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[quote=Anonymous][quote=Anonymous][quote=Anonymous]On a related note: Please stop trying to get an Rx for this to take "just in case."  I have lupus and had to scramble all weekend to get another month's supply.  After eight attempts, I found a pharmacy that was refusing to fill prescriptions for anyone who hadn't already been on it before last week.  The pharmacist told me that a dentist had attempted to prescribe it for all of his friends and family. [b]Lupus patients CANNOT suddenly discontinue their meds.[/b]  [/quote]

This is exactly what I was saying earlier in this thread. People taking it because it might work will be causing people who definitely need it to go without. People need to stop being so horribly selfish. I'm glad you got your meds. [/quote]

I’m the Pp suggesting that people opt in. It is horribly selfish to create an unnecessary risk for you, and others with the condition. I have a cousin very young with lupus.

This is something that pharma can rapidly ramp up production for. We can cut through red tape in some areas pretty easily to get things manufactured stateside. I’m frustrated that the politics at play are (as usual) getting in the way of practical solutions. Much of our manufacturing is done by batch doses of ingredients in machines, not people mixing up a concoction of Rx bottle by bottle. It’s not a human bodied compound pharmacy that would have to get these out there.

I’m glad you got your Rx too, and hope official guidance goes out to prioritize patients like you and so many others. Best wishes, PP.[/quote]

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