Anonymous wrote:Anonymous wrote:This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.
https://archive.ph/oOgsX
She wanted at home 7x24 nursing care. If that’s what he needed why wasn’t he placed in a nursing home? Expensive but cheaper than at home care. Or why not placed in hospice? Most hospice is no cost to the patient or family.
Anonymous wrote:My only personal experience with ALS was my neighbor's husband being diagnosed. Our kids had grown up together in the same schools, same school bus etc.
When he reached the point of having a hospital bed in the day room and daily hospice, my friend told me he asked to be let go. She told me he wanted to go. "I can't even scratch my own nose" was something she told me he murmured.
So they both quietly told hospice and they upped his morphine and then he was gone.
Her mother moved in and her sons have now never left, I took 2 of her cats that she couldn't manage anymore (having to go back to work) who fought with her mother's little dog.
It was a while ago now, 2018, but I'm now older than when he passed in hospice and always think why do some evil people stay forever and good people who have so many people love them have to leave so soon.
Anonymous wrote:Anonymous wrote:This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.
https://archive.ph/oOgsX
She wanted at home 7x24 nursing care. If that’s what he needed why wasn’t he placed in a nursing home? Expensive but cheaper than at home care. Or why not placed in hospice? Most hospice is no cost to the patient or family.
Anonymous wrote:Anonymous wrote:This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.
https://archive.ph/oOgsX
She wanted at home 7x24 nursing care. If that’s what he needed why wasn’t he placed in a nursing home? Expensive but cheaper than at home care. Or why not placed in hospice? Most hospice is no cost to the patient or family.
Anonymous wrote:This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.
https://archive.ph/oOgsX
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Is it possible he took his life earlier? Usually life expectancy is 3-4 years from diagnosis.
It appears that he decided against a ventilator. That is what makes 3-4 years possible. But not everyone wants to have that experience of the end.
I don't think the 24/7 care he would have needed for that would have been covered by insurance. And his wife looked completely worn out. I think people start to worry about the financial and emotional impact on their families for these kinds of decisions. Yeah, he could have afforded it, but he probably wanted to preserve the bulk of his wealth for his kids. This is just speculation but honestly I don't think he would mind people discussing it. He spent the last year of his life advocating for more funding for this disease and bravely giving people a glimpse of the toll it takes. So many doctors keep insisting it's just underfunded, and that their are plenty of ideas for more research. I really hope they at least get a real treatment for ALS sometime soon. They say the only drug out there extends life by a few months, if that.
+1. The GFM seemed to be started by friends and I think it’s sad to take away from the conversation about how bravely Eric Dane fought a horrible disease, and how he used his platform to raise awareness of it. RIP.
I agree and would go as far as to say, if you could do the same and earn millions of dollars for your family by simply posting a link, you would honestly be irresponsible not to swallow your pride and do it. Nobody knows what the future brings and pretty much everyone would be wise to take every financial, opportunity they can get.
Many people on this site have the good fortune to have more in their retirement accounts than the GFM amounts in question. And yet, they continue to work and sock more $ away. Funny how they judge others for wanting more money but not themselves.
The first is called grift. The second is called being responsible.
Anonymous wrote:Anonymous wrote:Anonymous wrote:This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.
https://archive.ph/oOgsX
I tried to access this article but it won’t let me.
Maybe try again? It worked for me (on Chrome). PP that was a great article, thank you for posting.
Anonymous wrote:Anonymous wrote:This is an essay by Rebecca published on December 29, 2025. It is long and worth reading. She talks about their complicated relationship, how they have handled things with their daughters, the reality of managing Eric's care, and she really paints a picture of their reality.
https://archive.ph/oOgsX
I tried to access this article but it won’t let me.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Is it possible he took his life earlier? Usually life expectancy is 3-4 years from diagnosis.
It appears that he decided against a ventilator. That is what makes 3-4 years possible. But not everyone wants to have that experience of the end.
