Mixed Receptive-Expressive delay- outcomes?

[Anonymous]

Anyone with a child who had mixed receptive-expressive delay, what have your experiences been?

Has it lead to another diagnosis?

Did your child “grow out of it”

Or if it was a life long struggle, we’re you able to get quality support as they got older?

Our child has this, and just curious about other parents going through the same thing (or who have been there)

[Anonymous]

Anonymous wrote:Anyone with a child who had mixed receptive-expressive delay, what have your experiences been?

Has it lead to another diagnosis?

Did your child “grow out of it”

Or if it was a life long struggle, we’re you able to get quality support as they got older?

Our child has this, and just curious about other parents going through the same thing (or who have been there)

My son has been diagnosed with expressive receptive disorder and the things I have read on google scare me.

[Anonymous]

How old is your child and has he only had a speech language evaluation or was this the diagnosis given after a comprehensive evaluation?

[Anonymous]

He is almost 3, we have seen a pediatric development specialist and we also receive services through infants and toddlers (we have SPIN and speech) we just got an eval at private speech and will be starting with them as well. We are doing PEP next year but have not been assign a level (our educated guess is he’ll be in pep classic)

[Anonymous]

The above Response 14:31 is OP!! Forgot to include that...

[Anonymous]

My child has it. It was severe younger. Now its very mild and a few minor struggles but child is very different and doing great. Does well in sports, standardized testing, no behavioral issues nor any other diagnosis. It isn't gloom or doom. Like anything its hard to predict. We were told by Dr. Camarata that our child would learn to adapt in the weaker areas and be fine. Some of it depends on IQ too. Kids with higher IQ's seem to have a better outcome (which isn't a surprise).

Best thing to do is from 3-5/6, do intensive speech therapy, not just county or PEP. Consider LEAP as it is the only program that specializes in language at UMD.

Also, for the first few years of school, you may want to consider private. I think that helped a lot as the school we were at was very nurturing but still kept the same expectations.

Public school is a worthless for services and supports. They do not understand it so don't expect anything and do it at home.

[Anonymous]

Anonymous wrote:My child has it. It was severe younger. Now its very mild and a few minor struggles but child is very different and doing great. Does well in sports, standardized testing, no behavioral issues nor any other diagnosis. It isn't gloom or doom. Like anything its hard to predict. We were told by Dr. Camarata that our child would learn to adapt in the weaker areas and be fine. Some of it depends on IQ too. Kids with higher IQ's seem to have a better outcome (which isn't a surprise).

Best thing to do is from 3-5/6, do intensive speech therapy, not just county or PEP. Consider LEAP as it is the only program that specializes in language at UMD.

Also, for the first few years of school, you may want to consider private. I think that helped a lot as the school we were at was very nurturing but still kept the same expectations.

Public school is a worthless for services and supports. They do not understand it so don't expect anything and do it at home.

Thank you! I have been curious about when he goes to kindergarten. Luckily we still have some time. I have heard that PEP is amazing though, and even teachers at private school recommend it. Did you not feel it was enough? I was planning to only do private speech once a week but maybe I will reconsider..

[Anonymous]

Anonymous wrote:

Anonymous wrote:My child has it. It was severe younger. Now its very mild and a few minor struggles but child is very different and doing great. Does well in sports, standardized testing, no behavioral issues nor any other diagnosis. It isn't gloom or doom. Like anything its hard to predict. We were told by Dr. Camarata that our child would learn to adapt in the weaker areas and be fine. Some of it depends on IQ too. Kids with higher IQ's seem to have a better outcome (which isn't a surprise).

Best thing to do is from 3-5/6, do intensive speech therapy, not just county or PEP. Consider LEAP as it is the only program that specializes in language at UMD.

Also, for the first few years of school, you may want to consider private. I think that helped a lot as the school we were at was very nurturing but still kept the same expectations.

Public school is a worthless for services and supports. They do not understand it so don't expect anything and do it at home.

