Reply to Does anyone feel like the current DSM needs urgent updating?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]It bothers me because I feel like lately the self-diagnosed or late-diagnosed people, especially teens and people in their early 20s, are monopolizing the conversation. People who were able to access the mainstream curriculum in schools, who are verbal/speaking, who maybe have some deficits in communication and/or “restricted interests,” but who are able to live a pretty “normal” life. And then people who have more severe symptoms, higher support needs, who were diagnosed at an early age, are non -speaking, have outbursts/tantrums etc. are overlooked. I mean I see these people who are like, I can’t deal with loud noises/outbursts in public because of my autism … but my DS who is now 4 and who was diagnosed with autism at 2 is prone to randomly yelping and screaming in public just because that’s something he does … so these people are autistic out here saying they can’t stand other autistic people? It doesn’t sit right with me or with a lot of other parents of higher support needs kids. [/quote]

80% of adults who are identified with Autism have either attempted suicide, engaged in self-harm or experienced other severe mental illness. I agree that there should be different terms, but as a mother of a nine year old girl who was a rock star masker until she landed in the hospital four times in one year from the overload required by constant masking.  I think you are misunderstanding the gravity of what people incorrectly refer to as "high functioning autism." [/quote]

This post is a bit nebulous. Do you have a reference for that statistic? (seems really high unless...  is this 80% of "high functioning" (how is that defined)? Severe mental illness because of *masking* or because of natural occurring comorbidities (because that would not really be a counter to the PP...)? does "self-harm" include the kind of self harm that severe autistic persons often engage in (again... not really a counter to the PP if that's the case)? [/quote]

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