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Kids With Special Needs and Disabilities
Reply to "Ok well “we’ll” just start x therapy"
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[quote=Anonymous]I thought we had reached good places with both kids but this week had big steps back for both of them. One I am still processing and so so stressed about. I am not sleeping well and really struggling with what to do next. My spouse is constantly annoyed at me for being stressed. He routinely says things like ok well then we just restart x therapy (which was always an imperfect fit, which is why we stopped along with our provider no longer being appropriate for DCs age, so we would need to find someone new which is not easy for this type of very specific therapy) and when we are already completely at capacity with therapies and activities so if we do decide to restart something else will have to go. There is just no other way. Everything at this point is trade offs and in some ways my DC gets more from their main activity than their current therapy. I am so tired of having to figure this all out alone and be told I’m crazy to be worrying so much. I am hitting perimenopause and I just don’t function as full on as I used to when DC was going through their major crisis. I honestly don’t know what to do to not feel so alone and overloaded. Every time I cut back at work my husband just sees it as permission to be less involved and work more. I am considering trying to do it without telling him somehow. I am always so emotionally overwhelmed when trying to talk through options with him that I don’t do a good job expressing myself about how annoying it is to be told don’t worry it will all work out when it always works out because I spend hours figuring out what to do, finding the provider/dealing with the school and then implementing the fix (therapy, work at home, whatever). I guess I will try to express that at some point but what I really want to say is I would be a lot less stressed if I had a partner on this instead of someone who seems determined to ignore and minimize our kids problems and what it takes to address them. I also feel like I desperately need someone to be involved enough to tell if we need to change our parenting and if I am being unreasonable with my expectations as our child gets closer to adolescence. We used to have a therapist that was really good at that and honestly filled that role but she moved and our new provider just does not provide that. This is mostly a vent. Now that I am up for the day and caffeinated I can believe I will somehow figure this out again, like I have every other time. [/quote]
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