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Reply to "Treatment for severe TBI -- any hope?"
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[quote=Anonymous]I am so sorry. My child suffered a severe brain injury and although she survived she is severely disabled. Whatever happens with your friend's daughter the family has a long road ahead of them and really all you can do is be there for them. In my experience, I didn't want people offering me treatment advice, or platitudes, etc. Don't ask how you can help, just do stuff: drop off meals at the hospital, do their laundry, clean their house (or hire people to go do that, organizing it all yourself so they don't have to). They probably are paralyzed but life goes on and someone needs to tend to it. Doctors - and neurologists in particular - are some of the most negative people out there. They can't predict the future for any individual, so there is always hope, but it's also important to be realistic. When we were still in the acute phase we swung between those extremes, some days feeling hopeful our daughter would recover and other days just lost in a black hole of desperation and grief. There is no way out, no way to know what the future holds, no way to fix it - you just have to get through it, one day, minute, second at a time. Just be there for them. [/quote]
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