do ENTs ever not recommend revising a tie?

[Anonymous]

Our ENT recommended against revision for . My baby never ever slept (still doesn’t) but no classic symptoms like mouth breathing, bad latch, etc. We did not revise.

My husband has an extremely bad tongue tie and I think it’s caused his sleep apnea in adulthood.

[Anonymous]

Our ENT recommended clipping it, but only because we were already going to do ear tube surgery to correct a hearing issue. Might as well get it all done at once while the kid was under anesthesia. Otherwise he would not have done it. Our kid was an older infant at the time (10 months), and he said that clipping it without anesthesia could be traumatic for children after the newborn stage.

[Anonymous]

Dr. Pham did not recommend revision for my son.

[Anonymous]

We had an upper lip tie. My babies were gaining weight, but it made breastfeeding painful the first few weeks. We didn’t get all 3 kids tongue ties snipped.

When each kid was about 1.5 years old, they fell down and the upper lip ties ripped open. We knew it had happened because there was blood and immediately the next day the front teeth pushed together.

These ties aren’t normal. They’re caused by too much folic acid in our prenatal vitamins.

[Anonymous]

We also saw Dr. Pham. She did not recommend revision for our oldest. Our second's was much more obvious and she did recommend revision but I felt more comfortable knowing that she wasn't the type to recommend it for everyone.

[Anonymous]

Anonymous wrote:We had an upper lip tie. My babies were gaining weight, but it made breastfeeding painful the first few weeks. We didn’t get all 3 kids tongue ties snipped.

When each kid was about 1.5 years old, they fell down and the upper lip ties ripped open. We knew it had happened because there was blood and immediately the next day the front teeth pushed together.

These ties aren’t normal. They’re caused by too much folic acid in our prenatal vitamins.

Whoah. Is this a thing? Never heard of this. Interesting.

[Anonymous]

Ok I just spent a few minutes researching and found the study that hypothesized the link between ankyloglossia and folic acid supplementation as well as a useful meta study that included the above study: https://pubmed.ncbi.nlm.nih.gov/37922258/

I think it’s correlation not causation. Women who are more likely to breastfeed and be even aware of the concept of a tongue tie and take their babies to be evaluated for it are more likely to have done pre-conception supplementation. This seems pretty obvious to me.

[Anonymous]

Anonymous wrote:Ok I just spent a few minutes researching and found the study that hypothesized the link between ankyloglossia and folic acid supplementation as well as a useful meta study that included the above study: https://pubmed.ncbi.nlm.nih.gov/37922258/

I think it’s correlation not causation. Women who are more likely to breastfeed and be even aware of the concept of a tongue tie and take their babies to be evaluated for it are more likely to have done pre-conception supplementation. This seems pretty obvious to me.

Second this. The women I see promoting the “excess folic acid = tongue ties” theory are the same ones who don’t vaccinate their kids so, yeah, I don’t really take stock in their opinions.

[Anonymous]

Anonymous wrote:

Anonymous wrote:we saw dr. pham-- around 16 months when i thought mine had a lip tie (after 12 difficult months or nursing). two dentist friends said it looked like a tie she said no need for a revision.

We saw Dr. Pham as well for my now 3 year old DS after 5 months of on and off nursing issues and moderate reflux. She noted mild lip and tongue ties but didn’t recommend revision because he was gaining weight fine. However, he still drools a ton at 3. Hmm

i posted the above about dr pham and my 22 month old drools a ton too. pediatrician and dentist both told us to take to ent to check out adenoids but i haven't yet as that's a bigger surgery than i'm comfortable with if only current issue is drool

[Anonymous]

Another recommendation for Dr Black. She said our daughter had a tie but suggested we not release it because she also has a high palate. It was unclear to her which was causing breastfeeding problems and couldn’t guarantee the release would help.
She was thorough with pros/cons and her advice. I would trust her to give a solid recommendation.

[Anonymous]

That NY times article.was very scary. If your child.is not feeding well then this clipping a tongue toemay be necessary. Lips are another story. Get a second opinion to be sure.

[Anonymous]

Anonymous wrote:Ok I just spent a few minutes researching and found the study that hypothesized the link between ankyloglossia and folic acid supplementation as well as a useful meta study that included the above study: https://pubmed.ncbi.nlm.nih.gov/37922258/

I think it’s correlation not causation. Women who are more likely to breastfeed and be even aware of the concept of a tongue tie and take their babies to be evaluated for it are more likely to have done pre-conception supplementation. This seems pretty obvious to me.

Yeah. Like.... tongue tie, or spina bifida? Hmmm that's a tough one let me avoid my folic acid while I think about it.

[Anonymous]

It depends on whether it's causing issues or not. Both of my kids had tongue ties, and both were very difficult nursers. My nipples were a mess from the chomping. I didn't think anyone pushed the tongue tie being cut - in fact, it seemed like the last thing suggested after a long struggle. I guess I would look at whether it's causing issues and decide from there. I think you could get a legit option from an ENT.

Also, FWIW, both of mine seem to have grown back since...

[Anonymous]

My husband is a fellowship-trained ENT and is very skeptical about ties. Doesn't believe they're as widespread as some.

[Anonymous]

Op here again. My older daughter had a severe lip tie which we snipped at three days old because she couldn’t nurse without destroying my nipples, and I don’t regret it a bit. I’m still really torn (not literally) about this baby, but I have an appointment with Dr. Black and will take her advice. Thank you very much.