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Kids With Special Needs and Disabilities
Reply to "Medicaid Waiver"
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[quote=Anonymous]I would be interested in figuring out how to lobby to get Medicaid changed. My neighbor's child was born with a heart condition; he's being monitored and will probably need another procedure at 13 or 14. He's 7. He automatically qualifies for secondary Medicaid and doesn't even use it since he has ER sponsored coverage and is doing so well which is such great news. However, lower income kids get Medicaid or CHIP coverage. The rest of us pay a fortune out of pocket for PT, OT, speech, etc. We max out into the catastrophic level every year since my child got sick 4 years ago. My child is now 6. I do think it is fair that LISS money can no longer be awarded if you get Medicaid. Give the rest of us the measly $2,000. I got an email from ARC saying that there was no notice given (not good in my opinion) but that people should be able to double dip and still get LISS. I don't think they should. [/quote]
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