Low beta IVF (130 @ 14dp5dt)

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:So sorry you're getting these numbers OP. I had really bad betas as well that resulted in ectopic. My numbers played out this way:

Found out pregnant naturally, got in next day - 60
2 days later - 92
2 days later - 132, doctor calls to say not viable, could be ectopic but they don't know because numbers are so low
One week later - 136
Four days later - 72 - finally seeing numbers go down, think miscarrying

Next day ectopic rupture. Baby was 5 weeks 4 days in pathology. Just wanted to prepare you as I didn't find much info on this when going through it and it was a very bad experience. I wasn't on HCG boosters so hopefully you will not have to go through ectopic or if you are they are able to diagnose and provide methotrexate before a rupture.

Thank you for this - looking back, did you have any symptoms that would indicate that’s what was going on?

No, just had the knowledge from RE that it could be ectopic, which was very helpful. The rupture wasn't that painful for me and I identified because of how long the pain was and that it wasn't gas, etc. I didn't have internal bleeding or other symptoms and it was incredibly difficult to explain to ER that it was ectopic because on day of rupture the HCG had dropped to 47 or something like that.

Wow - that’s both scary and good to know

[Anonymous]

Anonymous wrote:

Anonymous wrote:So sorry op. My first pregnancy was like this. Just a sac at 6 weeks, but didn’t naturally miscarry until 10 weeks.

Ugh I’m sorry to hear that, that must have felt like an eternal wait. Thank you

I hope your turns out differently, and no I wouldn’t stop meds until I started to bleed. Fwiw my next IVF was a success. It’s such a painful process. I am pulling for you and a healthy baby.

[Anonymous]

I’m so sorry - my slow-rising beta was also an ectopic. I had some bleeding (brownish) for several days before my rupture. Your RE should do a scan to see if he/she can see where the embryo has implanted.

[Anonymous]

Anonymous wrote:I’m so sorry - my slow-rising beta was also an ectopic. I had some bleeding (brownish) for several days before my rupture. Your RE should do a scan to see if he/she can see where the embryo has implanted.

Ok I am officially scared (…but also appreciative for the knowledge, seriously). Is it too early to do that scan at this point (15dp5dt), or should I push for them to do it ASAP? Sorry, I’m a CNY travel patient so def need to be my own advocate, to some extent.

Separately, I’m sorry you went through that. And thank you for responding

[Anonymous]

Unfortunately they will not be able to see anything until week six. I am the first poster with ectopic who shared numbers. It wasn't until the surgery where they could see theere was an abruption in the fallopian tube that they were able to confirm ectopic, I literally was asked why going into surgery and said ectopic and the OR nurse corrected me and said suspected ectopic.

Once RE warns that it could be ectopic maybe ask why they aren't giving you methotrexate. They can go over risks with you so you can make an informed decision. Something looking back I wish I had done was have a paper with hcg readings and dates - it would have helped fast track me.

[Anonymous]

Maybe my math is bad, but it looks like you’re maybe doubling since dropping the hcg supplements? Good luck!

[Anonymous]

Anonymous wrote:Unfortunately they will not be able to see anything until week six. I am the first poster with ectopic who shared numbers. It wasn't until the surgery where they could see theere was an abruption in the fallopian tube that they were able to confirm ectopic, I literally was asked why going into surgery and said ectopic and the OR nurse corrected me and said suspected ectopic.

Once RE warns that it could be ectopic maybe ask why they aren't giving you methotrexate. They can go over risks with you so you can make an informed decision. Something looking back I wish I had done was have a paper with hcg readings and dates - it would have helped fast track me.

Ah okay, I figured it’d be too early at this point. Thanks - and good tip Re having a list of #s

[Anonymous]

One additional point on methotrexate. You have to wait 3-6 months to try to get pregnant after taking it, which may delay future cycles. Because of my age and the unlikelihood that I would become pregnant without IVF, I opted to have my fallopian tube removed rather than take medication. There was also a chance that my tube was already damaged (which they did indeed determine during surgery). Just a point to consider and discuss if you need to go down this path. Sending good thoughts!

[Anonymous]

Anonymous wrote:One additional point on methotrexate. You have to wait 3-6 months to try to get pregnant after taking it, which may delay future cycles. Because of my age and the unlikelihood that I would become pregnant without IVF, I opted to have my fallopian tube removed rather than take medication. There was also a chance that my tube was already damaged (which they did indeed determine during surgery). Just a point to consider and discuss if you need to go down this path. Sending good thoughts!

Omg I had no idea about this. That’s really good to know, thank you. How was that surgery/recovery?

