Reply to The Kids Who Beat Autism: New York Times

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Reply to "The Kids Who Beat Autism: New York Times"

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.[/quote]

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.[/quote]

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread. [/quote]

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.[/quote]

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this. 
[/quote]

I'm curious as to whether you actually read the article.  It specifically addresses the issue of misdiagnosis.  Moreover, the article also addresses the fact that current therapies don't work nearly as well with more than 90 percent of the children diagnosed with autism.  The kids that are "cured" are unfortunately a very very small minority.  Not sure why you are so vehemently opposed to this rare piece of positive news. . . hopefully by studying these kids closely doctors may get clues to help better reach the larger population of kids with autism.  [/quote]

Because she's pissed she spent all the time and money and her career and wasn't able to cure her child. So it's easier to say it can't be done than to acknowledge it may indeed happen for some kids. She's in such a bitter place she can't recognize this might be a steppingstone for all autistic kids. [/quote]

I feel sorry for you because you're hanging onto false hope. After all is said and done, you may realize that this article gave unrealistic hope to the many, many parents whose children did not lose their ASD dx. In the Dr. Copland link provided by the other pp, the only children that make significant progress and lose most of their symptoms are those that have above average IQ, and even then Dr. Copland clearly stated, they do not "lose" their dx. These are a mere 15% of PDD/Aspergers children. Dr. Copland said these 15% will lose their symptoms regardless of therapy. So if your child has an IQ of 100 or over, hang onto that hope that maybe, just maybe, he will lose many of  his symptoms. But what if your child doesn't have an IQ over 100? Do you still want to encourage parents to hang onto that hope? Shame on you. Parents whose children have ASD with an IQ of below 100 should not cling to the hope that their child's symptoms will merely disappear. They need to get their children into an early intervention program as early as age 1.

I have absolutely ZERO regrets  about giving up my career for my child. I would do it again a hundred times over. I'm not bitter at all. If anything, many clinicians would say my child is one of those in that 15% group, but I know my child and know he was always very mildly affected to begin with. My child is highly gifted. But treatments did not make him lose those mild symptoms, they simply manifested themselves differently as he grew older. He is not cured and may never be. He's different and will always be different. His has used his intelligence to cope better, that's all. However, he will need help for many years.  [/quote]

In reading your response, it's easy to see why the one couple moved, kept their child anonymous in the story and they never tell anyone their child ever had autism. Once that label is on, everything is seen through that prism. [/quote]

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