I'm losing weight unintentionally and am worried

Anonymous
Any updates , OP?
Anonymous
Anonymous wrote:OP with an update - I got the prelim report and A1C does not show diabetic. Liver enzymes normal range. Vit D is lowest end of normal, magnesium is also lowest end of normal. CBC normal. CMP normal. LDL High. Waiting on Celiac Panel. B12 normal.

LabCorp screwed up and forgot to put in the order for fasting glucose, TSH, T4 and T3 and CA19-9

I guess its another waiting game after I go back tomorrow.

I asked chatgpt if I need the fasting glucose too and it said yes because a1c monitors 3 month trend but fasting glucose shows current.

My doctor has also ordered an MRI Enterography.

It sucks that all the MRI dates available are in January for the JH network. I'm not sure whether to just go to another center since my records are at JH. And since I have appointments at Sibley I cannot get on any wait list for the other JH locations since the other 5 centers are independent of Sibley

I called and my follow up MRCP earlier this year was with a 1.5T scanner while my first MRI was a 3T. Not sure if that made a difference in the measurements of my IPMN.


OP, I just wanted to say that Sibley can’t put you on the waitlist for other JHU centers, but you can call yourself and ask for earlier appointments or waitlist. I had to do this to get a scan - there are 2 separate numbers for different groups of facilities in Baltimore. What you do at any JHU facility will show up accessible in your chart to all JHU facilities. I think there is also a way to make an appointment online - but they will only allow you to do it a week out because they have to run the insurance. If, when you call you tell them you already have an appointment at Sibley and the insurance already ran and approved the scan, the scheduling people may be able to look for appointments inside a week because it is easy to transfer the insurance approval between facilities.
Anonymous
Anonymous wrote:Any updates , OP?


OP here. Not really. Gave my pending bloodwork today that's it. The CA19-9 and TSH, T3, T4 are in this one.
Anonymous
Anonymous wrote:
Anonymous wrote:OP with an update - I got the prelim report and A1C does not show diabetic. Liver enzymes normal range. Vit D is lowest end of normal, magnesium is also lowest end of normal. CBC normal. CMP normal. LDL High. Waiting on Celiac Panel. B12 normal.

LabCorp screwed up and forgot to put in the order for fasting glucose, TSH, T4 and T3 and CA19-9

I guess its another waiting game after I go back tomorrow.

I asked chatgpt if I need the fasting glucose too and it said yes because a1c monitors 3 month trend but fasting glucose shows current.

My doctor has also ordered an MRI Enterography.

It sucks that all the MRI dates available are in January for the JH network. I'm not sure whether to just go to another center since my records are at JH. And since I have appointments at Sibley I cannot get on any wait list for the other JH locations since the other 5 centers are independent of Sibley

I called and my follow up MRCP earlier this year was with a 1.5T scanner while my first MRI was a 3T. Not sure if that made a difference in the measurements of my IPMN.


OP, I just wanted to say that Sibley can’t put you on the waitlist for other JHU centers, but you can call yourself and ask for earlier appointments or waitlist. I had to do this to get a scan - there are 2 separate numbers for different groups of facilities in Baltimore. What you do at any JHU facility will show up accessible in your chart to all JHU facilities. I think there is also a way to make an appointment online - but they will only allow you to do it a week out because they have to run the insurance. If, when you call you tell them you already have an appointment at Sibley and the insurance already ran and approved the scan, the scheduling people may be able to look for appointments inside a week because it is easy to transfer the insurance approval between facilities.


Thank you! I called Sibley again and no change to date - doctor ordered both an MRI abdomen/pelvis and MRCP and scheduler insisted that it was just MRCP when the order says otherwise, and she asked me to call the doc office again and said that when she called them they wanted just MRCP. With all my issues I'm pretty sure my doctor wanted the full sequence of tests and not just the focus on pancreas.

All the other JHU locations have January dates.

When you say - tell them that Sibley already has approval of scan - do they do that for an appointment 3 weeks out? How would I know they have approval? I don't think I need approval for MRI, not sure about MRE. Sibley has me for MRCP.





Anonymous
Sorry you are going through this OP

Hoping for a resolution for you
Anonymous
Anonymous wrote:
Anonymous wrote:Any updates , OP?


OP here. Not really. Gave my pending bloodwork today that's it. The CA19-9 and TSH, T3, T4 are in this one.


And they were all normal? That's reassuring at least?
Anonymous
If CMP is normal, that has glucose in it. If that is normal and A1C is normal, no concern about diabetes.

Radiology locations will not do 3 tests at a time. You can’t have MRI abdomen and pelvis and MRCP. You can have MRI abdomen and MRCP.

You mentioned MRE. That is looking for inflammation in your small intestine.

Great news that everything is normal so far!
Anonymous
Anonymous wrote:If CMP is normal, that has glucose in it. If that is normal and A1C is normal, no concern about diabetes.

