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Reply to "has anyone on here terminated due to a positive T21 result?"
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[quote=Anonymous]Hi. I haven't read through all seven pages of this thread because: 1. Have three small kids and limited time 2. Reading about terminating a kid like mine isn't top on my list of fun things to do So, sorry if I'm repeating anything already said. :) We have a four year old daughter with Ds. She's sandwiched between an older sister (2 years, 3 months older) and a younger brother (2 years, 3 months younger). While I do agree that Kelle Hampton doesn't share all aspects of having a child with Down syndrome, I will say that we love our daughter very much and get much feel our lives are blessed by having her in them. We do not view her as a burden. Her life, and by extension ours, is different than we had planned, but it isn't "worse". Milestones are missed, but when they are attained the celebrating is much grander than with either our "typs". Her speech is harder to decipher, but when she says, "mama, I love you," you better believe I understand and, knowing how much work we out into that, feel the reward to the nth degree. I cannot tell the OP what decision to make. Sometimes I feel we are burdened with too much information. We are robbed of the ability to just live the life we are given because we actually have the option to "decide". We are also bombarded by misinformation, especially from doctors. I'd suggest you check out NDSS or NDSC for accurate information. Old information is scary and limiting. Kids with Ds go to college and live independently. They have jobs other than baggers in the grocery store. Not that any of that is terrible, it's just no longer necessarily accurate. I remember writing to someone years ago who had a wonky prenatal screening. I told her, and I will tell you, I understand where you're coming from. I've been you. I once thought Down syndrome was something to fear. I didn't know what our lives would hold. I thought our eldest was going to have her world rocked. I thought we would have a completely Different life. I thought that because I didn't know; I didn't live it. As someone who is now with a living, breathing person with Ds I can tell you, it isn't scary. I am still me. We are still us. Our family is what we always would be, just with a slight difference. Your kid is the same kid they were yesterday and the same kid they'll be tomorrow and if you chose to continue your pregnancy, you will be fine. You will be awesome! Lastly, please note that those in the disability community prefer people first language. Kids with Ds are people first ~ so not "Down(s) kids". Small change is language, big change in mind set. My friend had a prenatal DX and did not terminate. She went on to adopt domestically. Her blog is Two Blue Eyed Beauties. And now I have to go cook dinner, so I'm sorry if this is disjointed or filled with grammar and spelling errors. [/quote]
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