Anonymous
06/06/2017 09:12
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:Reread the article and the twins are the result of a relationship that Franny had with a man who was also on disability.
But what about her other 2 kids - the 12 yr old DD, and the 4 yr old DD?
I don't think that the article clarifies that. But I could have missed it.
Anonymous
06/06/2017 09:01
Subject: Re:Washington Post Article - Disability
Anonymous wrote:
Franny has mosaic DS which is a milder form of DS. I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point). She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work. Not enough details there...
Well there are pictures of her in the article, and she looks pretty upright and able to stand to me. I have double scoliosis (shaped like an S) with a 45 degree curve, and I must wear a large lift in my right shoe to help it align so I can walk, sit, drive a car, etc. I work.
Being on opioids is drugging her. It's wrong. The country is in an opiod crisis. How is pumping this woman full of highly addictive pills ethical? Because in one breath her mother says Franny can't be organized and has the mental capacity of a 13 year old and in another she allows her to get pregnant multiple times and feeds her probably oxy. Franny needs parenting classes, an IUD, an education, a social worker, a physical therapist to help with her back, and some friends.
Mosaic DS often isn't diagnosed until much later in life because most do not have the typical hallmark facial features of downs, so in the face they don't resemble someone with downs. You can see that in the picture she falls in that category.
I suspect PP is the same poster all in support of the grandmother and what this family is doing. Instead, why don't you focus your energy on how Franny and her children could be helped.
Not true. Down Syndrome, no matter the type, is diagnosed at birth. All people with DS have some hypotonia and a certain "look," regardless of whether they have mosiacism. She definitely has the look in the picture.
Maybe today. But Franny is 32.
Anonymous
06/06/2017 08:59
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Looks like Franny is now 32 and on meds for bipolar and pain. So she's got more than mosaic DS going on.
Neither none nor all of which means her life is over. People just cast disabled people aside, and don't allow them to try or preserve. It makes me so angry when disabled people are told there are too many limitations , or we don't want her to be disappointed. Plenty of people with bipolar and pain meds lead productive and rewarding lives. granny is just treated like a maid "because that's all she can do". How would anyone really know? Her disability could help pay for great programs, therapies, an apartment.... but that would mean her mother couldn't get her hands on it. Her mom thought it was ok for Franny to have kids, but she can't go to college? F that.
I agree with you and I think it's a shame that Franny wasn't encouraged to do more with her life. But we don't know how much the school tried to help and we don't know if Franny decided to do her own thing - or what exactly happened. People with DS have their own personalities, too. She may have wanted to fall in love, get married and have kids but the romance part of it didn't work out.
We don't know what happened. Does the article say when Franny became disabled? I believe it says that her mom became disabled due to a work injury after Franny was already disabled. And then the twins were initially receiving disability as babies because they were born prematurely. These folks have had some obstacles to overcome even if they could have done things differently.
She has Down's syndrome - she was disabled at birth.
She sounds high functioning enough to get a job - but it would be a job where she is paid less than minimum wage so that she can receive her disability payments. The job would just be to give her a social life so that her life extends beyond sitting at home all day. No one would hire her to do real paid work.
Downs Syndrome people also have many medical concerns so she needs Medicaid.
Her mother doesn't sound terribly competent to be her guardian given that she has no job and has kids that she cannot care for.
Franny has mosaic DS which is a milder form of DS. I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point). She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work. Not enough details there...
Well there are pictures of her in the article, and she looks pretty upright and able to stand to me. I have double scoliosis (shaped like an S) with a 45 degree curve, and I must wear a large lift in my right shoe to help it align so I can walk, sit, drive a car, etc. I work.
Being on opioids is drugging her. It's wrong. The country is in an opiod crisis. How is pumping this woman full of highly addictive pills ethical? Because in one breath her mother says Franny can't be organized and has the mental capacity of a 13 year old and in another she allows her to get pregnant multiple times and feeds her probably oxy. Franny needs parenting classes, an IUD, an education, a social worker, a physical therapist to help with her back, and some friends.
Mosaic DS often isn't diagnosed until much later in life because most do not have the typical hallmark facial features of downs, so in the face they don't resemble someone with downs. You can see that in the picture she falls in that category.
I suspect PP is the same poster all in support of the grandmother and what this family is doing. Instead, why don't you focus your energy on how Franny and her children could be helped.
Was Fanny's mom the one diagnosing her with scoliosis or prescribing her pain meds? You seem to be very focused on blaming this grandmother for everything that has gone wrong in this family. It sounds to me as though they are doing the best they can with the help that has been offered to them. Which isn't much from the sounds of it.
Anonymous
06/06/2017 08:58
Subject: Re:Washington Post Article - Disability
Franny has mosaic DS which is a milder form of DS. I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point). She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work. Not enough details there...
Well there are pictures of her in the article, and she looks pretty upright and able to stand to me. I have double scoliosis (shaped like an S) with a 45 degree curve, and I must wear a large lift in my right shoe to help it align so I can walk, sit, drive a car, etc. I work.