I don't think the 24/7 care he would have needed for that would have been covered by insurance. And his wife looked completely worn out. I think people start to worry about the financial and emotional impact on their families for these kinds of decisions. Yeah, he could have afforded it, but he probably wanted to preserve the bulk of his wealth for his kids. This is just speculation but honestly I don't think he would mind people discussing it. He spent the last year of his life advocating for more funding for this disease and bravely giving people a glimpse of the toll it takes. So many doctors keep insisting it's just underfunded, and that their are plenty of ideas for more research. I really hope they at least get a real treatment for ALS sometime soon. They say the only drug out there extends life by a few months, if that.
+1. The GFM seemed to be started by friends and I think it’s sad to take away from the conversation about how bravely Eric Dane fought a horrible disease, and how he used his platform to raise awareness of it. RIP.
I agree and would go as far as to say, if you could do the same and earn millions of dollars for your family by simply posting a link, you would honestly be irresponsible not to swallow your pride and do it. Nobody knows what the future brings and pretty much everyone would be wise to take every financial, opportunity they can get.
Many people on this site have the good fortune to have more in their retirement accounts than the GFM amounts in question. And yet, they continue to work and sock more $ away. Funny how they judge others for wanting more money but not themselves.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Is it possible he took his life earlier? Usually life expectancy is 3-4 years from diagnosis.
It appears that he decided against a ventilator. That is what makes 3-4 years possible. But not everyone wants to have that experience of the end.
I don't think the 24/7 care he would have needed for that would have been covered by insurance. And his wife looked completely worn out. I think people start to worry about the financial and emotional impact on their families for these kinds of decisions. Yeah, he could have afforded it, but he probably wanted to preserve the bulk of his wealth for his kids. This is just speculation but honestly I don't think he would mind people discussing it. He spent the last year of his life advocating for more funding for this disease and bravely giving people a glimpse of the toll it takes. So many doctors keep insisting it's just underfunded, and that their are plenty of ideas for more research. I really hope they at least get a real treatment for ALS sometime soon. They say the only drug out there extends life by a few months, if that.
+1. The GFM seemed to be started by friends and I think it’s sad to take away from the conversation about how bravely Eric Dane fought a horrible disease, and how he used his platform to raise awareness of it. RIP.
I agree and would go as far as to say, if you could do the same and earn millions of dollars for your family by simply posting a link, you would honestly be irresponsible not to swallow your pride and do it. Nobody knows what the future brings and pretty much everyone would be wise to take every financial, opportunity they can get.
Many people on this site have the good fortune to have more in their retirement accounts than the GFM amounts in question. And yet, they continue to work and sock more $ away. Funny how they judge others for wanting more money but not themselves.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Is it possible he took his life earlier? Usually life expectancy is 3-4 years from diagnosis.
It appears that he decided against a ventilator. That is what makes 3-4 years possible. But not everyone wants to have that experience of the end.
I don't think the 24/7 care he would have needed for that would have been covered by insurance. And his wife looked completely worn out. I think people start to worry about the financial and emotional impact on their families for these kinds of decisions. Yeah, he could have afforded it, but he probably wanted to preserve the bulk of his wealth for his kids. This is just speculation but honestly I don't think he would mind people discussing it. He spent the last year of his life advocating for more funding for this disease and bravely giving people a glimpse of the toll it takes. So many doctors keep insisting it's just underfunded, and that their are plenty of ideas for more research. I really hope they at least get a real treatment for ALS sometime soon. They say the only drug out there extends life by a few months, if that.
+1. The GFM seemed to be started by friends and I think it’s sad to take away from the conversation about how bravely Eric Dane fought a horrible disease, and how he used his platform to raise awareness of it. RIP.
Anonymous wrote:Anonymous wrote:Anonymous wrote:Is it possible he took his life earlier? Usually life expectancy is 3-4 years from diagnosis.
It appears that he decided against a ventilator. That is what makes 3-4 years possible. But not everyone wants to have that experience of the end.
How do you know this?