Anonymous wrote:

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Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this.

I'm curious as to whether you actually read the article. It specifically addresses the issue of misdiagnosis. Moreover, the article also addresses the fact that current therapies don't work nearly as well with more than 90 percent of the children diagnosed with autism. The kids that are "cured" are unfortunately a very very small minority. Not sure why you are so vehemently opposed to this rare piece of positive news. . . hopefully by studying these kids closely doctors may get clues to help better reach the larger population of kids with autism.

Because she's pissed she spent all the time and money and her career and wasn't able to cure her child. So it's easier to say it can't be done than to acknowledge it may indeed happen for some kids. She's in such a bitter place she can't recognize this might be a steppingstone for all autistic kids.

I feel sorry for you because you're hanging onto false hope. After all is said and done, you may realize that this article gave unrealistic hope to the many, many parents whose children did not lose their ASD dx. In the Dr. Copland link provided by the other pp, the only children that make significant progress and lose most of their symptoms are those that have above average IQ, and even then Dr. Copland clearly stated, they do not "lose" their dx. These are a mere 15% of PDD/Aspergers children. Dr. Copland said these 15% will lose their symptoms regardless of therapy. So if your child has an IQ of 100 or over, hang onto that hope that maybe, just maybe, he will lose many of his symptoms. But what if your child doesn't have an IQ over 100? Do you still want to encourage parents to hang onto that hope? Shame on you. Parents whose children have ASD with an IQ of below 100 should not cling to the hope that their child's symptoms will merely disappear. They need to get their children into an early intervention program as early as age 1.

I have absolutely ZERO regrets about giving up my career for my child. I would do it again a hundred times over. I'm not bitter at all. If anything, many clinicians would say my child is one of those in that 15% group, but I know my child and know he was always very mildly affected to begin with. My child is highly gifted. But treatments did not make him lose those mild symptoms, they simply manifested themselves differently as he grew older. He is not cured and may never be. He's different and will always be different. His has used his intelligence to cope better, that's all. However, he will need help for many years.

Nice straw man. No one on this thread has made that claim.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

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Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

There are no answers. Just interventions, wild educated guesses and pure luck. She is sad, exhausted and really struggling. Till you have been there, do not judge.

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment. I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle. There is no cure - these kids can function better but they will still have their struggles. Until they find out the individual causes for why, then can never truly cure it. I believe in misdiagnosis as the reason not cure. You cure cancer or another medical issue. Autism is not something your cure.

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)

This is not cancer or some illness. This probably has multiple origins depending on the person. We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. If it is "cured," then that person had something else entirely and never had autism. Autism can never be cured... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for). One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown. This is NOT cancer. This is not an allergy. We don't know what it is and my guess is for many, it is something different. It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above. We just do not know! With some cancer's, they can pinpoint it and fix it. Do not compare the two. That is insulting.

There are respected, mainstream medical professionals who do not agree with you. There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

Name those professionals who say Autism can be cured. Name them now. I will call them.

James Copland
http://www.drcoplan.com/

https://www.rethinkfirst.com/community/news/Story.aspx?ID=1008

Did you view the entire second link? Dr. Copland clearly states that just because many symptoms disappear does not mean the child is cured of ASD. In merely 15% of cases, symptoms do disappear but the child is not cured.

Yes, I've read it. He has a full explanation here:

http://www.psychologytoday.com/blog/making-sense-autistic-spectrum-disorders/201008/017-losing-the-asd-diagnosis-does-not-equal-cur

Quit moving the goal line. First you say that no kid with an autism spectrum disorder can lose their DX. According to you, if they do they were misdiagnosed. Now you say "Well, if they lose their DX, they are still not cured because they have residual symptoms."

Interesting info from the reporter:

http://6thfloor.blogs.nytimes.com/2014/08/04/behind-the-cover-story-ruth-padawer-on-autistic-children-who-shed-their-symptoms/?_php=true&_type=blogs&_r=0

In the article, you mention supposed cures for autism that have been promoted on the Internet — including vitamin shots, nutritional supplements and special diets. What convinced the scientists, and you, that this was different?

