed. I'm just saying the dyspraxia label is not the key thing here.

I dont know anyone who repeated the neuropsych. Ontop of the cost, I wouldn't put my kid through it every few years? Absolutely not

That is surprising to me, because where I live, the guidance (from schools and providers) is to do them in Elem, right before MS, and right before HS, or every few years. I guess if the kid is thriving and getting straight As and has zero issues, you don't need to repeat anything. Since DS got one relatively young (at 5 yo), it was much shorter (only half a day) and he is still in those early years where his development can change so much. For us, it is covered by insurance. Also, the school does not repeat the tests conducted in the neuropsych, so it means DS has less in school re-eval testing (he was in K last year, which is the last year for the YCWDD category in our state). He hates getting observed or pulled out in front of his peers so preferred doing the testing at a center.

Sure they are happy to take your money to repeat testing.

[Anonymous]

Anonymous wrote:

Anonymous wrote:We have had to redo our son’s psychoeducational testing (dyslexia diagnosis) every three years to keep accommodations current. That became required if my son wanted his accommodations for AP tests and SATs, and he’ll need a relatively recent test for college. So yes, you get many over the course of a childhood. They are expensive and it’s not fair or equitable.

U less it was before 3rd grade it wasn't required.

"All information should be current.
Because disabilities change over time, documentation should be up to date. For learning disorders, the educational evaluation and testing should be no more than five years old. Cognitive testing may be older than five years, but testing performed before third grade may not provide a valid indication of the student’s current ability."

Ours were past 5 years old because autism doesn't go away. Neither does adhd.

Exactly. repeat neuropsychological testing is only really indicated if someone has a degenerative condition or some factor where they may get better or worse, impacted by medication, etc. not run of the mill autism. That said and relevant to this thread, several of the tests in my child’s neuropsych were very low due to motor skills issues - but the testing was more than was needed anyway so I don’t really feel the need to repeat. If there was an objective test for ADHD I might do it but otherwise no real need.

[Anonymous]

Anonymous wrote:Can dyspraxia exist without autism?

Yes! DS has it. It presented as childhood apraxia of speech but he had global coordination issues so dyspraxia is often used interchangeably. We started with speech, a developmental pediatrician and OT at age 2. We also saw a neurologist whose main contribution was to do genetic testing (no findings). In his case, no expert saw any symptoms of autism. His lack of motor coordination presented as falling a lot, not able to jump, not able to cross legs, unable to follow simple instructions. He did intensive speech and years and years of OT. Both were life changing. Nobody would know today unless you gave him a completely novel motor task. The OT broke down motor plans and taught us to do the same. We then taught each component by putting his body through the movement hundreds of times. We worked with him every single day. He more than beat the pessimistic prognosis the neurologist provided. I am forever grateful to our OT. She saw him from 2-9.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Dyspraxia can present in different ways. My kid has minimal physical issues other than just generally being not athletic and uncoordinated, but has extreme difficulty with mental organization in writing and things like telling stories. Our evaluating Dr has told us many times that there is a lot of overlap in this type of symptom and autism, so i could see how someone could misdiagnose one for the other if the testing wasn’t great or comprehensive.

Why haven’t you had a a reevaluation for 8 years?

That’s not dyspraxia. Dyspraxia is a physical condition.

Also constant reevaluation is not necessary.

It’s not purely physical. My DD has the (classic)physical symptoms of dyspraxia - but it also impacts sequencing in terms of doing word problems, multi-step tasks (needs to be broken down into smaller parts), following more complicated instructions, etc. it’s definitely a parallel to the physical impact.

That is not part of the DSM diagnosis.

I dont find any studies that show it is or isnt related. Amazing the garbage they waste funding on
My dyspraxia son absolutely has problems with figuring out the steps and getting overwhelmed as described by the pp.