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[quote=Anonymous]I only read the first few pages, but your experience sounds similar to a friend of mine.

My DS is on growth hormones. The ped didn’t see the need to refer him, but after multiple years of her requesting check ups every 6 months because she was concerned with DS’s growth at his annual appts, I asked about it at 12 and decided to take him on my own when he was 13.

First appt was labs, bone xray and a physical exam. Labs weren’t normal, xray showed a year+ behind his chronological age, can’t remember the Tanner #.

Next step was a pituitary stimulation test. Two IVs, multiple hours, not easy. DS failed the test.

Third test was an MRI with contrast to make sure the pituitary was structurally sound/no tumor. Gratefully his pituitary looks fine.

Ped Endo said based on the outcome of the battery of test he was eligible for hormone treatment (fyi, the full test battery took 6mths), but that it was also possible DS was just a late bloomer. The whole process was DS’s choice and he wanted to initiate treatment. I give him 2 injections weekly and he gets monitoring blood work/physical exam every 3 months. Not sure how long he will be on them.

My friend took her son of a similar age/height (although he was at a healthier weight) when he was closer to 14 and his bloodwork was normal, his bone age matched his chronological age, and his Tanner # was normal. The Endo told them that growth hormones only work when there is a delay or they are indicated earlier. Once puberty is too far along they are not impactful. Idk, if a 2nd doctor would agree, but last she said they were not pursuing it further. [/quote]

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