"Well, claims that these treatments can “cure” autism or its core symptoms have not been substantiated by rigorous scientific investigations. Perhaps some of these treatments help with secondary symptoms; for example, children with autism may be more troubled by gastrointestinal problems, and maybe some of the alternative approaches help with that. And when someone feels better physically, they’re likely more able to function in other ways, too. But there’s no evidence yet that those alternative approaches treat autism’s core symptoms, the ones defined in the Diagnostic and Statistical Manual of Mental Disorders as the basis for the diagnosis.

Fein’s study didn’t closely examine those alternative treatments, but to the extent she looked at them, she found no association between the use of those alternative treatments and the likelihood of losing autism symptoms. Kids who lost their autism symptoms weren’t any more likely to have used supplements than kids who remained autistic, and frankly, they were less likely to have tried special diets. In other words it seems the treatments don’t correlate with the loss of autism symptoms. By comparison, children who stopped being autistic were far more likely to have received early behavioral therapy than those who remained autistic. Remember, however, that these are just correlations, not proven causalities. This study wasn’t designed to draw conclusions about causality."

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this.

I'm curious as to whether you actually read the article. It specifically addresses the issue of misdiagnosis. Moreover, the article also addresses the fact that current therapies don't work nearly as well with more than 90 percent of the children diagnosed with autism. The kids that are "cured" are unfortunately a very very small minority. Not sure why you are so vehemently opposed to this rare piece of positive news. . . hopefully by studying these kids closely doctors may get clues to help better reach the larger population of kids with autism.

Because she's pissed she spent all the time and money and her career and wasn't able to cure her child. So it's easier to say it can't be done than to acknowledge it may indeed happen for some kids. She's in such a bitter place she can't recognize this might be a steppingstone for all autistic kids.

I feel sorry for you because you're hanging onto false hope. After all is said and done, you may realize that this article gave unrealistic hope to the many, many parents whose children did not lose their ASD dx. In the Dr. Copland link provided by the other pp, the only children that make significant progress and lose most of their symptoms are those that have above average IQ, and even then Dr. Copland clearly stated, they do not "lose" their dx. These are a mere 15% of PDD/Aspergers children. Dr. Copland said these 15% will lose their symptoms regardless of therapy. So if your child has an IQ of 100 or over, hang onto that hope that maybe, just maybe, he will lose many of his symptoms. But what if your child doesn't have an IQ over 100? Do you still want to encourage parents to hang onto that hope? Shame on you. Parents whose children have ASD with an IQ of below 100 should not cling to the hope that their child's symptoms will merely disappear. They need to get their children into an early intervention program as early as age 1.

I have absolutely ZERO regrets about giving up my career for my child. I would do it again a hundred times over. I'm not bitter at all. If anything, many clinicians would say my child is one of those in that 15% group, but I know my child and know he was always very mildly affected to begin with. My child is highly gifted. But treatments did not make him lose those mild symptoms, they simply manifested themselves differently as he grew older. He is not cured and may never be. He's different and will always be different. His has used his intelligence to cope better, that's all. However, he will need help for many years.

In reading your response, it's easy to see why the one couple moved, kept their child anonymous in the story and they never tell anyone their child ever had autism. Once that label is on, everything is seen through that prism.

It is a spectrum so there is a grey area where some symptoms still exist but the patient no longer qualifies for an ASD diagnosis.

It was explained after our ADOS testing and scoring that our child "just" made it into an ASD diagnosis. (And before the crazy MERLD person comes after me about how ADOS does not work evaluating kids with language delays - my kid has no language delays). But the bright line between an ASD diagnosis and "not ASD" has to be drawn somewhere. So it's not surpring that some kids make it over to the non-ASD side.

Is it a "cure"? Guess it depends on what you mean by that... Just b/c a person no longer qualifies for ASD does not mean that they are completely NT (and some ASD traits make for talent in many areas so you may want a little ASD anyway) but it does not mean they are "autistic" either.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this.

