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[quote=Anonymous][quote=Anonymous][quote=Anonymous]I think a lot of people are assuming your mom might have a year or 2 left and that you are wealthy enough for sayings like "you will never wish you had worked more. You will wish you had more time with your mom." Be prepared that they can live a very long time in an ever-worsening state and there could be some scary personality changes.[/quote]

This is the OP.  I love my mom and even though she isn’t there some of the time some of the time she is.  That is worth it enough for me.  I’m not wealthy but she has the means to pay for her care so I don’t have to shoulder that burden.

For the person asking why I’m bothering.  She’s my mom and she doesn’t have anyone else to take care of her.  My dad is gone and my brother is on the other side of the country.  I can’t just let her languish alone.  Even though this situation is just horrible for me it’s so much worse for her.  It took me a long time to come to terms with the changes but now I can look at her dementia like any other disease- it isn’t her fault, if she had a choice this would be the last thing she’d choose for herself and for me, she doesn’t want to be a burden but man this disease requires a lot of care.

Her personality changes started awhile back.  I’d say she’s stage 5 creeping quickly into stage 6.  And as of this morning when I came over to help her prep for a PT eval she was naked on the floor and couldn’t tell anyone how she got there.  We got her onto the couch where she fell asleep and as soon as she wakes I know I’m going to have to call an ambulance- prior to falling asleep she wanted to use the rest room but was in too much pain to stand up. Pretty sure she fell and hurt herself but I’m going to let her sleep because I think it’s going to be a very long day or two or three.  So this is my life for now.

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And OP, this too shall pass. Cherish the time with your mom. Be grateful that you had a choice and could afford to choose the path that is right for you any your mom at this time.  Sending hugs your way and a prayer from a stranger![/quote]

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