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Kids With Special Needs and Disabilities
Reply to "I feel like my kid is a full-time job"
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[quote=Anonymous][quote=Anonymous][quote=Anonymous]Well, maybe because I've been at this for a long time, but I feel like it comes in fits and spurts. Shuttling your SN child to appointments is the same time commitment as shuttling your NT kids to activities. Researching camps and activities is time consuming for all of your kids. IEPs are once a year. I have more meetings a year than most, but really they add up to about once a week at school before I head off to work. Research is intense periodically, but once your child is diagnosed and you've gained an understanding of his or her issues, research is an occasional issue. So it's different and involves more than my NT kids. And on some days it feels heavy, but that's probably worry. But, most of the time, I don't feel like I devote an overwhelming amount of time.[/quote] Lucky you. I realize my kid won't be headed for college, will struggle to learn basic activities of daily living, and I don't know WTF I'm going to do long term in terms of housing and occupation even if it's volunteer after I'm dead.[/quote] It sounds like your child has more serious SN than mine. The thread started about moderate SN, which is where my son fits. There is no college in his future - vo tech is our dream come true and we will know shortly if that is to be. Basic ADLs are fine but life skills are a challenge. Still, I find that my bright NT child is very time consuming as well as is my average NT child. My point was not to be insensitive, but rather to acknowledge that I don't feel that the time I spend on helping my SN son to reach his potential and to arrange for his care is so grossly out of line with the amount of time I spend on my other kids. Is is more? Yes. But it isn't all I do. In fact on a day to day basis, my bright NT child is my time suck. [/quote]
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