I'm curious as to whether you actually read the article. It specifically addresses the issue of misdiagnosis. Moreover, the article also addresses the fact that current therapies don't work nearly as well with more than 90 percent of the children diagnosed with autism. The kids that are "cured" are unfortunately a very very small minority. Not sure why you are so vehemently opposed to this rare piece of positive news. . . hopefully by studying these kids closely doctors may get clues to help better reach the larger population of kids with autism.

Because she's pissed she spent all the time and money and her career and wasn't able to cure her child. So it's easier to say it can't be done than to acknowledge it may indeed happen for some kids. She's in such a bitter place she can't recognize this might be a steppingstone for all autistic kids.

I feel sorry for you because you're hanging onto false hope. After all is said and done, you may realize that this article gave unrealistic hope to the many, many parents whose children did not lose their ASD dx. In the Dr. Copland link provided by the other pp, the only children that make significant progress and lose most of their symptoms are those that have above average IQ, and even then Dr. Copland clearly stated, they do not "lose" their dx. These are a mere 15% of PDD/Aspergers children. Dr. Copland said these 15% will lose their symptoms regardless of therapy. So if your child has an IQ of 100 or over, hang onto that hope that maybe, just maybe, he will lose many of his symptoms. But what if your child doesn't have an IQ over 100? Do you still want to encourage parents to hang onto that hope? Shame on you. Parents whose children have ASD with an IQ of below 100 should not cling to the hope that their child's symptoms will merely disappear. They need to get their children into an early intervention program as early as age 1.

I have absolutely ZERO regrets about giving up my career for my child. I would do it again a hundred times over. I'm not bitter at all. If anything, many clinicians would say my child is one of those in that 15% group, but I know my child and know he was always very mildly affected to begin with. My child is highly gifted. But treatments did not make him lose those mild symptoms, they simply manifested themselves differently as he grew older. He is not cured and may never be. He's different and will always be different. His has used his intelligence to cope better, that's all. However, he will need help for many years.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

There are no answers. Just interventions, wild educated guesses and pure luck. She is sad, exhausted and really struggling. Till you have been there, do not judge.

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment. I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle. There is no cure - these kids can function better but they will still have their struggles. Until they find out the individual causes for why, then can never truly cure it. I believe in misdiagnosis as the reason not cure. You cure cancer or another medical issue. Autism is not something your cure.

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)

This is not cancer or some illness. This probably has multiple origins depending on the person. We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. If it is "cured," then that person had something else entirely and never had autism. Autism can never be cured... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for). One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown. This is NOT cancer. This is not an allergy. We don't know what it is and my guess is for many, it is something different. It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above. We just do not know! With some cancer's, they can pinpoint it and fix it. Do not compare the two. That is insulting.

There are respected, mainstream medical professionals who do not agree with you. There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

Name those professionals who say Autism can be cured. Name them now. I will call them.

James Copland
http://www.drcoplan.com/

https://www.rethinkfirst.com/community/news/Story.aspx?ID=1008

Did you view the entire second link? Dr. Copland clearly states that just because many symptoms disappear does not mean the child is cured of ASD. In merely 15% of cases, symptoms do disappear but the child is not cured.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this.

I'm curious as to whether you actually read the article. It specifically addresses the issue of misdiagnosis. Moreover, the article also addresses the fact that current therapies don't work nearly as well with more than 90 percent of the children diagnosed with autism. The kids that are "cured" are unfortunately a very very small minority. Not sure why you are so vehemently opposed to this rare piece of positive news. . . hopefully by studying these kids closely doctors may get clues to help better reach the larger population of kids with autism.

Because she's pissed she spent all the time and money and her career and wasn't able to cure her child. So it's easier to say it can't be done than to acknowledge it may indeed happen for some kids. She's in such a bitter place she can't recognize this might be a steppingstone for all autistic kids.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It is pretty clear to me that many children diagnosed with autism in their early years do not actually have autism...no wonder it 'goes away' later. Real autism is not curable. With lots of hard work autistic people (high functioning, not severely autistic btw.) can APPEAR as if they don't have autism. But for them that just means constantly working their behind off day in and day out to keep their symptoms in check. It's sad that this kind of 'research' doesn't only give false hope but also may lead to people saying to autistic people 'If only you had worked harder, you'd be fine now'...pretty horrible IMO.

