Reply to Chemo patient off ventilator, but talking gibberish

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Is the parent not with their child 24/7? Can they not ask to speak with the doctor in charge?

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Parents are divorced, each is there half the time but other parent is weird and won't collaborate or share information.  Hospital is in NY too and said certain records cannot be disclosed due to child privacy laws for children ages 9+!!!!  Can.you.imagine. having a child being treated for leukemia, or in ICU on a ventilator suddenly and hearing that?  I think a doctor passing through is rare.  This hospital seems like hell.[/quote]

Doctors usually round once a day. The nurses are your point of contact. A PICU patient either has a dedicated nurse or a nurse with a 1:2 ratio and should be able to convey info to the parents. Also they need to coparent better, I have no sympathy for them refusing to even be at the bedside at the same time[/quote]

This. The parent needs to speak to the RN either in person or they can call the unit and ask to speak to the child's RN - tell the RN to page the physician and let them know that the parent is trying to get ahold of the MD to discuss their child's case. If in person, even if you missed MD rounds, you can request the MD to the patient's bedside through the RN or even the unit clerk. However, agree, the parents need to figure out a way to get along. The physician team will NOT want to have to repeat everything they say to two different parents, nor do they have the time for this, frankly. [/quote]

Exactly. The physicians are not going to hold 2 separate care plan meetings for 2 parents who don’t want to be in the same room. Your friend and her partner are going to need to work things out here. [/quote]

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