Being on opioids is drugging her. It's wrong. The country is in an opiod crisis. How is pumping this woman full of highly addictive pills ethical? Because in one breath her mother says Franny can't be organized and has the mental capacity of a 13 year old and in another she allows her to get pregnant multiple times and feeds her probably oxy. Franny needs parenting classes, an IUD, an education, a social worker, a physical therapist to help with her back, and some friends.
Mosaic DS often isn't diagnosed until much later in life because most do not have the typical hallmark facial features of downs, so in the face they don't resemble someone with downs. You can see that in the picture she falls in that category.
I suspect PP is the same poster all in support of the grandmother and what this family is doing. Instead, why don't you focus your energy on how Franny and her children could be helped.
Not true. Down Syndrome, no matter the type, is diagnosed at birth. All people with DS have some hypotonia and a certain "look," regardless of whether they have mosiacism. She definitely has the look in the picture.
Anonymous
06/06/2017 08:56
Subject: Washington Post Article - Disability
Anonymous wrote:Reread the article and the twins are the result of a relationship that Franny had with a man who was also on disability.
But what about her other 2 kids - the 12 yr old DD, and the 4 yr old DD?
Anonymous
06/06/2017 08:51
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Looks like Franny is now 32 and on meds for bipolar and pain. So she's got more than mosaic DS going on.
Neither none nor all of which means her life is over. People just cast disabled people aside, and don't allow them to try or preserve. It makes me so angry when disabled people are told there are too many limitations , or we don't want her to be disappointed. Plenty of people with bipolar and pain meds lead productive and rewarding lives. granny is just treated like a maid "because that's all she can do". How would anyone really know? Her disability could help pay for great programs, therapies, an apartment.... but that would mean her mother couldn't get her hands on it. Her mom thought it was ok for Franny to have kids, but she can't go to college? F that.
I agree with you and I think it's a shame that Franny wasn't encouraged to do more with her life. But we don't know how much the school tried to help and we don't know if Franny decided to do her own thing - or what exactly happened. People with DS have their own personalities, too. She may have wanted to fall in love, get married and have kids but the romance part of it didn't work out.
We don't know what happened. Does the article say when Franny became disabled? I believe it says that her mom became disabled due to a work injury after Franny was already disabled. And then the twins were initially receiving disability as babies because they were born prematurely. These folks have had some obstacles to overcome even if they could have done things differently.
She has Down's syndrome - she was disabled at birth.
She sounds high functioning enough to get a job - but it would be a job where she is paid less than minimum wage so that she can receive her disability payments. The job would just be to give her a social life so that her life extends beyond sitting at home all day. No one would hire her to do real paid work.
Downs Syndrome people also have many medical concerns so she needs Medicaid.
Her mother doesn't sound terribly competent to be her guardian given that she has no job and has kids that she cannot care for.
Franny has mosaic DS which is a milder form of DS. I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point). She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work. Not enough details there...
Well there are pictures of her in the article, and she looks pretty upright and able to stand to me. I have double scoliosis (shaped like an S) with a 45 degree curve, and I must wear a large lift in my right shoe to help it align so I can walk, sit, drive a car, etc. I work.
Being on opioids is drugging her. It's wrong. The country is in an opiod crisis. How is pumping this woman full of highly addictive pills ethical? Because in one breath her mother says Franny can't be organized and has the mental capacity of a 13 year old and in another she allows her to get pregnant multiple times and feeds her probably oxy. Franny needs parenting classes, an IUD, an education, a social worker, a physical therapist to help with her back, and some friends.
Mosaic DS often isn't diagnosed until much later in life because most do not have the typical hallmark facial features of downs, so in the face they don't resemble someone with downs. You can see that in the picture she falls in that category.
I suspect PP is the same poster all in support of the grandmother and what this family is doing. Instead, why don't you focus your energy on how Franny and her children could be helped.
Anonymous
06/06/2017 08:29
Subject: Washington Post Article - Disability
^wasn't obvious as a young child
Anonymous
06/06/2017 08:28
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:Anonymous wrote:Anonymous wrote:Looks like Franny is now 32 and on meds for bipolar and pain. So she's got more than mosaic DS going on.
Neither none nor all of which means her life is over. People just cast disabled people aside, and don't allow them to try or preserve. It makes me so angry when disabled people are told there are too many limitations , or we don't want her to be disappointed. Plenty of people with bipolar and pain meds lead productive and rewarding lives. granny is just treated like a maid "because that's all she can do". How would anyone really know? Her disability could help pay for great programs, therapies, an apartment.... but that would mean her mother couldn't get her hands on it. Her mom thought it was ok for Franny to have kids, but she can't go to college? F that.
I agree with you and I think it's a shame that Franny wasn't encouraged to do more with her life. But we don't know how much the school tried to help and we don't know if Franny decided to do her own thing - or what exactly happened. People with DS have their own personalities, too. She may have wanted to fall in love, get married and have kids but the romance part of it didn't work out.
We don't know what happened. Does the article say when Franny became disabled? I believe it says that her mom became disabled due to a work injury after Franny was already disabled. And then the twins were initially receiving disability as babies because they were born prematurely. These folks have had some obstacles to overcome even if they could have done things differently.