Radiology locations will not do 3 tests at a time. You can’t have MRI abdomen and pelvis and MRCP. You can have MRI abdomen and MRCP.

You mentioned MRE. That is looking for inflammation in your small intestine.

Great news that everything is normal so far!


Just gave my TSH and cancer marker bloodwork today. Crossing my fingers.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Any updates , OP?


OP here. Not really. Gave my pending bloodwork today that's it. The CA19-9 and TSH, T3, T4 are in this one.


And they were all normal? That's reassuring at least?


Just gave them today. Hoping to get the results in the next couple of days.
Anonymous
Anonymous wrote:
Anonymous wrote:If CMP is normal, that has glucose in it. If that is normal and A1C is normal, no concern about diabetes.

Radiology locations will not do 3 tests at a time. You can’t have MRI abdomen and pelvis and MRCP. You can have MRI abdomen and MRCP.

You mentioned MRE. That is looking for inflammation in your small intestine.

Great news that everything is normal so far!


Just gave my TSH and cancer marker bloodwork today. Crossing my fingers.


What? I thought you said they took them all the same day and was waiting on those to come back?!
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:If CMP is normal, that has glucose in it. If that is normal and A1C is normal, no concern about diabetes.

Radiology locations will not do 3 tests at a time. You can’t have MRI abdomen and pelvis and MRCP. You can have MRI abdomen and MRCP.

You mentioned MRE. That is looking for inflammation in your small intestine.

Great news that everything is normal so far!


Just gave my TSH and cancer marker bloodwork today. Crossing my fingers.


What? I thought you said they took them all the same day and was waiting on those to come back?!


I’m wondering if her doctors are all correct and Op actually just has health anxiety and is losing weight from severe anxiety. Because why would you go get all these bloodwork orders and then wait a full week to even go get them drawn, if you’re convinced you have cancer?

Also, the multiple scans within the past year all being clear is an excellent sign.

OP I’m kind of confused by what you’re up to but as someone who has known people to have lots of weight loss and it end up being cancer, I do hope you are ok. Please post an update when you can!
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would be very worried about cancer , and would consider going to the ER rather than waiting on your primary care doctor to refer you to someone else, wait to get another scan, etc.


Will they do scans in ER just for weight loss and abdominal pain?


RN here. Yes BUT if everything comes back normal, they are very likely to just discharge you and to tell you to follow up with a specialist. They likely aren't going to take the time to try to diagnose anything unless your labs are out of whack or you're unable to keep anything down (I say unlikely but I've also seen people admitted for less). They will likely just rule out anything emergent and/or critical and then have you follow up. Which isn't necessarily a bad way to get a CT scan, I just don't want you to get your hopes up too much that you'll walk out with any answers.


This is the answer. If you’re losing a pound a day, unintentionally, thats really unusual. Combined with abdominal pain, you should go to the ER. They’re not going to do all these exact specific tests and scans that you’re hunting for BUT they will almost certainly do an abdominal ultrasound, abdominal CT, and bloodwork. If there is anything really bad happening, it will show up. If you had a clear colonoscopy (besides a few polyps that were removed) like 8 weeks ago, I would be really surprised if it’s a cancer anywhere in your GI tract
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:If CMP is normal, that has glucose in it. If that is normal and A1C is normal, no concern about diabetes.

Radiology locations will not do 3 tests at a time. You can’t have MRI abdomen and pelvis and MRCP. You can have MRI abdomen and MRCP.

You mentioned MRE. That is looking for inflammation in your small intestine.

Great news that everything is normal so far!


Just gave my TSH and cancer marker bloodwork today. Crossing my fingers.


What? I thought you said they took them all the same day and was waiting on those to come back?!


I’m wondering if her doctors are all correct and Op actually just has health anxiety and is losing weight from severe anxiety. Because why would you go get all these bloodwork orders and then wait a full week to even go get them drawn, if you’re convinced you have cancer?

Also, the multiple scans within the past year all being clear is an excellent sign.

OP I’m kind of confused by what you’re up to but as someone who has known people to have lots of weight loss and it end up being cancer, I do hope you are ok. Please post an update when you can!


Op here. Before jumping to conclusions it would have been nice if you and the PP had read my updates.

Why would I wait to give my tests?

Anonymous
Sounds like it could be a cancer.
Anonymous
OP- I lost 35-40 pounds shortly. I maybe needed to lose TEN. I got down to 105. I wasn’t adsorbing ANY vitamins or nutrients.


I’m on monthly vitamin infusions, at the hematology department in our local, massive hospital system. I do not have cancer. I have an absorption problem. I’m eating like my teen boys, they have well rounded diets. I’m back to 120 which is a good weight for my height (5’5”) and build (small bones). But if I don’t keep up I drop weight quickly.
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