Reply to genetic testing - breast cancer risk

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[quote=Anonymous][quote=Anonymous]Mine was covered by insurance because of a strong family history of breast and ovarian cancer for my mother, grandmother and maternal aunt.

I was negative for genetic risk.  Then my sister was diagnosed with breast cancer and I was diagnosed with DCIS, hormone sensitive.   Discussed with a genetic counselor and multiple doctors and decided to have an oophorectomy.  Had my genetic risk been evident with testing, I would probably have had the oophorectomy earlier.  Genetic counselor felt it was possible that there's a genetic risk in my family that isn't in the current testing.

[b]Word to the wise, if you don't yet have life insurance in place, get it set before even discussing it with your doctor. [/b]When I applied the life insurance company found the note in my doctors records and basically priced it as if I were BRCA positive.  They said I could reapply if I did get tested and turned out to be BRCA negative.  I did, but before I could go through the reapplication process I got the DCIS diagnosis which basically scuttled the whole thing![/quote]

I have a different genetic mutation which raises my risk of kidney cancer and echo the bolded 1000%. And think about if you want long term care insurance.

In your case, the question I would really want answered would be if you are positive, what would change as far as your care? For me, I need an MRI annually, so get everything on the record was important. If it's knowledge for knowledge's sake I probably wouldn't do it.[/quote]

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