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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Look into Ehlers Danlos. She may need strength training to help with her coordination.[/quote]

+1. Yep, the hating sitting in chairs and always having legs up is me exactly and was a red flag in the OP. I have hypermobile hips due to hEDS and find sitting in chairs and with feet flat on the floor very physically uncomfortable. That plus the knock knee (which can be due to hypermobility) and clumsy are all very common signs of hypermobility. Does she seem "double jointed" or extra flexible in her hands and wrists, OP? This is a quick and easy test for hypermobility in joints (I had all of these as a teen, and have all still except where repeated injuries have stiffened the joint): https://www.ehlers-danlos.com/assessing-joint-hypermobility/

All of that to say, definitely ask specifically about hypermobility at her next appointment. That can cause injuries and other health issues (ahem, uterine prolapse) in the future. Otherwise, leave the poor girl alone. Tall girls are FABULOUS and she may have physical reasons why she's less athletic. She sounds like a great kid and perfectly normal developmentally.[/quote]
ED comes with a whole set of concerns. There is a genetic test for diagnosis. It is a cheek swab. This is the sort of thing you want to rule out or in, as there can be heart involvement, too. Op, can you speak on these concerns and on scoliosis evaluation? Your dd may very well have a connective tissue disorder.[/quote]

There is no genetic test for hEDS. You’re thinking of the vascular or classic variants that can be linked to specific genes. I have some symptoms of vEDS, so had the genetic testing, but didn’t test positive for the vEDS or other specific mutations so only met the diagnostic criteria for hEDS.
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Sorry to say this, but your heds sounds like "fibromyalgia" and the like. Even if heds is legit, the heart can be affected and you should get an ecg and avoid high impact exercise.[/quote]

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