To echo a PP: where does DSM define ASD as incurable? Why do you think that's a defining characteristic of ASD? After all, it's a diagnosis based on symptoms.

Because, if it is curable, then it isn't autism. Look at what autism truly is. Those kids in the article were not cured. It is a misleading title. They have made significant progress but they still have quirks. Anyone cured or outgrows it, especially in the younger years, probably never had it. Many things like MERLD, social communication disorder and others also look and have some of the same features of ASD and are often confused.

My question still stands. DSM and Autism Speaks do not define ASD as incurable. The criteria are behavioral: impairments in communication, social interaction, and restrictive/ repetitive patterns of behavior.

To go from non-verbal, smearing feces on the wall to "having quirks" is cured, or pretty close to it.

Since when do all kids smear feces on the wall and all the ideas that you have about it. My kid is no different from any other child, and if anything may be easier and more well behaved. How do you explain non-verbal kids talking and catching up? Its called a speech delay. Kids who smear feces and have such serious behaviors could also have a mental health or other issue as well. It may be curable but they need to find out where it comes from in order to cure it and target that.

Ok, this is my last response to you; your anger clouds your reading comprehension, and your posts are not worth engaging. Nowhere did I say all ASD kids smear feces! But for the benefit of other posters here are a couple of cases of adults initially diagnosed with severe autism, who are now "cured" (for the purposes of my post, I use "cured" to mean they are well-adjusted, self-sufficient, living independent lives as productive members of the society.)
https://www.youtube.com/watch?v=c6-PwVuYy2Y
https://www.youtube.com/watch?v=T1HQKB2txgY

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

There are no answers. Just interventions, wild educated guesses and pure luck. She is sad, exhausted and really struggling. Till you have been there, do not judge.

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment. I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle. There is no cure - these kids can function better but they will still have their struggles. Until they find out the individual causes for why, then can never truly cure it. I believe in misdiagnosis as the reason not cure. You cure cancer or another medical issue. Autism is not something your cure.

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)

This is not cancer or some illness. This probably has multiple origins depending on the person. We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. If it is "cured," then that person had something else entirely and never had autism. Autism can never be cured... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for). One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown. This is NOT cancer. This is not an allergy. We don't know what it is and my guess is for many, it is something different. It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above. We just do not know! With some cancer's, they can pinpoint it and fix it. Do not compare the two. That is insulting.

There are respected, mainstream medical professionals who do not agree with you. There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

Name those professionals who say Autism can be cured. Name them now. I will call them.

Why don't you start with Catherine Lord and Deborah Fein, autism EXPERTS who did these two separate studies.



http://www.ncbi.nlm.nih.gov/pubmed/23320807

Optimal outcome in individuals with a history of autism.
Fein D1, Barton M, Eigsti IM, Kelley E, Naigles L, Schultz RT, Stevens M, Helt M, Orinstein A, Rosenthal M, Troyb E, Tyson K.
Author information
Abstract
BACKGROUND:

Although autism spectrum disorders (ASDs) are generally considered lifelong disabilities, literature suggests that a minority of individuals with an ASD will lose the diagnosis. However, the existence of this phenomenon, as well as its frequency and interpretation, is still controversial: were they misdiagnosed initially, is this a rare event, did they lose the full diagnosis, but still suffer significant social and communication impairments or did they lose all symptoms of ASD and function socially within the normal range?

METHODS:

The present study documents a group of these optimal outcome individuals (OO group, n=34) by comparing their functioning on standardized measures to age, sex, and nonverbal IQ matched individuals with high-functioning autism (HFA group, n=44) or typical development (TD group, n=34). For this study, 'optimal outcome' requires losing all symptoms of ASD in addition to the diagnosis, and functioning within the nonautistic range of social interaction and communication. Domains explored include language, face recognition, socialization, communication, and autism symptoms.