Thank you! I have been curious about when he goes to kindergarten. Luckily we still have some time. I have heard that PEP is amazing though, and even teachers at private school recommend it. Did you not feel it was enough? I was planning to only do private speech once a week but maybe I will reconsider..

We did Leap not pep. Pep is group therapy and not equal. Do several times a week private. Once is not enough. We found the 3-5/6 window the most important for therapy. Be more aggressive early on then pull back. K my child struggled with speech. By 1st talking more. Many underestimate these kids and their ability because of the speech.

[Anonymous]

Mine was diagnosed with that really young and was a late talker. We also pushed for an autism diagnosis. Most doctors tread lightly with that and I am not looking to open up pandora's box with all the MERLD parents being furious to imply autism and MERLD present and are neurologically similar. Doesn't matter. You know what matters? Autism got us tons of services. We were also told services would be the same for both DX, but autism gets more. We tried ABA and it was not a match, but did lots of ST, OT, etc.

Fast forward to age 3 he started reading on his own-dx: hyperlexia.

Fast forward to late elementary. He is and has been since starting school, mainstreamed completely with an IEP. He has friends. He does well at school with support as needed. He is happy. He has a strong IQ, but you would not have known that when he bombed his early intervention testing and then bombed his testing again at age 4. He still has language processing issues, but is within the average range as per testing for receptive and expressive.

There I plenty of hope. Intervention is key. Every child is different, but every child can meet their own potential with help.

[Anonymous]

Anonymous wrote:Mine was diagnosed with that really young and was a late talker. We also pushed for an autism diagnosis. Most doctors tread lightly with that and I am not looking to open up pandora's box with all the MERLD parents being furious to imply autism and MERLD present and are neurologically similar. Doesn't matter. You know what matters? Autism got us tons of services. We were also told services would be the same for both DX, but autism gets more. We tried ABA and it was not a match, but did lots of ST, OT, etc.

Fast forward to age 3 he started reading on his own-dx: hyperlexia.

Fast forward to late elementary. He is and has been since starting school, mainstreamed completely with an IEP. He has friends. He does well at school with support as needed. He is happy. He has a strong IQ, but you would not have known that when he bombed his early intervention testing and then bombed his testing again at age 4. He still has language processing issues, but is within the average range as per testing for receptive and expressive.

There I plenty of hope. Intervention is key. Every child is different, but every child can meet their own potential with help.

Learning letter yet not being able to talk started it as a concern for us. Autism and hypermedia has been ruled out as far as I can tell.

Apraxia is on our radar but he doesn’t seem to fit the symptoms. He doesn’t fit in one box :/


To the PP- I haven’t heard of leap. Pep is the preschool program, I haven’t heard of other options we can consider at this point (maybe it’s a county thing? We could be from different areas) I am new to all of this! Just trying to navigate as best I can. I appreciate all the input thus far!

[Anonymous]

Here's the information about LEAP: http://hespclinic.umd.edu/leap-preschool.html

It's run by UMD, but not part of the IEP process (that is, you apply, go, and pay for it yourself, without the county's involvement).

[Anonymous]

Anonymous wrote:

Anonymous wrote:Mine was diagnosed with that really young and was a late talker. We also pushed for an autism diagnosis. Most doctors tread lightly with that and I am not looking to open up pandora's box with all the MERLD parents being furious to imply autism and MERLD present and are neurologically similar. Doesn't matter. You know what matters? Autism got us tons of services. We were also told services would be the same for both DX, but autism gets more. We tried ABA and it was not a match, but did lots of ST, OT, etc.

Fast forward to age 3 he started reading on his own-dx: hyperlexia.

Fast forward to late elementary. He is and has been since starting school, mainstreamed completely with an IEP. He has friends. He does well at school with support as needed. He is happy. He has a strong IQ, but you would not have known that when he bombed his early intervention testing and then bombed his testing again at age 4. He still has language processing issues, but is within the average range as per testing for receptive and expressive.

