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Kids With Special Needs and Disabilities
Dr Terry Watkin, pediatric neurologist?
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Anonymous
| any expereince with him? My son just had an EEG due to absence seizures and my pedi is sending me to him. |
Anonymous
| My nine-year-old just started having seizures. We'd like recommendations for a very good pediatric neurologist. Any suggestions? Thank you. |
Anonymous
|
We thought Dr. Pearl at CNMC was wonderful, but we didn't go to him for seizures. I think seizures may be one of his specialties though. The waitlist was LONG, but I'm glad we got to see him. |
Anonymous
| No personal experience with him, but a friend's son sees him and they LOVE him. |
Anonymous
|
Dr Watkin is amazing and very good. I saw him for awhile as a kid (I have a pediatric epilepsy form), but I switched neuros because I wanted someone whose personality meshed with mine a little better. Still, I've worked with that group some as an adult and I like him quite a bit. He has a nice manner.
I would consider seeing a pediatric epileptologist, however, not just a pediatric neurologist. That would probably send you to Dr. Pearl at Children's. |
Anonymous
| PS (13:17 here): as an adult with epilepsy, my offer stands to any parent on this board to provide info about growing up with seizures, adulthood with seizures, etc. And to offer you a lot of hope that things will turn out just fine. |
Anonymous
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13:17, NP here and I may take you up on that offer. My 2 year old was diagnosed with epilepsy last year (complex partial). I feel like I held it all together for a long time really well and now, not so much. She's struggling with irritability and anxiety, and I feel overwhelmed by her diagnosis, her toddlerhood, the future.
OP, we are seeing Orrin Devinsky at NYU (he was recommended by someone on here) in a month for a second opinion, although I love her neurologist here in DC (part of the Children's group). |
Anonymous
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I am the OP and we have been very pleased with Dr Watkin. He starts meds out very low and ds really likes him. GL!
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Anonymous
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My daughter who is almost 5 was recently diagnosed with epilepsy. We saw Dr. Watkin after her initial seizures which started off as febrile seizures when she was a baby. I thought he was very good but a little rough around the edges. After a major seizure a couple of months ago, my daughter was seen by Dr. Emily Freilich from Children's in Fairfax. I immediately connected with her and so she is my daughter's neurologist now. I love the practice at Children's and Dr. Freilich is very accessible which is great. I highly recommend her!
Also, I am looking to see if there is anyone interested in starting a support group. I have reached out to the NEF and there is not currently a support group for Northern Virginia/DC. If anyone is interested, please let me know and I will post my contact information! |
Anonymous
| Dr. Rajasingham at Shady Grove is an amazing pediatric neurologist. She is unbelievably thorough, spends a lot of time with her patients at appointments and is very open to looking at lots of options for issues. |
Anonymous
| He is very good. He is polite but not "warm and fuzzy". |
Anonymous
| We just saw him last week - not for epilepsy, but for neurological issues with development (my daughter is 2). We've seen a lot of specialists and he was myfavorite so far...I liked him a lot and I really like that he comes to get you out of the waiting room (no nurses) and you can email him directly. |
Anonymous
Dana Douglas runs for the Epilepsy Foundation of Virginia. I can get you more information if you want it. michelle middle initial r last initial w at gmail |
Anonymous
| We just moved into the DC area and our neurol. gave us these docs. as great, and really had nothing but good things to say about DC Children's in general....Dr. Philip Pearl, Dr. W. Gaillard, Dr. Joan Conry. That's what I have for help. I will be looking for help as well for peds. Hope this helps. |
Anonymous
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I'd be very interested in joining a support group for parents. My daughter has been having simple partial seizures for a year now since she was 18 months old. She's tried keppra, trileptal, topamax and phenobarb. The only one that seems to have worked for her so far is phenobarb, which we're concerned about using for a long period of time. All other meds seem to have increased her seizure activity. We've felt like medications have actually made the issue worse overall, because they haven't been very effective at stopping the seizures yet they are impacting her behaviour so much. Its very tough to go through all this trial and error on your child with different medications, particularly all the bloodwork that needs to be done to test levels and all the impacts to their mood.
We've been seeing one doctor at Children's and have had consultations with Dr. Sylvia Edlestein, but we'd like to go to one of the doctors recommended on these forums like Dr. Gaillard or Dr. Pearl. How have other parents navigated getting second opinions. Have you found that doctors, particularly if they are both affilliated with Children's, will collaborate on the care or do you just primarily use the one you like the best? One issue I've had with Children's so far is that its so hard to get an appointment. The doctors must be extremely busy that it makes me wonder how much time and attention they can actually devote to one case. Please contact if interested in discussing these types of issues further: chau_g_nguyen@yahoo.com. Thanks! Chau |