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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Looks like Franny is now 32 and on meds for bipolar and pain. So she's got more than mosaic DS going on. [/quote] Neither none nor all of which means her life is over. People just cast disabled people aside, and don't allow them to try or preserve. It makes me so angry when disabled people are told there are too many limitations , or we don't want her to be disappointed. Plenty of people with bipolar and pain meds lead productive and rewarding lives. granny is just treated like a maid "because that's all she can do". How would anyone really know? Her disability could help pay for great programs, therapies, an apartment.... but that would mean her mother couldn't get her hands on it. Her mom thought it was ok for Franny to have kids, but she can't go to college? F that. [/quote] I agree with you and I think it's a shame that Franny wasn't encouraged to do more with her life. But we don't know how much the school tried to help and we don't know if Franny decided to do her own thing - or what exactly happened. People with DS have their own personalities, too. She may have wanted to fall in love, get married and have kids but the romance part of it didn't work out. We don't know what happened. Does the article say when Franny became disabled? I believe it says that her mom became disabled due to a work injury after Franny was already disabled. And then the twins were initially receiving disability as babies because they were born prematurely. These folks have had some obstacles to overcome even if they could have done things differently.[/quote] She has Down's syndrome - she was disabled at birth. She sounds high functioning enough to get a job - but it would be a job where she is paid less than minimum wage so that she can receive her disability payments. The job would just be to give her a social life so that her life extends beyond sitting at home all day. No one would hire her to do real paid work. Downs Syndrome people also have many medical concerns so she needs Medicaid. Her mother doesn't sound terribly competent to be her guardian given that she has no job and has kids that she cannot care for.[/quote] Franny has mosaic DS which is a milder form of DS. I don't know when she received her diagnosis but I got the impression from the article that it wasn't obvious. (I am assuming that she was genetically tested for this at some point). She also has scoliosis which she is on pain meds for and I would imagine that might limit her ability to work. Not enough details there... [/quote]
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