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Kids With Special Needs and Disabilities
Reply to "does this sound like regressive autism? is it time to seek another ASD evaluation?"
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[quote=Anonymous]OP, Your child sounds a lot like mine. Sometimes it is hard to get across in a post why behavior is concerning because everything can be normal for a three-year-old--it depends on amount of time of difficult behavior, the degree, etc. Maybe you haven't expressed these clearly but you know that something is off. I know that I was very concerned at that age. He was actually a super easy baby, met milestones, incredibly verbal, happy, and then suddenly around 3-4 things just seemed so complicated, he seemed so self-absorbed, very rigid and controlling, very attached to his "scripts" from books/cartoons, incredibly attached to his routine, unable to handle any change, sensory sensitivities, etc. etc. He absolutely didn't hear you, me, anything when he was absorbed in any activity, his memory was unreal, he was defiant, irritable, incredibly physically bold, super outgoing and then super withdrawn. Great talker, terrible conversationalist. He also had GI issues, eczema. I could go on and on. I have other children--this one was difficult in a way no other child I know has been. we looked into every physical issue you can imagine and even those that were present (like mild food allergies) changed nothing when resolved. I will say that absolutely no one we saw for evaluations dismissed our concerns--my husband always expected they would. It was weird: on the one hand, I would have loved it if they had (of course!) and on the other I didfeel depressingly smug about the confirmation that I wasn't crazy. Our clinicians found his behavior and his apparent suffering concerning. My son never got an autism diagnosis because he had certain "strengths" that ruled it out. He was initially diagnosed with Generalized Anxiety and a few years later with ADHD as well. To add to the mix, he is also very bright, very sensitive, and has an LD. He is 11 now and these diagnoses, in our case, were absolutely correct. My son is doing so, so well now, because we have learned how to manage his challenges and support his strengths. He is a happy boy--it fills my heart to be able to say that. If I can give a little advice, try to find a therapist who can help you. We had an absolutely wonderful child psychologist, who made a word of difference in our lives. She taught us so many essential parenting strategies and truly helped our son. Play therapy was great for him and I really believe could help your child as well. We did a million other interventions (OT, PT, karate, gymnastics and so on) that may or may not have also helped him but it was so tremendously reassuring to have someone guiding us. The other small piece of advice I have is to try to accept that there may not be one answer that is just out of reach. Maybe you will get one, eventually, or maybe you won't. If your child is struggling, help him in the challenging areas. I think being proactive about interventions or support is more important than having an "answer."[/quote]
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