Anyone here have lyme that wasn't knocked out by doxy?

[Anonymous]

Op - my dr said igg will persist for maybe ever but the Igm suggested an active infection remains.

[Anonymous]

Anonymous wrote:Op - my dr said igg will persist for maybe ever but the Igm suggested an active infection remains.

it does suggest that, but it isn't a certainty. I'm not going to argue with your doctor, but if they are known as a "Lyme aware" doctor, I'd form my own opinions.

[Anonymous]

20% of cases won’t resolve with initial treatment. There are tests like TLab they can look for actual infection not antibodies as this will frequently make your immune system malfunction. You need a Lyme literate MD now. Fwiw I was a doctor, misdiagnosed for years until it got very bad and now I’m trying to get better. Local providers are a bit all over the place. Jemsek is probably most experienced local provider. You’ll find some people use combos of antibiotics pulsed, some use rife machine, some use herbals. I know this stuff looks like sci-fi garbage when you look it up. Trust me when I say you sing a very different tune if you get sick enough. The Washington post guy wrote a book of his experience that discusses some of this. It’s very hard as there is no straight path to treatment because until extremely recently this was not acknowledged to be a persistent infection. If you can get the folks in Columbia to pick up the phone they have a lot of active research up there. I see a doctor in New York. ILADS will give you a list of providers or some functional meds can at least tackle the first steps of treatment. Have your family members evaluated.

[Anonymous]

https://academic.oup.com/cid/article/33/6/780/328918
Persistence of Immunoglobulin M or Immunoglobulin G Antibody Responses to Borrelia burgdorferi 10–20 Years after Active Lyme Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8694107/
Persistent Anti-Borrelia IgM Antibodies without Lyme Borreliosis in the Clinical and Immunological Context

Our experimental data show that these Borrelia-unrelated proteins cross-react with the OpsC-specific IgM. This knowledge is important for the development of serologic assays for Lyme borreliosis and provides a cross-reactive explanation for the persistence of Borrelia-IgM.

[Anonymous]

Sorry forgot to say get tested for bartonella and babesia if you’re still symptomatic. Pay attention to your physical symptoms more than just the igm or igg.

[Anonymous]

Anonymous wrote:Sorry forgot to say get tested for bartonella and babesia if you’re still symptomatic. Pay attention to your physical symptoms more than just the igm or igg.

Op - I did and they are negative

[Anonymous]

Anonymous wrote:

Anonymous wrote:Op - my dr said igg will persist for maybe ever but the Igm suggested an active infection remains.

it does suggest that, but it isn't a certainty. I'm not going to argue with your doctor, but if they are known as a "Lyme aware" doctor, I'd form my own opinions.

I’m going to an infectious disease specialist this week.
But I went to him bc my symptoms were persisting so it’s a safe bet I still have something that needs treating

[Anonymous]

Anonymous wrote:20% of cases won’t resolve with initial treatment. There are tests like TLab they can look for actual infection not antibodies as this will frequently make your immune system malfunction. You need a Lyme literate MD now. Fwiw I was a doctor, misdiagnosed for years until it got very bad and now I’m trying to get better. Local providers are a bit all over the place. Jemsek is probably most experienced local provider. You’ll find some people use combos of antibiotics pulsed, some use rife machine, some use herbals. I know this stuff looks like sci-fi garbage when you look it up. Trust me when I say you sing a very different tune if you get sick enough. The Washington post guy wrote a book of his experience that discusses some of this. It’s very hard as there is no straight path to treatment because until extremely recently this was not acknowledged to be a persistent infection. If you can get the folks in Columbia to pick up the phone they have a lot of active research up there. I see a doctor in New York. ILADS will give you a list of providers or some functional meds can at least tackle the first steps of treatment. Have your family members evaluated.

Op - I am in nyc so if you have a reco there that would be amazing!

[Anonymous]

I sincerely hope you get the answers you need and any condition you have treated effectively. Best wishes, OP.

[Anonymous]

Anonymous wrote:https://academic.oup.com/cid/article/33/6/780/328918
Persistence of Immunoglobulin M or Immunoglobulin G Antibody Responses to Borrelia burgdorferi 10–20 Years after Active Lyme Disease

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8694107/
Persistent Anti-Borrelia IgM Antibodies without Lyme Borreliosis in the Clinical and Immunological Context

Our experimental data show that these Borrelia-unrelated proteins cross-react with the OpsC-specific IgM. This knowledge is important for the development of serologic assays for Lyme borreliosis and provides a cross-reactive explanation for the persistence of Borrelia-IgM.

I tested negative for the borrelia one. Positive on all the others