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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Op here. Thanks for the replies. I’m not looking for help with comprehensive diagnostic or long term behavioral techniques. We have done all the things. We have an epileptologist, neuropsychologist, developmental pediatrician, geneticist, and all the therapies.

I’m just trying to figure out how to survive the next few days.

I’ve severely Injured my back from carrying/wrangling/wrestling him and now can barely walk, and DH is completely depleted. I’m feeling really worried about how to survive the day.[/quote]

We have all the things too, OP with my very very similar child. When things are this bad [b]we need to revisit meds with the epileptologist.[/b] Take videos, let them know what you’re seeing, and email them. Directly. [/quote]

100%  I am sorry OP, I don't think this will be solved in the next few days.  Take care of yourself, and make some appointments.

Do you keep an epilepsy diary?  Moods, medication time, meals, amount of sleep, etc. All very helpful data used to by your epiletologist. [/quote]

Is the neurologist also treating the ADHD? 
[/quote]

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