Severe reflux - Pediatric GI recommendations?

[Anonymous]

Our 4 month old is dealing with pretty severe silent reflux. Started on famotidine, then that stopped working so we switched to Prevacid. That worked for a few weeks and now the symptoms are back again. He just started prescription Prilosec.

Feeding is a complete nightmare. It's awful seeing him in so much pain. We are worried that there's damage to his stomach and/or esophagus.

Does anyone have a pediatric gastroenterologist recommendation?

[Anonymous]

Our child was older - but we worked with Children's and Dr. Benny Kerzner. Our experience with Children's was outstanding

[Anonymous]

What are you feeding him? Breastfeeding, formula, combo? If breastfeeding, have you done an elimination diet for at least a month? My DD had severe soy protein intolerances (among others) so there were really no formula options for us at all - I had to cut out a ton of foods to continue BFing.

[Anonymous]

Anonymous wrote:What are you feeding him? Breastfeeding, formula, combo? If breastfeeding, have you done an elimination diet for at least a month? My DD had severe soy protein intolerances (among others) so there were really no formula options for us at all - I had to cut out a ton of foods to continue BFing.

Formula - I had to give up breastfeeding completely when he was hospitalized earlier in the year because he was refusing to eat. For my own mental health I wasn't going to pump. Plus the stress and sleep deprivation made my supply tank, anyway. They tested for everything when he was hospitalized - no intolerances.

[Anonymous]

Anonymous wrote:Our child was older - but we worked with Children's and Dr. Benny Kerzner. Our experience with Children's was outstanding

Thank you!

[Anonymous]

Anonymous wrote:

Anonymous wrote:What are you feeding him? Breastfeeding, formula, combo? If breastfeeding, have you done an elimination diet for at least a month? My DD had severe soy protein intolerances (among others) so there were really no formula options for us at all - I had to cut out a ton of foods to continue BFing.

Formula - I had to give up breastfeeding completely when he was hospitalized earlier in the year because he was refusing to eat. For my own mental health I wasn't going to pump. Plus the stress and sleep deprivation made my supply tank, anyway. They tested for everything when he was hospitalized - no intolerances.

You cant test for intolerances. You can test for allergies.

Childrens Dr. Darbari was who we saw. We now only see an allergist so I can speak long-term care but he was informative, kind, and supportive.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:What are you feeding him? Breastfeeding, formula, combo? If breastfeeding, have you done an elimination diet for at least a month? My DD had severe soy protein intolerances (among others) so there were really no formula options for us at all - I had to cut out a ton of foods to continue BFing.

Formula - I had to give up breastfeeding completely when he was hospitalized earlier in the year because he was refusing to eat. For my own mental health I wasn't going to pump. Plus the stress and sleep deprivation made my supply tank, anyway. They tested for everything when he was hospitalized - no intolerances.

You cant test for intolerances. You can test for allergies.

Childrens Dr. Darbari was who we saw. We now only see an allergist so I can speak long-term care but he was informative, kind, and supportive.

Thanks for the recommendation! They tested for blood in his stool which would have indicated an intolerance. There was none.

[Anonymous]

My little one had bad reflux. Famotidine didn’t work, we wound up on lansoprazole ...we saw Dr Wolfe at pediatric associates of northern va (affiliated with Children’s Hospital)

[Anonymous]

PS, I am so sorry you’re going through this. I know how stressful this is. My little one is 8 months and came out of it around 6-7 months. Hang in there.

[Anonymous]

I am so sorry, OP. I have been where you are. It got better after 7 months

We tried children’s but were sent to a nurse practitioner who didn’t seem to have a good handle on reflux. They were not able to help DS at all.

Then we went to Georgetown and saw Dr. Serrano, who was great.