Reply to Anyone on here have a child with FAS or FASD?

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[quote=Anonymous]Have two children (older adoptees) who have ND-PAE (neurodevelopment disorder due to prenatal alcohol exposure---the DSM term that replaced "FASD", "ARND" and "FAE")
We knew that our children had been exposed, but they had not been formally diagnosed prior to our adopting them. 
Page 9 of the attached is a good summary of symptoms indicative of FASD.  The whole booklet is quite helpful, actually.

http://www.fldoe.org/core/fileparse.php/7690/urlt/0070099-fetalco.pdf

I have to say that once we started treating it as a medical disability, things improved.  That means meds for the ADHD, and other meds for emotional regulation (they made a HUGE improvement in the previously out of control tantrums).  We have IEPs.

There is a wonderful Canadian organization called "Living with FASD" run by an adoptive parent named David Gerry.  I have downloaded the materials from his 2013 and 2014 FASD summits, which feature a wide variety of doctors, therapists, parents, and other advocates for FASD diagnosis, research and treatment, and learned a tremendous amount.

The biggest risks with FASD kids is the secondary effects as they enter the teenage years---that's when the dysmaturity and lack of reasoning ability can result in substance abuse, poor choice of peer group, inappropriate sexual activity, etc.  Early diagnosis and interventions are useful in ameliorating these secondary effects.

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