[Anonymous]

Yeah I am the original ectopic poster. When my rupture happened it was undiagnosed because it was so early that I had to convince ER staff that it was ectopic, which is where the record of the HCG readings would have been helpful. It does make sense to me that if you're already in IVF it may make more sense to just do removal but then that wouldn't be in emergency.

Its laparoscopy and two incisions around your belly button. You get stitches that will dissolve and a check in afterwards to look at your stitches. No heavy lifting for a few weeks but not many other restrictions. For emergency surgery the biggest thing for me was coming out of anesthesia as they shove a tube down your throat.

[Anonymous]

Anonymous wrote:

Anonymous wrote:NP here. It's both. Those are just not viable beta numbers, I'm sorry. The "what-if" game is torture, but it's best to be realistic and not let yourself have false hope. Better luck next time.

If you were me would you just stop meds now?

I would, but I’ve had many rounds of IVF and many losses. Your odds of miscarriage are at least 95%. It’s a personal choice if you’re willing to risk that 5% chance. I’ve BTDT and know what it means, but you’re the one that has to be able to sleep at night. Good luck.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:NP here. It's both. Those are just not viable beta numbers, I'm sorry. The "what-if" game is torture, but it's best to be realistic and not let yourself have false hope. Better luck next time.

If you were me would you just stop meds now?

I would, but I’ve had many rounds of IVF and many losses. Your odds of miscarriage are at least 95%. It’s a personal choice if you’re willing to risk that 5% chance. I’ve BTDT and know what it means, but you’re the one that has to be able to sleep at night. Good luck.

Thanks. My beta today (16dp5dt) came back at 340, which I was surprised to see. But I still know it’s just SUCH a low number for how far along I would supposedly be. And unfortunately just means I he waiting continues, I guess…

If you don’t mind me asking, when you say my odds of miscarriage are at least 95%, what is that based on? (I’m not challenging you; I actually want to know)

[Anonymous]

Anonymous wrote:Yeah I am the original ectopic poster. When my rupture happened it was undiagnosed because it was so early that I had to convince ER staff that it was ectopic, which is where the record of the HCG readings would have been helpful. It does make sense to me that if you're already in IVF it may make more sense to just do removal but then that wouldn't be in emergency.

Its laparoscopy and two incisions around your belly button. You get stitches that will dissolve and a check in afterwards to look at your stitches. No heavy lifting for a few weeks but not many other restrictions. For emergency surgery the biggest thing for me was coming out of anesthesia as they shove a tube down your throat.

Oh my god. This sounds like the stuff of nightmares, I feel so anxious just reading this

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:NP here. It's both. Those are just not viable beta numbers, I'm sorry. The "what-if" game is torture, but it's best to be realistic and not let yourself have false hope. Better luck next time.

If you were me would you just stop meds now?

I would, but I’ve had many rounds of IVF and many losses. Your odds of miscarriage are at least 95%. It’s a personal choice if you’re willing to risk that 5% chance. I’ve BTDT and know what it means, but you’re the one that has to be able to sleep at night. Good luck.

Thanks. My beta today (16dp5dt) came back at 340, which I was surprised to see. But I still know it’s just SUCH a low number for how far along I would supposedly be. And unfortunately just means I he waiting continues, I guess…

If you don’t mind me asking, when you say my odds of miscarriage are at least 95%, what is that based on? (I’m not challenging you; I actually want to know)

Please update us with your next beta op.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:NP here. It's both. Those are just not viable beta numbers, I'm sorry. The "what-if" game is torture, but it's best to be realistic and not let yourself have false hope. Better luck next time.

If you were me would you just stop meds now?

I would, but I’ve had many rounds of IVF and many losses. Your odds of miscarriage are at least 95%. It’s a personal choice if you’re willing to risk that 5% chance. I’ve BTDT and know what it means, but you’re the one that has to be able to sleep at night. Good luck.

Thanks. My beta today (16dp5dt) came back at 340, which I was surprised to see. But I still know it’s just SUCH a low number for how far along I would supposedly be. And unfortunately just means I he waiting continues, I guess…

If you don’t mind me asking, when you say my odds of miscarriage are at least 95%, what is that based on? (I’m not challenging you; I actually want to know)

Sorry, I don’t have exact cites. It was an off the record conversation with my IVF nurse during my fifth early loss. I always had numbers that were low but technically in the normal range and doubling. None of them made it to 7 weeks. No clinic will tell you to stop meds, but they all know there’s a threshold level a beta has to be at to indicate viability. Below that and it’s just not indicating development that could turn into a viable pregnancy.