Reply to Eric Dane, dead at 53

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.

https://archive.ph/oOgsX[/quote]

She wanted at home 7x24 nursing care. If that’s what he needed why wasn’t he placed in a nursing home? Expensive but cheaper than at home care. Or why not placed in hospice? Most hospice is no cost to the patient or family.[/quote]

People with ALS do not go on ventilators so they can have the quality of life you have in a nursing home. They want to be with loved ones—often, seeing their own kids grow up.

I am not sure hospice would take a patient being actively ventilated, either. They might take someone who had decided to shut the vent off (which a person of sound mind, as Dane was, would have had every right to do—just as it seems he got to turn down the vent in the first place).

The bottom line is that the funding source for both options you mention is Medicaid, and there were too many assets/too much income, too proximate to the need for care, for them to qualify for it.[/quote]

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