Brain scan?

[Anonymous]

S/O of the poster on another thread whose child had a brain scan and was found to have a cyst, has anyone else whose kid has behavioral challenges considered a brain scan? Ds does often complain of headaches but his psych and ped think they are the result of adhd medication making him forget to eat and drink. Wondering if i should explore a scan further...

[Anonymous]

There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

[Anonymous]

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

[Anonymous]

Anonymous wrote:

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

DP. We participate in the NIH ADHD research studies. The brain MRIs they do are not experimental. The researchers are looking to see if there are differences between the ADHD and NT brains and the development trajectory - among other things.

When the neurologist who reads the brain MRI identifies something atypical they contact the participants. They have an ethical (if not legal) obligation to do so. This was how we learned my DS has a Chiari Malformation. They showed us on the scan, discussed it with us and suggested we follow up on it with our medical provider. They also sent the report to our doctors and gave us a copy of the MRI.

Of course, the study isn't for primary care but the NIH staff are incredible.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

DP. We participate in the NIH ADHD research studies. The brain MRIs they do are not experimental. The researchers are looking to see if there are differences between the ADHD and NT brains and the development trajectory - among other things.

When the neurologist who reads the brain MRI identifies something atypical they contact the participants. They have an ethical (if not legal) obligation to do so. This was how we learned my DS has a Chiari Malformation. They showed us on the scan, discussed it with us and suggested we follow up on it with our medical provider. They also sent the report to our doctors and gave us a copy of the MRI.

Of course, the study isn't for primary care but the NIH staff are incredible.

that’s what I said - the brain scans are experimental, ie, part of an experience. they are not meant to diagnose a separate neurological issue like a cyst or tumor (and they cannot diagnose ADHD either but that’s a separate question).

of course a brain MRI can turn up something else or something incidental. which is actually a reason to avoid them. I read a horrifying study about the number of kids subjected to uneccesary brain surgery due to “incedidentalomas”.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

DP. We participate in the NIH ADHD research studies. The brain MRIs they do are not experimental. The researchers are looking to see if there are differences between the ADHD and NT brains and the development trajectory - among other things.

When the neurologist who reads the brain MRI identifies something atypical they contact the participants. They have an ethical (if not legal) obligation to do so. This was how we learned my DS has a Chiari Malformation. They showed us on the scan, discussed it with us and suggested we follow up on it with our medical provider. They also sent the report to our doctors and gave us a copy of the MRI.

Of course, the study isn't for primary care but the NIH staff are incredible.

that’s what I said - the brain scans are experimental, ie, part of an experience. they are not meant to diagnose a separate neurological issue like a cyst or tumor (and they cannot diagnose ADHD either but that’s a separate question).

of course a brain MRI can turn up something else or something incidental. which is actually a reason to avoid them. I read a horrifying study about the number of kids subjected to uneccesary brain surgery due to “incedidentalomas”.

Incidental findings are NOT a reason to avoid a scan! Incidentals are a reason to make damn sure you have a good diagnostician. No good brain surgeon does an unnecessary surgery. Knowledge is power, and that girl might have something that a qualified doctor could help her get treated in a meaningful way. Sending that mama so much LOVE.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

DP. We participate in the NIH ADHD research studies. The brain MRIs they do are not experimental. The researchers are looking to see if there are differences between the ADHD and NT brains and the development trajectory - among other things.

When the neurologist who reads the brain MRI identifies something atypical they contact the participants. They have an ethical (if not legal) obligation to do so. This was how we learned my DS has a Chiari Malformation. They showed us on the scan, discussed it with us and suggested we follow up on it with our medical provider. They also sent the report to our doctors and gave us a copy of the MRI.

Of course, the study isn't for primary care but the NIH staff are incredible.

that’s what I said - the brain scans are experimental, ie, part of an experience. they are not meant to diagnose a separate neurological issue like a cyst or tumor (and they cannot diagnose ADHD either but that’s a separate question).

of course a brain MRI can turn up something else or something incidental. which is actually a reason to avoid them. I read a horrifying study about the number of kids subjected to uneccesary brain surgery due to “incedidentalomas”.

Incidental findings are NOT a reason to avoid a scan! Incidentals are a reason to make damn sure you have a good diagnostician. No good brain surgeon does an unnecessary surgery. Knowledge is power, and that girl might have something that a qualified doctor could help her get treated in a meaningful way. Sending that mama so much LOVE.

Incidental findings are absolutely a reason to avoid unnecessary imaging. If a neurologist recommends an MRI then sure.