RESULTS:

Optimal outcome and TD groups' mean scores did not differ on socialization, communication, face recognition, or most language subscales, although three OO individuals showed below-average scores on face recognition. Early in their development, the OO group displayed milder symptoms than the HFA group in the social domain, but had equally severe difficulties with communication and repetitive behaviors.
CONCLUSIONS:

Although possible deficits in more subtle aspects of social interaction or cognition are not ruled out, the results substantiate the possibility of OO from autism spectrum disorders and demonstrate an overall level of functioning within normal limits for this group.


http://weillcornell.org/clord

Catherine Lord, Ph.D. is a licensed clinical psychologist with specialties in diagnosis, social and communication development and intervention in autism spectrum disorders (ASD). She is renowned for her work in longitudinal studies of children with autism as well as for her role in developing the autism diagnostic instruments used in both practice and in research worldwide today. She has also been involved in the development of standardized diagnostic instruments for ASD with colleagues from the United Kingdom and the United States (the Autism Diagnostic Observation Schedule (ADOS) an observational scale; and the Autism Diagnostic Interview – Revised (ADI-R) a parent interview), now considered the gold standard for research diagnoses all over the world.

Dr. Lord completed degrees in psychology at UCLA and Harvard, and a clinical internship at Division TEACCH at the University of North Carolina at Chapel Hill.

Dr. Lord’s work at the Center for Autism and the Developing Brain involves continued research in validity and longitudinal studies, early diagnosis of children with autism, and regression in children with autism and clinical evaluations and diagnoses of children and adults who may have autism.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this.

I'm curious as to whether you actually read the article. It specifically addresses the issue of misdiagnosis. Moreover, the article also addresses the fact that current therapies don't work nearly as well with more than 90 percent of the children diagnosed with autism. The kids that are "cured" are unfortunately a very very small minority. Not sure why you are so vehemently opposed to this rare piece of positive news. . . hopefully by studying these kids closely doctors may get clues to help better reach the larger population of kids with autism.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

There are no answers. Just interventions, wild educated guesses and pure luck. She is sad, exhausted and really struggling. Till you have been there, do not judge.

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment. I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle. There is no cure - these kids can function better but they will still have their struggles. Until they find out the individual causes for why, then can never truly cure it. I believe in misdiagnosis as the reason not cure. You cure cancer or another medical issue. Autism is not something your cure.

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)

This is not cancer or some illness. This probably has multiple origins depending on the person. We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. If it is "cured," then that person had something else entirely and never had autism. Autism can never be cured... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for). One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown. This is NOT cancer. This is not an allergy. We don't know what it is and my guess is for many, it is something different. It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above. We just do not know! With some cancer's, they can pinpoint it and fix it. Do not compare the two. That is insulting.

There are respected, mainstream medical professionals who do not agree with you. There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

Name those professionals who say Autism can be cured. Name them now. I will call them.

James Copland
http://www.drcoplan.com/

https://www.rethinkfirst.com/community/news/Story.aspx?ID=1008

This is a less standard treatment than what Copland would recommend, but Dr. Chez is running a study that is using cord blood to treat autism.

Michael Chez
http://www.sutterhealth.org/dr-michael-chez.html

http://www.foxnews.com/health/2012/10/24/clinical-trial-attempts-to-cure-autism-with-cord-blood/

Study link:
http://clinicaltrials.gov/show/NCT01638819

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

There are no answers. Just interventions, wild educated guesses and pure luck. She is sad, exhausted and really struggling. Till you have been there, do not judge.

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment. I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle. There is no cure - these kids can function better but they will still have their struggles. Until they find out the individual causes for why, then can never truly cure it. I believe in misdiagnosis as the reason not cure. You cure cancer or another medical issue. Autism is not something your cure.

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)

This is not cancer or some illness. This probably has multiple origins depending on the person. We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. If it is "cured," then that person had something else entirely and never had autism. Autism can never be cured... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for). One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown. This is NOT cancer. This is not an allergy. We don't know what it is and my guess is for many, it is something different. It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above. We just do not know! With some cancer's, they can pinpoint it and fix it. Do not compare the two. That is insulting.