There I plenty of hope. Intervention is key. Every child is different, but every child can meet their own potential with help.

Learning letter yet not being able to talk started it as a concern for us. Autism and hypermedia has been ruled out as far as I can tell.

Apraxia is on our radar but he doesn’t seem to fit the symptoms. He doesn’t fit in one box :/


To the PP- I haven’t heard of leap. Pep is the preschool program, I haven’t heard of other options we can consider at this point (maybe it’s a county thing? We could be from different areas) I am new to all of this! Just trying to navigate as best I can. I appreciate all the input thus far!

If they put rule out autism or r/o autism, it means they need more info to rule it out, not that it has been ruled out, bur regardless, you will see regardless of diagnosis plenty of kids benefit from the same things regardless of diagnosis. Any group intervention always had kids with varying issues.

We did special needs non-categorical preschool in the public school and a private inclusive preschool. I have heard of LEAP. It's a program at UMD and I think it is run by their speech therapy department. Have only heard good things.

[Anonymous]

My older DS was diagnosed with MERLD and ADHD at 5. We did speech therapy for a while but the SLP thought that most of his 'speech' issues were more related to the issues associated with ADHD and that rather than private ST, we should continue with school ST, tutoring and practice/repetition. He didn't learn to read until about the end of 1st grade. By 5th grade, older DS no longer needed special ed services for speech/language but continued to receive them for math. He's now in 10th grade and doing very well. In hindsight, the first SLP was correct that his MERLD was more a function of his ADHD and slow maturation than a separate disorder.

I have a younger DS with apraxia/ADHD/language and communication disorder (but has never met the criteria for ASD) whose profile is very different and has required intensive, long term ST.

[Anonymous]

Anonymous wrote:Mine was diagnosed with that really young and was a late talker. We also pushed for an autism diagnosis. Most doctors tread lightly with that and I am not looking to open up pandora's box with all the MERLD parents being furious to imply autism and MERLD present and are neurologically similar. Doesn't matter. You know what matters? Autism got us tons of services. We were also told services would be the same for both DX, but autism gets more. We tried ABA and it was not a match, but did lots of ST, OT, etc.

Fast forward to age 3 he started reading on his own-dx: hyperlexia.

Fast forward to late elementary. He is and has been since starting school, mainstreamed completely with an IEP. He has friends. He does well at school with support as needed. He is happy. He has a strong IQ, but you would not have known that when he bombed his early intervention testing and then bombed his testing again at age 4. He still has language processing issues, but is within the average range as per testing for receptive and expressive.

There I plenty of hope. Intervention is key. Every child is different, but every child can meet their own potential with help.

My child started reading on his own at 3 too. I think its common for these kids as their learning style is more visual and that is how a lot of speech therapy is done. We had him evaluated by Dr. Camarata who said it wasn't hyperlexia and some kids just start reading early. Their brains work differently.

[Anonymous]

Anonymous wrote:Here's the information about LEAP: http://hespclinic.umd.edu/leap-preschool.html

It's run by UMD, but not part of the IEP process (that is, you apply, go, and pay for it yourself, without the county's involvement).

It is through the U of MD Speech Pathology school. It has a director who is an SLP and they have student SLP's who run the preschool. Each child is given 30 minutes private speech therapy, good evaluations and much more. Its very affordable and they have a sliding fee if needed. They also have a speech clinic for speech therapy that is much cheaper than private. We had very good luck. A few the the students were ok, some bad (we never got those but other parents complained about a few) but most were great. But, my kid liked speech therapy and always worked at it so no matter who he was with he was fine. It really prepared my child for the next school and it was an easy transition. You can do LEAP and PEP, some parents did, but we didn't and did private speech and activities in the afternoon. At some point, you need to find a balance and not under-do-it or over-do-it.

But, despite what others say on here, not all kids have other disorders or learning issues.