Reply to Cooking the books: Now 1 in 45 said to have autism in the U.S.

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Reply to "Cooking the books: Now 1 in 45 said to have autism in the U.S."

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]My kid is mis-diagnosed.  Kids should be able to get services if they need them without the diagnosis, but they don't.  The diagnosis is very subjective.  [/quote]

Your child can always get a developmental delay label for an IEP when young.  My DS who already had an Asperger's diagnosis got his IEP under "developmental delays" until he was in K.[/quote]

Ok, but we don't have an IEP, so that doesn't work for us.  We are doing all services privately.[/quote]

But the point is that young children usually get an IEP under "developmental delay" not "autism" so a diagnosis of autism is not necessary to get free services.[/quote]

But, you are missing the point.  Not everyone gets "free" services or wants them through the school system.  Our insurance will pay for a variety of diagnosis but we are stuck with a developmental ped who says it is autism (now autism by history as there are no signs).  We cannot get rid of the label.  Other regular docs have tried as they disagree with how he is using the diagnosis. [/quote]

Why don't you change doctors?  We did.  I fired our dev ped over something a lot less than a wrong diagnosis.  It's easy.[/quote]

No its not easy.  We are in managed care and we can get an outside 2nd opinion but we are stuck with this developmental ped.  How the system works is he is the only one who can get us services.  The regular ped. tried to get us services and its always denied.  We have several 2nd opinions and all disagree but ultimately he has chosen autism, refuses to remove it and we are stuck.  Its a nightmare as when we go to new doctors, they all initially treat my child like he is not verbal/cannot understand anything till they realize something is not right, then I get the comments of what is going on?[/quote]

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