[Anonymous]

I’m not funding a place to sign up. Are any studies currently accepting kids?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

DP. We participate in the NIH ADHD research studies. The brain MRIs they do are not experimental. The researchers are looking to see if there are differences between the ADHD and NT brains and the development trajectory - among other things.

When the neurologist who reads the brain MRI identifies something atypical they contact the participants. They have an ethical (if not legal) obligation to do so. This was how we learned my DS has a Chiari Malformation. They showed us on the scan, discussed it with us and suggested we follow up on it with our medical provider. They also sent the report to our doctors and gave us a copy of the MRI.

Of course, the study isn't for primary care but the NIH staff are incredible.

that’s what I said - the brain scans are experimental, ie, part of an experience. they are not meant to diagnose a separate neurological issue like a cyst or tumor (and they cannot diagnose ADHD either but that’s a separate question).

of course a brain MRI can turn up something else or something incidental. which is actually a reason to avoid them. I read a horrifying study about the number of kids subjected to uneccesary brain surgery due to “incedidentalomas”.

Incidental findings are NOT a reason to avoid a scan! Incidentals are a reason to make damn sure you have a good diagnostician. No good brain surgeon does an unnecessary surgery. Knowledge is power, and that girl might have something that a qualified doctor could help her get treated in a meaningful way. Sending that mama so much LOVE.

Incidental findings are absolutely a reason to avoid unnecessary imaging. If a neurologist recommends an MRI then sure.

“Unnecessary” is the key word there. No one is talking about unnecessary imagine. Get off your gatekeeping high horse. That poster’s child has all the symptoms of a brain cyst or worse.

[Anonymous]

*imagING

[Anonymous]

Could someone point me to the thread about the brain cyst? My child also has a brain cyst that may or may not be the source of concerning symptoms. Thank you.

[Anonymous]

Anonymous wrote:Could someone point me to the thread about the brain cyst? My child also has a brain cyst that may or may not be the source of concerning symptoms. Thank you.

I think I found it.

[Anonymous]

I think any kid who is having that amount of problems should have a complete medical workup including genetic testing and brain imaging. My kid turned out to have atypical zebra findings on both. And he does have some behavioral issues. And it was a study at NIH that found the results and got us going in the right direction.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:There are some NIH studies on ADHD that have been recruiting lately - they all include brain scans (but also the commitment of the study itself).

But the purpose of those scans is not diagnostic, it’s experimental. If you think your kid has a neurological issue, see a neurologist, who will order the scans they think are necessary.

DP. We participate in the NIH ADHD research studies. The brain MRIs they do are not experimental. The researchers are looking to see if there are differences between the ADHD and NT brains and the development trajectory - among other things.

When the neurologist who reads the brain MRI identifies something atypical they contact the participants. They have an ethical (if not legal) obligation to do so. This was how we learned my DS has a Chiari Malformation. They showed us on the scan, discussed it with us and suggested we follow up on it with our medical provider. They also sent the report to our doctors and gave us a copy of the MRI.

Of course, the study isn't for primary care but the NIH staff are incredible.

that’s what I said - the brain scans are experimental, ie, part of an experience. they are not meant to diagnose a separate neurological issue like a cyst or tumor (and they cannot diagnose ADHD either but that’s a separate question).

of course a brain MRI can turn up something else or something incidental. which is actually a reason to avoid them. I read a horrifying study about the number of kids subjected to uneccesary brain surgery due to “incedidentalomas”.

Incidental findings are NOT a reason to avoid a scan! Incidentals are a reason to make damn sure you have a good diagnostician. No good brain surgeon does an unnecessary surgery. Knowledge is power, and that girl might have something that a qualified doctor could help her get treated in a meaningful way. Sending that mama so much LOVE.

Incidental findings are absolutely a reason to avoid unnecessary imaging. If a neurologist recommends an MRI then sure.

“Unnecessary” is the key word there. No one is talking about unnecessary imagine. Get off your gatekeeping high horse. That poster’s child has all the symptoms of a brain cyst or worse.

Brain cysts are actually one very common incidental finding. Anyway OP needs to see an actual neurologist to assess this. Having just been through a neurologist appointment for headaches, I can tell you an MRI is not the standard of care unless there is an abnormal finding on the exam suggesting a lesion. How absurd to suggest everyone should just be able to schedule their own MRI because of something they read on the internet.

[Anonymous]

Anonymous wrote:I think any kid who is having that amount of problems should have a complete medical workup including genetic testing and brain imaging. My kid turned out to have atypical zebra findings on both. And he does have some behavioral issues. And it was a study at NIH that found the results and got us going in the right direction.

But what treatment did they end up getting from the genetic testing and brain imaging?