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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Looks like Franny is now 32 and on meds for bipolar and pain.  So she's got more than mosaic DS going on.
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Neither none nor all of which means her life is over.  People just cast disabled people aside, and don't allow them to try or preserve.  It makes me so angry when disabled people are told there are too many limitations , or we don't want her to be disappointed.   Plenty of people with bipolar and pain meds lead productive and rewarding lives.  granny is just treated like a maid "because that's all she can do".  How would anyone really know?  Her disability could help pay for great programs, therapies, an apartment.... but that would mean her mother couldn't get her hands on it.  Her mom thought it was ok for Franny  to have kids, but she can't go to college?  F that. [/quote]

I agree with you and I think it's a shame that Franny wasn't encouraged to do more with her life.  But we don't know how much the school tried to help and we don't know if Franny decided to do her own thing - or what exactly happened.  People with DS have their own personalities, too.  She may have wanted to fall in love, get married and have kids but the romance part of it didn't work out.

We don't know what happened.  Does the article say when Franny became disabled?  I believe it says that her mom became disabled due to a work injury after Franny was already disabled.  And then the twins were initially receiving disability as babies because they were born prematurely.  These folks have had some obstacles to overcome even if they could have done things differently.[/quote]

She has Down's syndrome - she was disabled at birth.
She sounds high functioning enough to get a job - but it would be a job where she is paid less than minimum wage so that she can receive her disability payments. The job would just be to give her a social life so that her life extends beyond sitting at home all day. No one would hire her to do real paid work.
Downs Syndrome people also have many medical concerns so she needs Medicaid.

Her mother doesn't sound terribly competent to be her guardian given that she has no job and has kids that she cannot care for.[/quote]

Franny has mosaic DS which is a milder form of DS.  I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point).  She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work.  Not enough details there...

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Well there are pictures of her in the article, and she looks pretty upright and able to stand to me.  I have double scoliosis (shaped like an S) with a 45 degree curve, and I must wear a large lift in my right shoe to help it align so I can walk, sit, drive a car, etc.  I work.

Being on opioids is drugging her.  It's wrong.  The country is in an opiod crisis.  How is pumping this woman full of highly addictive pills ethical?  Because in one breath her mother says Franny can't be organized and has the mental capacity of a 13 year old and in another she allows her to get pregnant multiple times and feeds her probably oxy.  Franny needs parenting classes, an IUD, an education, a social worker, a physical therapist to help with her back, and some friends.

Mosaic DS often isn't diagnosed until much later in life because most do not have the typical hallmark facial features of downs, so in the face they don't resemble someone with downs.  You can see that in the picture she falls in that category.

I suspect PP is the same poster all in support of the grandmother and what this family is doing.  Instead, why don't you focus your energy on how Franny and her children could be helped.  [/quote]

Was Fanny's mom the one diagnosing her with scoliosis or prescribing her pain meds?  You seem to be very focused on blaming this grandmother for everything that has gone wrong in this family. It sounds to me as though they are doing the best they can with the help that has been offered to them.  Which isn't much from the sounds of it.

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