There are respected, mainstream medical professionals who do not agree with you. There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

Name those professionals who say Autism can be cured. Name them now. I will call them.

James Copland
http://www.drcoplan.com/

https://www.rethinkfirst.com/community/news/Story.aspx?ID=1008

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

There are no answers. Just interventions, wild educated guesses and pure luck. She is sad, exhausted and really struggling. Till you have been there, do not judge.

There are no answers NOW. We hope -- I see you are without hope but others still have hope -- that there will be answers, cures and ways to prevent it in the future. That's what the article was about -- that there may be cures.

My child happens to be one of the ones breaking through and I posted that so I do not understand your comment. I am very hopeful my child will be ok but as we go to services daily, I can see the wide variety of kids and how they and their families struggle. There is no cure - these kids can function better but they will still have their struggles. Until they find out the individual causes for why, then can never truly cure it. I believe in misdiagnosis as the reason not cure. You cure cancer or another medical issue. Autism is not something your cure.

How can you say a thing like that? If they don't even know what causes it -- and something obviously causes it -- then how can you be so determined that there is no cure? There is a cure. We need to find it. (they didn't used to cure cancer or other medical issues either -- but thanks to research, now we can cure some cancers and lots of other medical conditions.)

This is not cancer or some illness. This probably has multiple origins depending on the person. We do not have the technology to identify it and while we can improve the quality of some lives, we can never cure it. If it is "cured," then that person had something else entirely and never had autism. Autism can never be cured... just the quality of life improved with early and continuing intervention (which our society often does not even want to pay for). One day there may be a "cure" but as of today, we have a bunch of studies with educated guesses and wishful thinking and a group of us parents struggling to do the very best for our kids and hoping for the best possible outcome within this unknown. This is NOT cancer. This is not an allergy. We don't know what it is and my guess is for many, it is something different. It could be a birth defect, it could be a nutritional issue, it could be a birth injury, it could be a genetic issue or it could be none of the above. We just do not know! With some cancer's, they can pinpoint it and fix it. Do not compare the two. That is insulting.

There are respected, mainstream medical professionals who do not agree with you. There are kids who lose their DX and who improve enough that they are for all intents and purposes "cured."

We know so little about autism that to say that no one ever gets cured is ludicrous. People get better. Neuroplasticity is wonderful thing. Some people beat it.

Name those professionals who say Autism can be cured. Name them now. I will call them.

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Kids can't "lose" an autism diagnosis. That's sort of like saying in the middle of a gestational period, that a woman is no longer pregnant. If they no longer had a diagnosis of autism, it's likely they were misdiagnosed to begin with.

Children can show very autistic like behavior but not have full blown autism.

Stupid, stupid researchers out there and doctors diagnosing our children.

And WHO are you PP? People figure out medical things all the time. Jeez, there is no reason to believe there will be no progress in autism. I'm glad there are people out there with open, inquisitive minds willing to work on things like this.

Who am I? I'm a parent of an autistic child who has probably ever therapy known from the age of two on. I left my legal career to do nothing but help my child and I left no stone unturned. My child was very high functioning to begin with and, despite all efforts, we see very little difference. My husband is a doctor who sees children with ASD all the time also. I never stated there would no progress in autism, simply that progress will not be enough to take you out of the diagnosis. It will not. So fuck you for your attitude and ignorance. When you have tried every known therapy or treatment, then write on this thread.

Just because you have an autistic child does not mean you have a crystal ball. Thank goodness your negative attitude will not stop others from searching for answers.

My "negative" attitude? Hon, if I was negative I would not have tried every treatment. And if you or anyone RELIES on my perspective to the point where they fail to seek treatment, they are ignorant parents. Autism can not be cured. If a child is cured, he had challenges but it was not a trueASD dc to start with. Our doctors and researchers are changing the criteria for the dx. That should tell you they still don't know enough about this.