Do you blog about your child’s special needs?

[Anonymous]

If so, when do you tell them about the blog?

[Anonymous]

I don't, and you've just nailed the reason why.

There's a fine line between your story and their story, and it's hard to dial back in years down the road.

[Anonymous]

No and I am anti mommy bloggers for exploiting their kids. If you have a story to tell, do it but leave your minor children out of it. This includes photos. The only one I used to read was a mom of two special needs girls but she called them different names and never used her location or last name. It was about HER journey as a mom and not so much about her kids.

[Anonymous]

OP here. I’ve read blogs by parents of special needs kids where the child eventually took over and started writing the blog.

[Anonymous]

No interest in blogging.

[Anonymous]

Anonymous wrote:OP here. I’ve read blogs by parents of special needs kids where the child eventually took over and started writing the blog.

Who would benefit from you blogging, you or your child mostly? But really, it is your child's special needs and is more his/her story than yours. I say that as a mom with a child who will never even understand what "blog" means much less be able to take over writing it one day. I think I owe him the respect of his story being his to express, if at all, under his own capabilities.

[Anonymous]

Anonymous wrote:

Anonymous wrote:OP here. I’ve read blogs by parents of special needs kids where the child eventually took over and started writing the blog.

Who would benefit from you blogging, you or your child mostly? But really, it is your child's special needs and is more his/her story than yours. I say that as a mom with a child who will never even understand what "blog" means much less be able to take over writing it one day. I think I owe him the respect of his story being his to express, if at all, under his own capabilities.

OP here. Does your child have intellectual disabilities?

[Anonymous]

Hell no! Who's got the time for that? And, if I did have time, I wouldn't want to violate my kids' privacy. It's one thing to share this information at IEP meetings, with service providers or while commiserating with other moms. It's completely different to post it for the world to see.

[Anonymous]

Hell no! Who's got the time for that? And, if I did have time, I wouldn't want to violate my kids' privacy. It's one thing to share this information at IEP meetings, with service providers or while commiserating with other moms. It's completely different to post it for the world to see.

[Anonymous]

Anonymous wrote:No and I am anti mommy bloggers for exploiting their kids. If you have a story to tell, do it but leave your minor children out of it. This includes photos. The only one I used to read was a mom of two special needs girls but she called them different names and never used her location or last name. It was about HER journey as a mom and not so much about her kids.

+1. If you do it, no pictures, no location, no identifying information about anything.

[Anonymous]

No, I keep my children's health private.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:OP here. I’ve read blogs by parents of special needs kids where the child eventually took over and started writing the blog.

Who would benefit from you blogging, you or your child mostly? But really, it is your child's special needs and is more his/her story than yours. I say that as a mom with a child who will never even understand what "blog" means much less be able to take over writing it one day. I think I owe him the respect of his story being his to express, if at all, under his own capabilities.

OP here. Does your child have intellectual disabilities?

Not PP but my adult sibling does. She would understand and completely hate it if she had someone blogging about her. On the flip side, if a person can't give informed consent then they can't consent. Blogging isn't therapeutic for the child.

I am anti mommy blogs in general--so freaking narcissistic.

There are a few exceptions b/c they talk about experiences like reading, cooking, or activities not detailing their child's private life.

[Anonymous]

No. No time and I want to protect my child's privacy and keep his medical records the same. Once it's on the internet it's forever and that's for my child to decide, not me.

[Anonymous]

People who use their child's disability for attention really need to find another way to get it.
A child with a disability is likely either unable to ever consent to giving away their right to privacy, OR will be able to use their own voice when THEY want in a way THEY want to. How dare you think it is Ok to take away or exploit their story so you can get headpats from strangers about how great you are doing raising a SN child.

Find a hobby that doesn't involve your child.

[Anonymous]

NO. But I don't hide it either. I think it is weird and leads to stigma when we sweep everything under the rug.

Lots of disabled/SN children will be able to give consent, PP! You are the kind of person that needs help normalizing SN because you obviously think that is someone has SN they have drastic mental impairment, which is very much not the case universally. My SN child is very intellectually gifted.