| Any updates , OP? |
OP, I just wanted to say that Sibley can’t put you on the waitlist for other JHU centers, but you can call yourself and ask for earlier appointments or waitlist. I had to do this to get a scan - there are 2 separate numbers for different groups of facilities in Baltimore. What you do at any JHU facility will show up accessible in your chart to all JHU facilities. I think there is also a way to make an appointment online - but they will only allow you to do it a week out because they have to run the insurance. If, when you call you tell them you already have an appointment at Sibley and the insurance already ran and approved the scan, the scheduling people may be able to look for appointments inside a week because it is easy to transfer the insurance approval between facilities. |
OP here. Not really. Gave my pending bloodwork today that's it. The CA19-9 and TSH, T3, T4 are in this one. |
Thank you! I called Sibley again and no change to date - doctor ordered both an MRI abdomen/pelvis and MRCP and scheduler insisted that it was just MRCP when the order says otherwise, and she asked me to call the doc office again and said that when she called them they wanted just MRCP. With all my issues I'm pretty sure my doctor wanted the full sequence of tests and not just the focus on pancreas. All the other JHU locations have January dates. When you say - tell them that Sibley already has approval of scan - do they do that for an appointment 3 weeks out? How would I know they have approval? I don't think I need approval for MRI, not sure about MRE. Sibley has me for MRCP. |
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Sorry you are going through this OP
Hoping for a resolution for you |
And they were all normal? That's reassuring at least? |
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If CMP is normal, that has glucose in it. If that is normal and A1C is normal, no concern about diabetes.
Radiology locations will not do 3 tests at a time. You can’t have MRI abdomen and pelvis and MRCP. You can have MRI abdomen and MRCP. You mentioned MRE. That is looking for inflammation in your small intestine. Great news that everything is normal so far! |
Just gave my TSH and cancer marker bloodwork today. Crossing my fingers. |
Just gave them today. Hoping to get the results in the next couple of days. |
What? I thought you said they took them all the same day and was waiting on those to come back?! |
I’m wondering if her doctors are all correct and Op actually just has health anxiety and is losing weight from severe anxiety. Because why would you go get all these bloodwork orders and then wait a full week to even go get them drawn, if you’re convinced you have cancer? Also, the multiple scans within the past year all being clear is an excellent sign. OP I’m kind of confused by what you’re up to but as someone who has known people to have lots of weight loss and it end up being cancer, I do hope you are ok. Please post an update when you can! |
This is the answer. If you’re losing a pound a day, unintentionally, thats really unusual. Combined with abdominal pain, you should go to the ER. They’re not going to do all these exact specific tests and scans that you’re hunting for BUT they will almost certainly do an abdominal ultrasound, abdominal CT, and bloodwork. If there is anything really bad happening, it will show up. If you had a clear colonoscopy (besides a few polyps that were removed) like 8 weeks ago, I would be really surprised if it’s a cancer anywhere in your GI tract |
Op here. Before jumping to conclusions it would have been nice if you and the PP had read my updates. Why would I wait to give my tests? |
| Sounds like it could be a cancer. |
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OP- I lost 35-40 pounds shortly. I maybe needed to lose TEN. I got down to 105. I wasn’t adsorbing ANY vitamins or nutrients.
I’m on monthly vitamin infusions, at the hematology department in our local, massive hospital system. I do not have cancer. I have an absorption problem. I’m eating like my teen boys, they have well rounded diets. I’m back to 120 which is a good weight for my height (5’5”) and build (small bones). But if I don’t keep up I drop weight quickly. |