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[quote=Anonymous]I hope someone who has been down this road can chime in.  I’m my mom’s caregiver, POA and basic life manager.  My mom has moderate cognitive decline and primary progressive aphasia. No official dementia diagnosis but all the signs of dementia are there.  I’m the only local child and my siblings are supportive from afar and lend an ear when needed but don’t get involved with the day to day.

She’s in assisted living and is thriving there (well as much as someone can thrive in assisted living).  She’s enjoying the people and the activities but I find myself spending time every day managing her life and engaging in activities to make her life better.  And there seems to be a constant list of calls that need to be made and bills to be paid or negotiated.  Just things that need to be done when it comes to her.

She’s become so much like a child now and I find that I have this almost constant low-level anxiety when it comes to her.  I’m always worried about her.  Worried I’m not doing enough, worried because of all the time and energy it takes to make sure she’s okay, worry about juggling my other responsibilities- I am a single parent who has a full time job and used to have a pretty decent social life.

I’m not an anxious person, I’ve never had anxiety before and these days it seems like it’s always there on some level just under the surface. I’m hoping my mom is around for a long time.  I’m also hoping that at some point she’ll stabilize to the point she doesn’t need as much as she does now but realistically I think it’s going to get a lot worse as time progresses.   Has anyone gone through something similar and made it out unscathed?  [/quote]

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