She has Down's syndrome - she was disabled at birth.
She sounds high functioning enough to get a job - but it would be a job where she is paid less than minimum wage so that she can receive her disability payments. The job would just be to give her a social life so that her life extends beyond sitting at home all day. No one would hire her to do real paid work.
Downs Syndrome people also have many medical concerns so she needs Medicaid.
Her mother doesn't sound terribly competent to be her guardian given that she has no job and has kids that she cannot care for.
Franny has mosaic DS which is a milder form of DS. I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point). She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work. Not enough details there...
Anonymous
06/06/2017 08:24
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:Her mom is also somehow able to get more and more opioids at her pain clinic even though she admits she's taking more than prescribed....wonder how that will turn out? It's a huge train wreck, you can't look away. Article also alludes to some serious doctor shopping. Where there's a will there's a way. Doesn't make it right. And you know it. And hose kids are going to grow up without a chance, and poor Franny is now serving a life sentence of being told she's never smart enough for anything.
Franny is also taking pain meds.
Granny needs a new guardian.
Anonymous
06/06/2017 08:22
Subject: Re:Washington Post Article - Disability
Anonymous
06/06/2017 08:21
Subject: Re:Washington Post Article - Disability
Anonymous
06/06/2017 08:20
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:Anonymous wrote:Looks like Franny is now 32 and on meds for bipolar and pain. So she's got more than mosaic DS going on.
Neither none nor all of which means her life is over. People just cast disabled people aside, and don't allow them to try or preserve. It makes me so angry when disabled people are told there are too many limitations , or we don't want her to be disappointed. Plenty of people with bipolar and pain meds lead productive and rewarding lives. granny is just treated like a maid "because that's all she can do". How would anyone really know? Her disability could help pay for great programs, therapies, an apartment.... but that would mean her mother couldn't get her hands on it. Her mom thought it was ok for Franny to have kids, but she can't go to college? F that.
I agree with you and I think it's a shame that Franny wasn't encouraged to do more with her life. But we don't know how much the school tried to help and we don't know if Franny decided to do her own thing - or what exactly happened. People with DS have their own personalities, too. She may have wanted to fall in love, get married and have kids but the romance part of it didn't work out.
We don't know what happened. Does the article say when Franny became disabled? I believe it says that her mom became disabled due to a work injury after Franny was already disabled. And then the twins were initially receiving disability as babies because they were born prematurely. These folks have had some obstacles to overcome even if they could have done things differently.
She has Down's syndrome - she was disabled at birth.
She sounds high functioning enough to get a job - but it would be a job where she is paid less than minimum wage so that she can receive her disability payments. The job would just be to give her a social life so that her life extends beyond sitting at home all day. No one would hire her to do real paid work.
Downs Syndrome people also have many medical concerns so she needs Medicaid.
Her mother doesn't sound terribly competent to be her guardian given that she has no job and has kids that she cannot care for.
Anonymous
06/06/2017 08:13
Subject: Washington Post Article - Disability
Anonymous wrote:Anonymous wrote:
Ironically you get more if you work for money and then are disabled, but the most severely disabled people cannot work do they get the least (which you cannot possibly live on)
You don't get much more if you have worked for some time before becoming disabled! The average benefit from SSDI is $1171 per month. Yes it is more than $700/month but still not a lot to live on.
Once we, our son's parents, are not here anymore our son will get a new guardian. Those, I am finding out, are often lawyers. I found that out when we hired one recently. The lawyers are paid out of the persons disability funds. Lawyers collect 'wards' like playing cards to supplement their income. The lawyer we were acquainted with complained numerous times about how now she could only bill for 6% of the SSI yearly total for her services due to a new law. She complained that it's 'hardly worth it now'.Thank god for new laws otherwise I'm sure people like her would take 75%. And what does she do for that money? Pretty much she fills out some end of year forms to turn in to show how the helpless wards money was spent. She spends no time with them, doesn't look into how their lives are really going and doesn't bring them anything. Guardians are picked by the court - you can't pick one for your child.
So - rich people will be cherry picking our sons small disability payment when we are gone, that's a big comfort.
I often see disabled adults out at a community event with an aid -the tickets are often donated - but when the person asks her aid for something like a popcorn they are told no. So - I wonder who is picking off the rest of their funds?
Please do like I do and get out your money and buy those disabled adults a treat when you see them next.
Anonymous
06/05/2017 21:30
Subject: Washington Post Article - Disability
Anonymous wrote:
That is a good question - I have a friend with one of the disabilities in the article and she certainly was never approved....
Did she meet the means testing? (very low income? and no assets?)
Which illness did she have?
Anonymous
06/05/2017 21:15
Subject: Re:Washington Post Article - Disability
Kentucky lawyer who pled guilty to $550M disability fraud goes missing.
https://www.google.com/amp/www.nbcnews.com/news/us-news/amp/eric-c-conn-center-550m-social-security-fraud-disappears-n768321
https://www.google.com/amp/www.nbcnews.com/news/us-news/amp/eric-c-conn-center-550m-social-security-fraud-disappears-n768321