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Reply to "s/o - Aborting because a child is "disabled""
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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]To the PP, are you in DC? If so, find out if your kids can qualify for Katie Beckett Health Care Waiver. Big hugs, from another Mom with almost your exact same life. xxoo[/quote] Thanks but we're in NOVA. It's really frustrating when people say that having an SN child as bad as you think and there are resources out there to assist. There aren't. Those people are all about pregnancy and not about day-to-day life. The two organizations posters provided links to ( http://jillshouse.org/ and http://www.hopeinnova.org/ ) don't provide the kind of support I posted about needing. HOPE in Nova is all about 'crisis pregnancy' and Jill's House only accepts kids starting at age 6 and there's still a cost to the parents - and I also have one 'normal' child. It would be nice to be able to give her more time and to have money for her to do classes like ballet. I forgot to include the cost of relationship counseling for DH and I. Having SN kids has really put a strain on our relationship. I should just walk away from this thread.[/quote] PP, I am so sorry. The people on this thread either don't have SN kids or have plenty of resources and money to hire other people to deal with all that their SN child needs. Many have theirs in a community home, that they visit oh maybe once a week. Nice. These people want to judge, but have truly never lived a day in you life. Fuck them! PP, I am the one who suggested you look into Katie Beckett waiver. There should be comparable health care waivers available for you in VA. Do you know any social workers who may be able to direct you to some resources? What about your primary care physician? I know that Senator Jim Webb is working hard to help disabled children and their families, including extending eligibility for disabled children for Medicaid. I agree that the two resources previously linked in this thread are not what you need... but there are services that can really make a difference in your life - financially and practically speaking. I'll see if I can come with more ideas... stay tuned. [/quote][/quote]
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