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Reply to "Working with a disabled STAHM (just a sad vent...maybe some advice)"
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[quote=Anonymous]I'm several weeks in to a new position, and the dynamics are very new to me. MB had a benign tumor she wasn't aware of until 7 months into her pregnancy when she had a massive stroke. Her baby was delivered early and had some severe complications. They thought she would die, and was in a coma for months. LO is now 14-months-old and well enough to no longer need to be cared for by a pediatric home nurse. I was hired to care for the 14-month-old and an older brother (4). MB is left very disabled. She is wheelchair bound and cognitively like a six-year-old. She can talk, but it's hard for me to always understand her because she has speech issues. DB told me they doubt she will regress anymore, but also aren't hopeful she can make much more progress. It's the saddest thing I've ever seen. She forgets that the toddler is her daughter and when she does remember she wants to help but she physically can't. The 4-year-old is withdrawn from her, and often actually ignores her when she tries to talk to him. She has been home since before Christmas but obviously it's been a big change. It's like the tumor robbed her of everything but her life. She has a PhD and was very successful in her career, is a published author (for like textbooks and research.). I see pictures of what she use to look like and it's devastating. I can't even imagine how hard it has been for DB who is amazing. It's just sad, I hold back tears everyday. She wants so badly to do things, but is fully dependent on her nurse. She can't even hold them without help. It's always a fine line of doing my job and being sensitive to her wants. The nurse and I just don't know what to do half the time, they Re her kids but she just can't do it. [/quote]
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