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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]If she misses so much school because of her illness, how is she going to work with her chronic condition?

You need to consider whether she will be able to work at all, or whether she will need to start collecting SSDI as an adult. If she is unable to work because of a condition that started in her childhood, she can draw against your SSI contributions as an adult. You need to begin documenting this now, though, and you probably need to talk to a Social Security attorney. [/quote]

We cant know that she will be able to work, but we can only move forward.  We know the deal with SSI already, we aren't ignorant to that possibility.

She's on some pretty hard core drugs that if we can get juggled correctly, might make her number of days in the hospital fewer.  Just no telling really.  We are cautiously optimistic.  We do know from the area organization for this illness that plenty of adults are able to work.  [/quote]

I think this is a very good question, actually.  It sounds to me like a chronic disease is much more of an issue than her aptitude.  I would also think that the first order of business when she turns 18 is to get her SSDI, as well as setting up some kind of trust fund for her if you have the means.  Even a small amount -- the equivalent of what you would have spent for college, will provide her with some security.  Thankfully with the new ACA she probably will always have access to healthcare.  But i would plan for the worst case scenario financially, to make sure she's well taken care of.

I have a stepsister who has an IQ in the range you describe and also has ADHD, although she is able to take medication.  She loves kids and is getting an AA degree in early childhood development with the goal of working in a nursery school or childcare center.  Her community college has supports for kids with learning differences, and she takes a reduced courseload.  It's tough for her but not like a four year degree. She's building on her strengths and will most likely have rewarding work doing something she loves, but she will always need the extra help and support of family.

Once you have these supports in place, it will probably be easier to accept what she's going to be capable of and help her find something that will make her happy and build on her considerable people skills.
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PP again -- another thought.  Make sure you have designated a group of adults who can support her and be her trustee in the event something happens to you.[/quote]

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