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[quote=Anonymous][quote=Anonymous]OP, can you enroll your daughter in a private school, even one for special needs kids? It might be usefeul, as you and she think about college, to see how she manages high school. Unless her illness just makes it impossible I think it might really help her get a betetr sense of what she wants to do.
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I wish.  But she is in the hospital just too much to go to school. it does not work.  We've tried...for years.  She misses way too much and then can't catch up. I've posted about this before, as I have tried to fight to get her supports for years (recorded classes when she is out etc) but we just failed to get her any kind of support that makes it possible to juggle school and hospitalizations.  And private schools have rejected US...saying they don't have resources to support a sick student.  They aren't "built" for it, is what they say over and over.

Tons of families in our hospital ward are in the same boat.  They go two ways: either their kids go through school failing miserably, or they pull the kids out and homeschool or do online.  And frankly, which way they go really seems to depend on the family.  My family has enough means for me to be able to focus on my kid's academic success, we have health insurance, etc. It is incredibly hard, but at least we can manage it.
A family we spend a lot of time in the hospital with has a husband who works for the state on highway jobs (like manual labor kind of work, maybe paving or something?) and the wife is a housekeeper at a hotel. They speak broken English and communicating with school is a struggle. They have 4 other kids, and their focus is actually surviving day to day. That young boy just gets pushed ahead every single year, with D's and F's and there's no one with the resources to fight for him.

But don't get me started on that soap box about how school systems are failing these kids.  LOL I will never shut up about that![/quote]

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