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[quote=Anonymous]OP, blessings to you, i have not gone through this with a child but have had to do so for older relatives and have a lot of doctors in my family, so just some thoughts about navigating the hospital stay.

one thing I would note is that you want to time your changes so they are NOT right at shift change (often 7 am or 7 pm). Whoever was on should stay through the shift change and then talk with the doctor/nurse when they round, to convey any information from the prior shift and ask any questions.

Figure out beforehand with DH a common note taking app or notebook or something that you will use and figure out common vocabulary you might need or common questions. Write everything down or use a recording device and then play back to jot down. It is hard to listen and write notes if you are just one person--my DH and I used to tag team, one person asking, one person writing. So think about how you can get info down accurately and still listen and ask questions. You should both write things down. Stress and sleep deprivation will make it hard to remember things. Plus it gives you a very structured way to manage information, even if it is hard/scary information, and it will all be in one place. If DC has problems you can jot down what you notice and what time, it will help if you have to report back to doctor or nurse later.

if you have time beforehand, maybe work with your child to identify a special small toy, maybe something that plays a song that you sing with him/to him? Then you can tell him in the hospital when he misses you and wishes you were there he can press that? I think there might be toys that will record special sounds, so you can record a song.or DH can do it on his phone.

download some meditation apps. Sometimes it's just too hard to sleep because of all the stress. try a few meditations when you get back to your hotel, even if you can't sleep, your body needs rest and your kid needs you to be strong for him.  So lie down and close your eyes even though you know you will not be able to sleep.

Praying for you and your family as you go through this [/quote]

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